has anyone else heard about this?

[anonymous]

A friend of mine found this on a web site...NewScientist.com...very interesting.Get on and read it for yourself. In a nut shell it said....A spice called curry could help alleviate cystic fibrosis, new research says. The tests in mice show low doses of a component of turmeric can make most of the symptoms disappear. The researchers gave the animals 45mg of curcumin per kilo of body weight for three days. The equivalent quantity is known to be well tolerated in humans. They found that the animals gut problems largely disappeared. There were also changes in electrical potential across the nasel epithelium, suggesting that the respiratory system was also improving. And while six of the ten untreated mice died of intestinal problems within ten days, only one curcumin-treated mouse died.
I have a 10 yr. old with cf and I found this very interesting. Has anyone else heard about this curcumin?
nikki's mom

 

[anonymous]

Hi... I live in England and received a letter regarding curcumin from my doctor. So i thought i'd give it a go. We found it very hard to get hold of actually and ended up ordering it over the internet, but i have been on it for over a month now. I take it twice a day and to be honest havent really felt any different, although that could be something to do with the fact i have got a stinking cold and cough! Saying that when i first started taking it i did feel a bit better in myself in a strange kind of way i cant discribe not sure whether that was the curcumin or just the fact the Iv's were kicking in!? I am still not sure what it is supposed to do for you anyway!?

Emma 18 w/cf

 

[anonymous]

hi emma
where abouts in england do you live?

siobhan 20 w cf

 

[anonymous]

hey
i live in slough... Dont really like saying that doesnt sound posh at all! Its near windsor, but i got to Frimley Park Hospital in Camberley ...and you?

emmz

 

[anonymous]

Slough, thats where that English show the Office was based out of. I love that show. And I haven't heard of this treatment at all maybe I will bring this up my next appt with the doc.

Nicole 22 CF

 

[anonymous]

Yeah i live just round the corner to the trading estate! I havent actually watched an episode of the office yet!! <img src="i/expressions/face-icon-small-blush.gif" border="0"> where do you live?
Yes maybe you should mention it but i am not sure if it is just ment for people who have a specific type of cf as there are like over 100 different strains arn't there?

emma

 

[Emily65Roses]

Different strains of CF? Not really. It's more like different genes and different cases.

 

[anonymous]

I have heard about this and read on it as well. I have a 9 month old daughter who has cf and I mentioned this to her doctor. From what I understand they are still testing this product, but the other treatment that they area working on is a salt water therapy, something that they would bea ble to use in the nebulizer. I hope this helps and if you find something that you read on this please let me know, and I will do the same I will give you my email. jsdean9@aol.com. This therapy is to losen the mucas in the lungs. Bethany's mom.

 

[anonymous]

I live in Weymouth, Mass. It's right next to Boston. I go to Children's in Boston to see all my docs <img src="i/expressions/face-icon-small-happy.gif" border="0"> I'm 22 and I went to school last year for Surgical Technician but haven't been able to work because I have been too sick. I just had surgery last week on my sinuses and had a g-tube put in. The g-tube is good in the sense I am getting so many calories but it hurts a lot of the time and is just a pain in the butt. And you definitel should watch the Office. One of the best shows ever. It's so hilarious. The bad thing for me is though their accenst are a little thick so I had to watch it with the subtitles but I am sure it won't be a prob for you! <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Nicole 22 CF

 

[anonymous]

I mean strains as in i.e delta 508 which is what i have the most common. I know some people who are only affected in thier lungs and dont have to take enzymes etc. Thats my understanding of different types of strains within cf sufferers anyway!?!

emma

 

[anonymous]

I think what you mean rather are 'mutations', not strains. There are over 1000 mutations, but within the caucasian race, DF508 is the most common. The phenotype is what can be so variable (i.e. how the muation(s) express themselves via different organ systems).

Jen 34 w/cf

 

[anonymous]

Ya there are so many different mutattions. I have E60X. Me andmmy brother have 2 identical copies of that mutation. My parents had 2 copies of them. My mom always said there was a reason why she married my dad <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Nicole 22 CF

 

[anonymous]

Back to the orginal subject to which the spice curcumin may help cf.......People go to that web site. This is truly a serious matter. One of the researchers said that it went into effect as a study on humans last june of 04. They believe this is what we've been looking for to help alleviate digestive problems in cfer's. Please go to site and follow all pages to curcumin studies and read up.
someone concerned as well......