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How do you feel about all the medications that prolong your life?

F

fondreflections

New member
I'm not depressed or anything, but I would like your input...

Melissa...I read your blog which really hit home to me. I have kind of spun this topic off your post and hope you don't mind.

Many times I sit and think about the same topic...Are all these meds really worth it? Each and everytime I see another death due to CF, it brings this thought up to the surface again and again.

Don't get me wrong that I am grateful for all the new medications that have come along during my lifetime. Because of the developments, I am nearly 26, married, and own my own home. Also, I have a FEV1 of 69% but carry MRSA and PA for the past 5 years. Thankfully, MRSA has not really impacted my CF, yet...

Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.

I am happy to be alive, but I do wonder about this issue at times. I am VERY FAITHFUL with my treatments for 3 main reasons:

1. Habit - I started CPT at 3 months old. My parents brought me up to NEVER MISS. At most, I might miss 10 full treatments a year.

2. Too much to sacrifice - Myself, Husband, Family, Dogs, Home.

3. *FEAR* - I'm deathly afraid of the end. I'll do anything to stay healthly; however, someday it won't be enough. It's not so much the passing on as it is the bulls*t to endure to that point.

What are your thoughts? I know many will have varying thoughts on this topic, but can we please keep it from getting locked up?

Thank you, <img src="i/expressions/heart.gif" border="0">
 
F

fondreflections

New member
I'm not depressed or anything, but I would like your input...

Melissa...I read your blog which really hit home to me. I have kind of spun this topic off your post and hope you don't mind.

Many times I sit and think about the same topic...Are all these meds really worth it? Each and everytime I see another death due to CF, it brings this thought up to the surface again and again.

Don't get me wrong that I am grateful for all the new medications that have come along during my lifetime. Because of the developments, I am nearly 26, married, and own my own home. Also, I have a FEV1 of 69% but carry MRSA and PA for the past 5 years. Thankfully, MRSA has not really impacted my CF, yet...

Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.

I am happy to be alive, but I do wonder about this issue at times. I am VERY FAITHFUL with my treatments for 3 main reasons:

1. Habit - I started CPT at 3 months old. My parents brought me up to NEVER MISS. At most, I might miss 10 full treatments a year.

2. Too much to sacrifice - Myself, Husband, Family, Dogs, Home.

3. *FEAR* - I'm deathly afraid of the end. I'll do anything to stay healthly; however, someday it won't be enough. It's not so much the passing on as it is the bulls*t to endure to that point.

What are your thoughts? I know many will have varying thoughts on this topic, but can we please keep it from getting locked up?

Thank you, <img src="i/expressions/heart.gif" border="0">
 
F

fondreflections

New member
I'm not depressed or anything, but I would like your input...

Melissa...I read your blog which really hit home to me. I have kind of spun this topic off your post and hope you don't mind.

Many times I sit and think about the same topic...Are all these meds really worth it? Each and everytime I see another death due to CF, it brings this thought up to the surface again and again.

Don't get me wrong that I am grateful for all the new medications that have come along during my lifetime. Because of the developments, I am nearly 26, married, and own my own home. Also, I have a FEV1 of 69% but carry MRSA and PA for the past 5 years. Thankfully, MRSA has not really impacted my CF, yet...

Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.

I am happy to be alive, but I do wonder about this issue at times. I am VERY FAITHFUL with my treatments for 3 main reasons:

1. Habit - I started CPT at 3 months old. My parents brought me up to NEVER MISS. At most, I might miss 10 full treatments a year.

2. Too much to sacrifice - Myself, Husband, Family, Dogs, Home.

3. *FEAR* - I'm deathly afraid of the end. I'll do anything to stay healthly; however, someday it won't be enough. It's not so much the passing on as it is the bulls*t to endure to that point.

What are your thoughts? I know many will have varying thoughts on this topic, but can we please keep it from getting locked up?

Thank you, <img src="i/expressions/heart.gif" border="0">
 
F

fondreflections

New member
I'm not depressed or anything, but I would like your input...

Melissa...I read your blog which really hit home to me. I have kind of spun this topic off your post and hope you don't mind.

Many times I sit and think about the same topic...Are all these meds really worth it? Each and everytime I see another death due to CF, it brings this thought up to the surface again and again.

Don't get me wrong that I am grateful for all the new medications that have come along during my lifetime. Because of the developments, I am nearly 26, married, and own my own home. Also, I have a FEV1 of 69% but carry MRSA and PA for the past 5 years. Thankfully, MRSA has not really impacted my CF, yet...

Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.

I am happy to be alive, but I do wonder about this issue at times. I am VERY FAITHFUL with my treatments for 3 main reasons:

1. Habit - I started CPT at 3 months old. My parents brought me up to NEVER MISS. At most, I might miss 10 full treatments a year.

2. Too much to sacrifice - Myself, Husband, Family, Dogs, Home.

3. *FEAR* - I'm deathly afraid of the end. I'll do anything to stay healthly; however, someday it won't be enough. It's not so much the passing on as it is the bulls*t to endure to that point.

