Going part time to get FEV1 back up

[LouLou]

Did anyone go part time with work for a few weeks to get their pfts back up?

Specifically I am wondering if going half time while I attempt to get my pfts back up with use of oral antibiotics, increased pt, and exercise will have a lasting effect. I realize I'll need to take some of the good habits (darn thought I was already good - I hate cf) from this few week period into full time work lifestyle but have you found this helpful?

My inclination is the 'get back on the horse' and not take a step back from life but I'm thinking it would be a good idea if nothing else to avoid a hospital stay and the big guns - IVs.

My FEV1 dropped from 65% (201L) to 56% (1.75L) from end of Sept. to end of Oct. I'm not dealing with stress the way I usually do. Too many things right on top of each other: leaving my 3 month old to a caretaker, returning to work after being off for 3 months, not resuming full workout schedule for 4.5 months, MRSA culture first time 9/26, son found to have two mutations of the cf gene (genetic diagnosis but not clinical - atypical?), and vasculitis due to unknown reason.

Time to take a step back I think.

 

[LouLou]

Did anyone go part time with work for a few weeks to get their pfts back up?

Specifically I am wondering if going half time while I attempt to get my pfts back up with use of oral antibiotics, increased pt, and exercise will have a lasting effect. I realize I'll need to take some of the good habits (darn thought I was already good - I hate cf) from this few week period into full time work lifestyle but have you found this helpful?

My inclination is the 'get back on the horse' and not take a step back from life but I'm thinking it would be a good idea if nothing else to avoid a hospital stay and the big guns - IVs.

My FEV1 dropped from 65% (201L) to 56% (1.75L) from end of Sept. to end of Oct. I'm not dealing with stress the way I usually do. Too many things right on top of each other: leaving my 3 month old to a caretaker, returning to work after being off for 3 months, not resuming full workout schedule for 4.5 months, MRSA culture first time 9/26, son found to have two mutations of the cf gene (genetic diagnosis but not clinical - atypical?), and vasculitis due to unknown reason.

Time to take a step back I think.

 

[LouLou]

Did anyone go part time with work for a few weeks to get their pfts back up?

Specifically I am wondering if going half time while I attempt to get my pfts back up with use of oral antibiotics, increased pt, and exercise will have a lasting effect. I realize I'll need to take some of the good habits (darn thought I was already good - I hate cf) from this few week period into full time work lifestyle but have you found this helpful?

My inclination is the 'get back on the horse' and not take a step back from life but I'm thinking it would be a good idea if nothing else to avoid a hospital stay and the big guns - IVs.

My FEV1 dropped from 65% (201L) to 56% (1.75L) from end of Sept. to end of Oct. I'm not dealing with stress the way I usually do. Too many things right on top of each other: leaving my 3 month old to a caretaker, returning to work after being off for 3 months, not resuming full workout schedule for 4.5 months, MRSA culture first time 9/26, son found to have two mutations of the cf gene (genetic diagnosis but not clinical - atypical?), and vasculitis due to unknown reason.

Time to take a step back I think.

 

[LouLou]

Did anyone go part time with work for a few weeks to get their pfts back up?

Specifically I am wondering if going half time while I attempt to get my pfts back up with use of oral antibiotics, increased pt, and exercise will have a lasting effect. I realize I'll need to take some of the good habits (darn thought I was already good - I hate cf) from this few week period into full time work lifestyle but have you found this helpful?

My inclination is the 'get back on the horse' and not take a step back from life but I'm thinking it would be a good idea if nothing else to avoid a hospital stay and the big guns - IVs.

My FEV1 dropped from 65% (201L) to 56% (1.75L) from end of Sept. to end of Oct. I'm not dealing with stress the way I usually do. Too many things right on top of each other: leaving my 3 month old to a caretaker, returning to work after being off for 3 months, not resuming full workout schedule for 4.5 months, MRSA culture first time 9/26, son found to have two mutations of the cf gene (genetic diagnosis but not clinical - atypical?), and vasculitis due to unknown reason.

Time to take a step back I think.

 

[LouLou]

Did anyone go part time with work for a few weeks to get their pfts back up?

Specifically I am wondering if going half time while I attempt to get my pfts back up with use of oral antibiotics, increased pt, and exercise will have a lasting effect. I realize I'll need to take some of the good habits (darn thought I was already good - I hate cf) from this few week period into full time work lifestyle but have you found this helpful?

My inclination is the 'get back on the horse' and not take a step back from life but I'm thinking it would be a good idea if nothing else to avoid a hospital stay and the big guns - IVs.

