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Cystic Fibrosis Forum (EXP)

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for the parents of cf'ers

DEES4

New member
Tara,
My other children know what their brother diagnosis is...they have from the beginning. I have talked with them openly about it. I always tell them though that only God knows how long each of us will live and all of our lives are in His hands. I do not focus on my life without my youngest child. That in my opinion would be a total injustice to him. I am not saying I dont have my days that I am down but I am saying that I try not to focus on the negative.
Carrie
 

anonymous

New member
Hi Alyssa, Thank you for the telling me about the chart and I have cheek it out. It explains to me more than the doctors did about how cf works.

Tara
 

anonymous

New member
Carrie that is a good way of looking at things. You have helped me out alot and I will keep that in mind everytime I start to feel down about what's going on. I'm glad I found people that I could talk to.

Thank you very much

Tara
 
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