What are your thoughts? I know many will have varying thoughts on this topic, but can we please keep it from getting locked up?

Thank you, <img src="i/expressions/heart.gif" border="0">
 
F

fondreflections

New member
I'm not depressed or anything, but I would like your input...

Melissa...I read your blog which really hit home to me. I have kind of spun this topic off your post and hope you don't mind.

Many times I sit and think about the same topic...Are all these meds really worth it? Each and everytime I see another death due to CF, it brings this thought up to the surface again and again.

Don't get me wrong that I am grateful for all the new medications that have come along during my lifetime. Because of the developments, I am nearly 26, married, and own my own home. Also, I have a FEV1 of 69% but carry MRSA and PA for the past 5 years. Thankfully, MRSA has not really impacted my CF, yet...

Still I can't help but to wonder if all the medications that are suppose to help me live a longer and more full life are worth it??? Am I not just slowing down the inevatable (sp?)? Not to mention, don't you feel like the longer you "hang" around the more people get hurt in the end? Right now, I have a husband (who willingly made the decision to be with me), but what about if I had children with him? How would a child react to the loss of it's parent? Years ago this was hardly the painted picture.

I am happy to be alive, but I do wonder about this issue at times. I am VERY FAITHFUL with my treatments for 3 main reasons:

1. Habit - I started CPT at 3 months old. My parents brought me up to NEVER MISS. At most, I might miss 10 full treatments a year.

2. Too much to sacrifice - Myself, Husband, Family, Dogs, Home.

3. *FEAR* - I'm deathly afraid of the end. I'll do anything to stay healthly; however, someday it won't be enough. It's not so much the passing on as it is the bulls*t to endure to that point.

What are your thoughts? I know many will have varying thoughts on this topic, but can we please keep it from getting locked up?

Thank you, <img src="i/expressions/heart.gif" border="0">
 
S

Skye

New member
Jenny,

I certainly see your point of view<img src="i/expressions/face-icon-small-smile.gif" border="0"> Speaking for myself I am certainly glad I did not just give up or "throw in the towel" when they told me I would live to be about 12. I am glad I have pursued all of my dreams and continue to pursue dreams even in the face of difficulty. I don't think that at this stage of research there is an "inevitable" with this disease. I think there is much hope and many many unknowns about every individual case. Just my 2 cents.
 
S

Skye

New member
Jenny,

I certainly see your point of view<img src="i/expressions/face-icon-small-smile.gif" border="0"> Speaking for myself I am certainly glad I did not just give up or "throw in the towel" when they told me I would live to be about 12. I am glad I have pursued all of my dreams and continue to pursue dreams even in the face of difficulty. I don't think that at this stage of research there is an "inevitable" with this disease. I think there is much hope and many many unknowns about every individual case. Just my 2 cents.
 
S

Skye

New member
Jenny,

I certainly see your point of view<img src="i/expressions/face-icon-small-smile.gif" border="0"> Speaking for myself I am certainly glad I did not just give up or "throw in the towel" when they told me I would live to be about 12. I am glad I have pursued all of my dreams and continue to pursue dreams even in the face of difficulty. I don't think that at this stage of research there is an "inevitable" with this disease. I think there is much hope and many many unknowns about every individual case. Just my 2 cents.
 
S

Skye

New member
Jenny,

I certainly see your point of view<img src="i/expressions/face-icon-small-smile.gif" border="0"> Speaking for myself I am certainly glad I did not just give up or "throw in the towel" when they told me I would live to be about 12. I am glad I have pursued all of my dreams and continue to pursue dreams even in the face of difficulty. I don't think that at this stage of research there is an "inevitable" with this disease. I think there is much hope and many many unknowns about every individual case. Just my 2 cents.
 
S

Skye

New member
Jenny,

I certainly see your point of view<img src="i/expressions/face-icon-small-smile.gif" border="0"> Speaking for myself I am certainly glad I did not just give up or "throw in the towel" when they told me I would live to be about 12. I am glad I have pursued all of my dreams and continue to pursue dreams even in the face of difficulty. I don't think that at this stage of research there is an "inevitable" with this disease. I think there is much hope and many many unknowns about every individual case. Just my 2 cents.
 
M

moxie1

Guest
I am so very thankful for each and every treatment that comes out. We've come such a long way! I was thinking this morning that we didn't even have antibiotics until the end of World War II. Technology is increasing exponentially.
I guess the bottom line that makes it alot easier for me is this--God is in control of my life. When it is His will that I die, then it will be so. I have accepted Jesus as my Savior because I know that no matter how hard I try, I will never be perfect enough to get to heaven by my own merits. Thankfully, Jesus took my sins on the cross, and because of God's grace, I have assurance that I will go to heaven when I die.
 
