juliesdreamteam
New member
I wanted to tell you a quick story about a fat kid. That fat kid is me, Roy Ice. When I was 16, I met a girl that coughed. She coughed A LOT. Eight years later, I would marry the girl that saw something special in my heart. Eight months after the marriage, we learned that my beautiful, coughing wife had Cystic Fibrosis. She was 23. The life expectancy then was 29.
THOUSANDS of volunteers across the country spent hours trying to stretch out that life expectancy and find a cure. In 2010, that fat kid would launch the nation's largest Great Strides team. He named it Julie's Dream Team in honor of his hero...his wife....Julie.
Cystic Fibrosis tried everything it could to take her from him. He watched her spend 2 months....2 long, hard freaking months on a vent. In-laws begging that fat kid to end their daughters pain, muscles atrophying to the point that Julie's weight fell to 61 pounds and a flurry of friends and family that came to say their final good-byes to her.
God had other plans and gave her a second chance at life through organ donation. 2 BEAUTIFUL, PINK, OXYGEN PUSHING Lungs saved her life.
I know....and you know....that money and time are the ONLY variables standing between those of us that HATE the disease and desperately want a cure for our heroes.
Over the course of the past 2 years, Julie's Dream Team has asked people to "Live Life...Help Others Live Theirs"...we've NEVER asked anyone for a single dime (and never will) and over $250,000 has been donated by some of America's largest corporations. It's really crazy when you think that something as simple as a beer can make such a HUGE difference but it has.
So now that fat kid (your's truly), who hates CF more than anything in the world has written my beautiful wife's story. "Julie: The Courage to Breathe" tells the tale of our love, the disease, her battle and her ultimate victory. My gut tells me that it's a story that closely mirrors the lives of those with the disease.
The truth of the matter is that we've all spent our lives dreaming of a cure. Dreaming won't get it done. We've got to pour our hearts and our souls into finding a cure. I believe it's possible. You all know about Kalydeco. That couldn't have happened without our CF Community's tireless efforts.
I have directed the publisher (and given the CF Foundation's Federal ID# 13-1930701) to donate 100% of my author royalties to the CF Foundation. Why? Because NO ONE should live with this disease and I (that fat kid) believe that our community will do all it can to help our heroes breathe....even something as simple as reading a 112 page book.
If you all are interested in finding a cure for Cystic Fibrosis (and I'm sure you are), you should consider picking up a copy at www.lulu.com/spotlight/curecf
I hope you all are inspired by my Julie's amazing story. I hope you NEVER GIVE UP hope. NEVER GIVE UP FAITH!!
We can do this!!!! $6.36 of every paperback sold ($14.56 for hardbacks) goes directly to the CF Foundation. It'll set you back $13.50 for the paperback version.
If that fat kid is willing to give everything away and can't get those that want a cure to stand united....well....I guess Julie's Dream Team will have to work even harder.
God Bless....CURECF,
Roy E. Ice (still a fat kid at heart)
www.juliesdreamteam.com
THOUSANDS of volunteers across the country spent hours trying to stretch out that life expectancy and find a cure. In 2010, that fat kid would launch the nation's largest Great Strides team. He named it Julie's Dream Team in honor of his hero...his wife....Julie.
Cystic Fibrosis tried everything it could to take her from him. He watched her spend 2 months....2 long, hard freaking months on a vent. In-laws begging that fat kid to end their daughters pain, muscles atrophying to the point that Julie's weight fell to 61 pounds and a flurry of friends and family that came to say their final good-byes to her.
God had other plans and gave her a second chance at life through organ donation. 2 BEAUTIFUL, PINK, OXYGEN PUSHING Lungs saved her life.
I know....and you know....that money and time are the ONLY variables standing between those of us that HATE the disease and desperately want a cure for our heroes.
Over the course of the past 2 years, Julie's Dream Team has asked people to "Live Life...Help Others Live Theirs"...we've NEVER asked anyone for a single dime (and never will) and over $250,000 has been donated by some of America's largest corporations. It's really crazy when you think that something as simple as a beer can make such a HUGE difference but it has.
So now that fat kid (your's truly), who hates CF more than anything in the world has written my beautiful wife's story. "Julie: The Courage to Breathe" tells the tale of our love, the disease, her battle and her ultimate victory. My gut tells me that it's a story that closely mirrors the lives of those with the disease.
The truth of the matter is that we've all spent our lives dreaming of a cure. Dreaming won't get it done. We've got to pour our hearts and our souls into finding a cure. I believe it's possible. You all know about Kalydeco. That couldn't have happened without our CF Community's tireless efforts.
I have directed the publisher (and given the CF Foundation's Federal ID# 13-1930701) to donate 100% of my author royalties to the CF Foundation. Why? Because NO ONE should live with this disease and I (that fat kid) believe that our community will do all it can to help our heroes breathe....even something as simple as reading a 112 page book.
If you all are interested in finding a cure for Cystic Fibrosis (and I'm sure you are), you should consider picking up a copy at www.lulu.com/spotlight/curecf
I hope you all are inspired by my Julie's amazing story. I hope you NEVER GIVE UP hope. NEVER GIVE UP FAITH!!
We can do this!!!! $6.36 of every paperback sold ($14.56 for hardbacks) goes directly to the CF Foundation. It'll set you back $13.50 for the paperback version.
If that fat kid is willing to give everything away and can't get those that want a cure to stand united....well....I guess Julie's Dream Team will have to work even harder.
God Bless....CURECF,
Roy E. Ice (still a fat kid at heart)
www.juliesdreamteam.com
