What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Forced to change transplant center

C

coltsfan715

New member
Sorry to hear you are facing this issue.

I honestly haven't been faced with this I just wanted to put this out there for you.

I went to Mayo Clinic in Jacksonville for my transplant. They do NOT have a CF center here and at the time they did not take care of many CF patients. Don't get me wrong they had done a few but not a large amount. They took the BEST care of me - in my opinion better care than Shands in Gainesville which has a CF Center and does a large number of CF patients.

So just because there is no CF center and they do not see a large number of CF patients does not mean that they can't do the job. I say just check out your options and ask questions and see how you like the places. It isn't a fun decision to have to make I am sure especially since you are already at a place, but if you have to change centers I would go to both. Weigh your options and then make your decision once you actually visit the centers - you may be pleasantly surprised.

Take Care,
Lindsey
 
C

coltsfan715

New member
Sorry to hear you are facing this issue.

I honestly haven't been faced with this I just wanted to put this out there for you.

I went to Mayo Clinic in Jacksonville for my transplant. They do NOT have a CF center here and at the time they did not take care of many CF patients. Don't get me wrong they had done a few but not a large amount. They took the BEST care of me - in my opinion better care than Shands in Gainesville which has a CF Center and does a large number of CF patients.

So just because there is no CF center and they do not see a large number of CF patients does not mean that they can't do the job. I say just check out your options and ask questions and see how you like the places. It isn't a fun decision to have to make I am sure especially since you are already at a place, but if you have to change centers I would go to both. Weigh your options and then make your decision once you actually visit the centers - you may be pleasantly surprised.

Take Care,
Lindsey
 
C

coltsfan715

New member
Sorry to hear you are facing this issue.

I honestly haven't been faced with this I just wanted to put this out there for you.

I went to Mayo Clinic in Jacksonville for my transplant. They do NOT have a CF center here and at the time they did not take care of many CF patients. Don't get me wrong they had done a few but not a large amount. They took the BEST care of me - in my opinion better care than Shands in Gainesville which has a CF Center and does a large number of CF patients.

So just because there is no CF center and they do not see a large number of CF patients does not mean that they can't do the job. I say just check out your options and ask questions and see how you like the places. It isn't a fun decision to have to make I am sure especially since you are already at a place, but if you have to change centers I would go to both. Weigh your options and then make your decision once you actually visit the centers - you may be pleasantly surprised.

Take Care,
Lindsey
 
C

coltsfan715

New member
Sorry to hear you are facing this issue.

I honestly haven't been faced with this I just wanted to put this out there for you.

I went to Mayo Clinic in Jacksonville for my transplant. They do NOT have a CF center here and at the time they did not take care of many CF patients. Don't get me wrong they had done a few but not a large amount. They took the BEST care of me - in my opinion better care than Shands in Gainesville which has a CF Center and does a large number of CF patients.

So just because there is no CF center and they do not see a large number of CF patients does not mean that they can't do the job. I say just check out your options and ask questions and see how you like the places. It isn't a fun decision to have to make I am sure especially since you are already at a place, but if you have to change centers I would go to both. Weigh your options and then make your decision once you actually visit the centers - you may be pleasantly surprised.

Take Care,
Lindsey
 
C

coltsfan715

New member
Sorry to hear you are facing this issue.
<br />
<br />I honestly haven't been faced with this I just wanted to put this out there for you.
<br />
<br />I went to Mayo Clinic in Jacksonville for my transplant. They do NOT have a CF center here and at the time they did not take care of many CF patients. Don't get me wrong they had done a few but not a large amount. They took the BEST care of me - in my opinion better care than Shands in Gainesville which has a CF Center and does a large number of CF patients.
<br />
<br />So just because there is no CF center and they do not see a large number of CF patients does not mean that they can't do the job. I say just check out your options and ask questions and see how you like the places. It isn't a fun decision to have to make I am sure especially since you are already at a place, but if you have to change centers I would go to both. Weigh your options and then make your decision once you actually visit the centers - you may be pleasantly surprised.
<br />
<br />Take Care,
<br />Lindsey
 
You must log in or register to reply here.
Top