M

moxie1

Guest
I am so very thankful for each and every treatment that comes out. We've come such a long way! I was thinking this morning that we didn't even have antibiotics until the end of World War II. Technology is increasing exponentially.
I guess the bottom line that makes it alot easier for me is this--God is in control of my life. When it is His will that I die, then it will be so. I have accepted Jesus as my Savior because I know that no matter how hard I try, I will never be perfect enough to get to heaven by my own merits. Thankfully, Jesus took my sins on the cross, and because of God's grace, I have assurance that I will go to heaven when I die.
 
M

moxie1

Guest
I am so very thankful for each and every treatment that comes out. We've come such a long way! I was thinking this morning that we didn't even have antibiotics until the end of World War II. Technology is increasing exponentially.
I guess the bottom line that makes it alot easier for me is this--God is in control of my life. When it is His will that I die, then it will be so. I have accepted Jesus as my Savior because I know that no matter how hard I try, I will never be perfect enough to get to heaven by my own merits. Thankfully, Jesus took my sins on the cross, and because of God's grace, I have assurance that I will go to heaven when I die.
 
M

moxie1

Guest
I am so very thankful for each and every treatment that comes out. We've come such a long way! I was thinking this morning that we didn't even have antibiotics until the end of World War II. Technology is increasing exponentially.
I guess the bottom line that makes it alot easier for me is this--God is in control of my life. When it is His will that I die, then it will be so. I have accepted Jesus as my Savior because I know that no matter how hard I try, I will never be perfect enough to get to heaven by my own merits. Thankfully, Jesus took my sins on the cross, and because of God's grace, I have assurance that I will go to heaven when I die.
 
M

moxie1

Guest
I am so very thankful for each and every treatment that comes out. We've come such a long way! I was thinking this morning that we didn't even have antibiotics until the end of World War II. Technology is increasing exponentially.
I guess the bottom line that makes it alot easier for me is this--God is in control of my life. When it is His will that I die, then it will be so. I have accepted Jesus as my Savior because I know that no matter how hard I try, I will never be perfect enough to get to heaven by my own merits. Thankfully, Jesus took my sins on the cross, and because of God's grace, I have assurance that I will go to heaven when I die.
 
J

JazzysMom

New member
My thoughts depends on the day quite frankly. Given that the meds contributed to my ability to grow up, get married (twice <img src="i/expressions/face-icon-small-tongue.gif" border="0">), have a great job, become a Mom etc......that is great!

On the other hand there have been so many side affects & when added to the progression its been difficult. I cant say I would have wanted my life to be shorter, but to me that falls into one of those "would you have wanted to be born" scenarios. I wouldnt miss what I never got to know.

It is what it is I guess. I make the best of it both good/bad.

BTW you are always welcome to take a thought of mine & run with it, Jenny!
 
J

JazzysMom

New member
My thoughts depends on the day quite frankly. Given that the meds contributed to my ability to grow up, get married (twice <img src="i/expressions/face-icon-small-tongue.gif" border="0">), have a great job, become a Mom etc......that is great!

On the other hand there have been so many side affects & when added to the progression its been difficult. I cant say I would have wanted my life to be shorter, but to me that falls into one of those "would you have wanted to be born" scenarios. I wouldnt miss what I never got to know.

It is what it is I guess. I make the best of it both good/bad.

BTW you are always welcome to take a thought of mine & run with it, Jenny!
 
J

JazzysMom

New member
My thoughts depends on the day quite frankly. Given that the meds contributed to my ability to grow up, get married (twice <img src="i/expressions/face-icon-small-tongue.gif" border="0">), have a great job, become a Mom etc......that is great!

On the other hand there have been so many side affects & when added to the progression its been difficult. I cant say I would have wanted my life to be shorter, but to me that falls into one of those "would you have wanted to be born" scenarios. I wouldnt miss what I never got to know.

It is what it is I guess. I make the best of it both good/bad.

BTW you are always welcome to take a thought of mine & run with it, Jenny!
 
J

JazzysMom

New member
My thoughts depends on the day quite frankly. Given that the meds contributed to my ability to grow up, get married (twice <img src="i/expressions/face-icon-small-tongue.gif" border="0">), have a great job, become a Mom etc......that is great!

On the other hand there have been so many side affects & when added to the progression its been difficult. I cant say I would have wanted my life to be shorter, but to me that falls into one of those "would you have wanted to be born" scenarios. I wouldnt miss what I never got to know.

It is what it is I guess. I make the best of it both good/bad.

BTW you are always welcome to take a thought of mine & run with it, Jenny!
 
J

JazzysMom

New member
My thoughts depends on the day quite frankly. Given that the meds contributed to my ability to grow up, get married (twice <img src="i/expressions/face-icon-small-tongue.gif" border="0">), have a great job, become a Mom etc......that is great!

On the other hand there have been so many side affects & when added to the progression its been difficult. I cant say I would have wanted my life to be shorter, but to me that falls into one of those "would you have wanted to be born" scenarios. I wouldnt miss what I never got to know.

It is what it is I guess. I make the best of it both good/bad.

BTW you are always welcome to take a thought of mine & run with it, Jenny!
 
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