My FEV1 dropped from 65% (201L) to 56% (1.75L) from end of Sept. to end of Oct. I'm not dealing with stress the way I usually do. Too many things right on top of each other: leaving my 3 month old to a caretaker, returning to work after being off for 3 months, not resuming full workout schedule for 4.5 months, MRSA culture first time 9/26, son found to have two mutations of the cf gene (genetic diagnosis but not clinical - atypical?), and vasculitis due to unknown reason.

Time to take a step back I think.

 

[wanderlost]

I think slowing down is a great idea - you have a lot on your plate right now. I have a hard time imagining how I will incorporate my treatments into my day once I go back to work, so I can easily imagine how your PFTs have dropped. Is it possible to just work part time from now on?

 

[wanderlost]

I think slowing down is a great idea - you have a lot on your plate right now. I have a hard time imagining how I will incorporate my treatments into my day once I go back to work, so I can easily imagine how your PFTs have dropped. Is it possible to just work part time from now on?

 

[wanderlost]

I think slowing down is a great idea - you have a lot on your plate right now. I have a hard time imagining how I will incorporate my treatments into my day once I go back to work, so I can easily imagine how your PFTs have dropped. Is it possible to just work part time from now on?

 

[wanderlost]

I think slowing down is a great idea - you have a lot on your plate right now. I have a hard time imagining how I will incorporate my treatments into my day once I go back to work, so I can easily imagine how your PFTs have dropped. Is it possible to just work part time from now on?

 

[wanderlost]

I think slowing down is a great idea - you have a lot on your plate right now. I have a hard time imagining how I will incorporate my treatments into my day once I go back to work, so I can easily imagine how your PFTs have dropped. Is it possible to just work part time from now on?

 

[LouLou]

The problem with working part time from now on (for any amount of time say great than 2 years) is it messes up your SSDI 10 year look back. I can pm more about this to anyone interested. I'm not comfortable sharing it generally beyond this but do seriously consider this if you are someone who is working full time and considering going part time due to cf.

 

[LouLou]

The problem with working part time from now on (for any amount of time say great than 2 years) is it messes up your SSDI 10 year look back. I can pm more about this to anyone interested. I'm not comfortable sharing it generally beyond this but do seriously consider this if you are someone who is working full time and considering going part time due to cf.

 

[LouLou]

The problem with working part time from now on (for any amount of time say great than 2 years) is it messes up your SSDI 10 year look back. I can pm more about this to anyone interested. I'm not comfortable sharing it generally beyond this but do seriously consider this if you are someone who is working full time and considering going part time due to cf.

 

[LouLou]

The problem with working part time from now on (for any amount of time say great than 2 years) is it messes up your SSDI 10 year look back. I can pm more about this to anyone interested. I'm not comfortable sharing it generally beyond this but do seriously consider this if you are someone who is working full time and considering going part time due to cf.

 

[LouLou]

The problem with working part time from now on (for any amount of time say great than 2 years) is it messes up your SSDI 10 year look back. I can pm more about this to anyone interested. I'm not comfortable sharing it generally beyond this but do seriously consider this if you are someone who is working full time and considering going part time due to cf.

 

[Irishgal]

Hey Lauren, sorry things are kinda stressful right now. I worked as a full time ICU nurse for 6 years, & last year had 2 exacerbations within 3 months of each other which is VERY unusual. (MY last IV round was 8 years before that). I decided to take a leave of absence which eventually led to me resigning last january. I have bee off of work for a year now & it helped greatly. I just wasn't getting better & I needed my rest & no stress! My FEV1 increased back to baseline of 80%, but that was after IV's. It held steady for about a year.
I think part time is a good idea if you can afford it.
Do you think maybe you need a tune up? I know they suck & I hate doing them, but afterwards I feel so much better & 2 weeks goes by SO quickly. Plus, you can just get them at home , or even a few days in the hospital may help you catch up on sleep & get great chest PT. Can anyone watch your baby? I know you probley hate that idea, but its just a thought!
Also, workouts are SUPER important! Its the only therapy that works for me. Working part time will allow you to get back into it.
Good luck; time to think about what is best for YOU and ONLY YOU right now until you are feeling better & get those PFT's up!

