finding it hard to cope

[anonymous]

hi all,I'm finding it really hard to cope lately. my bf has cf and he's constanly in and out of hospital and on iv's. He's gotten worse in the last while and lately i'm just finding it really hard to cope. i'm thinking is this whats its going to be like in the furture and if i'm finding it hard now what am i going to be like down the line i'm also getting upset latley at the thought of not having him in my life forever. i think i'm just going through a bit of a stage where its all just getting to me a bit.<img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[anonymous]

i know how you feel- my best friend is in the same situation, and i cant imagine losing her. just be supportive if you really love him. b/c im sure he feels like hes a burden on you

 

[anonymous]

I just recently found out about my b/f's CF. I've been going through a similar situation, I cry all the time and make myself sick at the thought of him not being with me for the rest of my life. I'm new to all of this and have trouble talking to my b/f about CF. I understand your feelings and if you ever need someone to talk to I'm def. interested in finding someone who's in my situation and needs someone to talk to as well.Christin 19 g/f of CFer

 

[anonymous]

just wanted to say that i am CONSTANTLY amazed at you brilliant people who choose to have us CFers in your lives. i just look around at my family and friends and think i am the luckiest person in the world. you are all incredible, i cant imagine how hard it is for you to watch and feel so helpless. cf goes up and down, you can have a really rough patch and then pick up again a bit.....just hang on in there and concentrate on the good, and the person behind the cf. the 2nd response has it spot on as far as i am concerned, i feel like a HUGE burden all the time and cant imagine for the life of me why my bloke is with me!! i am being referred for Tx assessment soon and everyone i have told so far has been amazing. just be as strong as you can, but dont forget, someone to cry with counts as strong as well; they will be fully aware you are worried and sad. good luck, i think you are all great. Angel.

 

[anonymous]

<img src="i/expressions/rose.gif" border="0"> Dear Anonymous:I know exactly how you feel...My husband was diagnosed at the age of 4 years old and everything has been up and down for him..At the same time it has been that way for me to..We were married in December of 2003 and my son and I moved from California to Texas to be with him It has been very hard on the both of us..The doctors arent sure how much longer he wil survive because since December of 2003 he lost over 20 pounds and is getting sicker by the day...He has a mickey in his stomach for feedings but it isnt helping...and the iv meds he has been on has been rough...I understand exactly what u are going through so if u evey need to talk or need a computer to cry on i am here for you and to u and your b/f from the bottom of my heart best of luck to both of you.............Sincerley yours Crying in Texas

 

[anonymous]

hey i know where u r coming from wid this... i been wid my g.f now for a lil bit ova 6 months and she has c.f... sumtimes it is kinda hard expessly when they get sick..... im so scared of loseing her 2... we alwayz wanna be wid ppl foreva but it dont alwayz go that way now does it... if u truely luv this guy then u would stay wid him but if u feel like its getting hard 2 cope wid then i dont feel u feel the way u say or think u do.... i think u need 2 sit down and talk wid him bout it and deiced that if u reallie do lov this guy or not... dont let him think he is a burden on u and dont treat him like he is......

 

[anonymous]

Thanks everyone who wrote back to me. its been a great help to know that there are poeple there i can talk to cos i don't want to load all this on myb/f cos he just doesn't need it right now so to get upset. but to the last person who wrote a reply i didn't find it very helpful to be honest. i wrote a mgs for a bit of advice and support and i don't hink it was very nice that you said u don't feel i don't love him and that i treat him like a burden i'm sorry but you don't know me and i love my b/f like no other person ever before i'd do anything for him and of course i'd stay with him. i wouldn't dump him because of his cf that would just make me a shelfish cow. i'm just finding it a bit hard at the moment and wanted a bit of advise. Thats just how i feel and i'm NOT trying to cause a fight and i want to say to all cf people YOU ARE NOT A BURDEN TO US. And to christin could i have you e mail address maybe so we could have a chat. we are in the same age range and situation.thanks

 

[anonymous]

sorry i said a bit of that wrong i meant to say i don't think it was very nice that you said i dont feel u feel the way u say or think u do. sorry i just had to get that of my chest. after two and a half years i am very much in love with my b/f. now i'll leave it at that.

 

[serendipity730]

Hello all, I am a 21 year old with CF, and I just wanted to say that the Cfers in your lives are so lucky to have someone so supportive. ~ Mary

 

[anonymous]

Living with CF is a challenge. I'm 28 and was diagnosed at 15 months old. My health is pretty good right now. I just have to say, if it wasn't for my family and friends support, I never would have made it this far. For all you people in a CF'rs life, just hang in there with them and never give up hope. My blessings are with all of you. Remember, "every great battle begins with just one step."Namiste'Joey Ainsworth

 

[anonymous]

christinbeavers@hotmail.comEmail me whenever you want, it would be great to have someone to finally talk to about this.Christin

 

[anonymous]

hi,thanks. i'll send you a e mail tonight

 

[anonymous]

Not sure if you went ahead and sent me an e-mail. If so, I haven't recieved anything. Let me know if you're having trouble.Christin