What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

How often are your regularly-scheduled clinic visits?

hmw

New member
We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
 

hmw

New member
We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
 

hmw

New member
We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
 

hmw

New member
We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
 

hmw

New member
We've never seen a geneticist. One of our drs conferred with the one that works with our center about my kids' case- there are some unusual circumstances involved- to get some recommendations, though. I don't think there is much a geneticist could do to help us at this point; we have Emily's dx, know the potential issues we could deal with if we got pg again, etc. If I wanted to discuss research/up and coming cf-related stuff, I'd go to the drs about it, or the clinical research coordinator at the center- she's the one who does everything with all the clinical trials we're involved with, and is really on top of all the pipeline news.
 
Top