How to use the tobi

[Ajax]

Hello All, I will receive the Tobi soon, and I want an idea of how to use it and dilute it. Also, do we continue the Tobi when we are on the iv's?Thanks guys. Rami

 

[AbsintheSorrow]

Last I checked the TOBI came pre-mixed. At least, it did for me. You don't need to do anything but squeeze the stuff into your mouthpiece hardware, and then hook it up to the nebulizer.

 

[anonymous]

tobi is ready to use right out of the vial. don't dillute it. also you should use a standard nebulizer and not a sidestream type.

 

[anonymous]

Rami,I think you would want to use TOBI in conjunction w/ IV's. I do realize that your IV's may be tobramyacin too, but obviously distributed using a different avenue. You may want to ask your Dr about doing both of them.They suggest you use a PARI nebulizer & the PARI nebulizer cup w/ TOBI and you shouldn't use the same cup for any other meds either. I think you will get a video w/ your first TOBI that explains all of this. One thing it doesn't explain is that it doesn't taste very good at all=( but try to get past that, because it sure did me a lot of good initially.Good luck<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[anonymous]

For all of you who take Tobi - how long does it take for you to nebulize using the PariNeb? It seems like it takes around 45 minutes but my doc says it should take only 15. Also - does it make anyone else here a bit nauseaus while they are taking the Tobi? I'm wondering if it's because my throat hurts so much from doing it.Piper

 

[Mockingbird]

Hello, Piper. It takes me 30-40 mintues to finish TOBI. I've never heard of it taking fifteen; that's a little hard for me to grasp. I also get a small feeling of nausea, and my throat can be sore sometimes, too. I read somewhere else on this site someone talking about hearing loss coming from TOBI? I've never noticed anything before, but last night a friend said something about being able to hear the carnival down the street, and I could not hear it at all. Usually, I'm the one who has the better hearing. It might be nothing, though.Jarod22 wih CF

 

[anonymous]

I do know Tobi and a few other of the meds we take can cause hearing problems - I encountered these as well. I believe my doc told me that will subside (I think it takes around 6 months) but mention it to your doc to see what they say. I actually had so many side effects from the Pulmozume and Tobi that I had to stay off of them. Now I take them in a different nebulizer - it's not a recommended one so I wouldn't tell anyone else to use it, but I don't have the side effects and they both take only about 10 minutes. Again - I won't even tell you what nebulizer I use since it isn't recommended, but it is the only way I'm able to take these meds. I am probably not get 100% effectiveness from them but I figure maybe a little bit can still get in my lungs.Piper

 

[anonymous]

I was having problems with wheezing after Tobi. My doc was trying to figure out why it just started and he asked me how long Tobi should take. I said about 30min and he was shocked. He said it should only take 15 minutes also. He actually prescribed a new nebulizer for me, but mine is VERY old. I have yet to get the new nebulizer, but I am hoping it really does only take 15 minutes...any recommendations on a nebulizer...my doc prescribed one and it looks really big. As a college student I was hoping for something smaller. I am going to the doc in 2 weeks and thought that maybe if you guys recommended one I could ask my doc about it and see if I can get a smaller one. Thanks! and srry for getting a little off topic...

 

[kybert]

it should only take 15. i have a new nebuliser pump so it never takes longer. i used to have an old one that never got repairs and it took a while and the stream was very weak. tobi can cause sore throats. id also stop tobi if on iv tobramycin. its just a waste of medicine. i go for colistin nebs while on iv tobra or non at all.