By the way, I am feeling so much better & starting work again PART TIME in the next month-just took a year to recharge my battery! FEV1 ow 75% (might be better-go for checkup next week)

 

[Irishgal]

Hey Lauren, sorry things are kinda stressful right now. I worked as a full time ICU nurse for 6 years, & last year had 2 exacerbations within 3 months of each other which is VERY unusual. (MY last IV round was 8 years before that). I decided to take a leave of absence which eventually led to me resigning last january. I have bee off of work for a year now & it helped greatly. I just wasn't getting better & I needed my rest & no stress! My FEV1 increased back to baseline of 80%, but that was after IV's. It held steady for about a year.
I think part time is a good idea if you can afford it.
Do you think maybe you need a tune up? I know they suck & I hate doing them, but afterwards I feel so much better & 2 weeks goes by SO quickly. Plus, you can just get them at home , or even a few days in the hospital may help you catch up on sleep & get great chest PT. Can anyone watch your baby? I know you probley hate that idea, but its just a thought!
Also, workouts are SUPER important! Its the only therapy that works for me. Working part time will allow you to get back into it.
Good luck; time to think about what is best for YOU and ONLY YOU right now until you are feeling better & get those PFT's up!

By the way, I am feeling so much better & starting work again PART TIME in the next month-just took a year to recharge my battery! FEV1 ow 75% (might be better-go for checkup next week)

 

[Irishgal]

Hey Lauren, sorry things are kinda stressful right now. I worked as a full time ICU nurse for 6 years, & last year had 2 exacerbations within 3 months of each other which is VERY unusual. (MY last IV round was 8 years before that). I decided to take a leave of absence which eventually led to me resigning last january. I have bee off of work for a year now & it helped greatly. I just wasn't getting better & I needed my rest & no stress! My FEV1 increased back to baseline of 80%, but that was after IV's. It held steady for about a year.
I think part time is a good idea if you can afford it.
Do you think maybe you need a tune up? I know they suck & I hate doing them, but afterwards I feel so much better & 2 weeks goes by SO quickly. Plus, you can just get them at home , or even a few days in the hospital may help you catch up on sleep & get great chest PT. Can anyone watch your baby? I know you probley hate that idea, but its just a thought!
Also, workouts are SUPER important! Its the only therapy that works for me. Working part time will allow you to get back into it.
Good luck; time to think about what is best for YOU and ONLY YOU right now until you are feeling better & get those PFT's up!

By the way, I am feeling so much better & starting work again PART TIME in the next month-just took a year to recharge my battery! FEV1 ow 75% (might be better-go for checkup next week)

 

[Irishgal]

Hey Lauren, sorry things are kinda stressful right now. I worked as a full time ICU nurse for 6 years, & last year had 2 exacerbations within 3 months of each other which is VERY unusual. (MY last IV round was 8 years before that). I decided to take a leave of absence which eventually led to me resigning last january. I have bee off of work for a year now & it helped greatly. I just wasn't getting better & I needed my rest & no stress! My FEV1 increased back to baseline of 80%, but that was after IV's. It held steady for about a year.
I think part time is a good idea if you can afford it.
Do you think maybe you need a tune up? I know they suck & I hate doing them, but afterwards I feel so much better & 2 weeks goes by SO quickly. Plus, you can just get them at home , or even a few days in the hospital may help you catch up on sleep & get great chest PT. Can anyone watch your baby? I know you probley hate that idea, but its just a thought!
Also, workouts are SUPER important! Its the only therapy that works for me. Working part time will allow you to get back into it.
Good luck; time to think about what is best for YOU and ONLY YOU right now until you are feeling better & get those PFT's up!

By the way, I am feeling so much better & starting work again PART TIME in the next month-just took a year to recharge my battery! FEV1 ow 75% (might be better-go for checkup next week)

 

[Irishgal]

Hey Lauren, sorry things are kinda stressful right now. I worked as a full time ICU nurse for 6 years, & last year had 2 exacerbations within 3 months of each other which is VERY unusual. (MY last IV round was 8 years before that). I decided to take a leave of absence which eventually led to me resigning last january. I have bee off of work for a year now & it helped greatly. I just wasn't getting better & I needed my rest & no stress! My FEV1 increased back to baseline of 80%, but that was after IV's. It held steady for about a year.
I think part time is a good idea if you can afford it.
Do you think maybe you need a tune up? I know they suck & I hate doing them, but afterwards I feel so much better & 2 weeks goes by SO quickly. Plus, you can just get them at home , or even a few days in the hospital may help you catch up on sleep & get great chest PT. Can anyone watch your baby? I know you probley hate that idea, but its just a thought!
Also, workouts are SUPER important! Its the only therapy that works for me. Working part time will allow you to get back into it.
Good luck; time to think about what is best for YOU and ONLY YOU right now until you are feeling better & get those PFT's up!

By the way, I am feeling so much better & starting work again PART TIME in the next month-just took a year to recharge my battery! FEV1 ow 75% (might be better-go for checkup next week)