I would like to introduce myself.......

[beleache]

Hi Everyone, I never really introduced myself, sorry not to good on computer yet. Anyway my name is Joni. I will be 55 years old this December. I have four sons, ages 31,28,16 & 13. I also have a one year old grandson. I have been married for 17 years. I was diagnosed 11 years ago. At that time my cough and the fact that i started coughing up blood, was so much like my sister, that i knew we must have the same problem. That year my sister Linda was also diagnosed, she was 50. She had alot of lung problems throughout her life, including 2 lung surgeries. She coughed up blood from the age of 16. I had more belly problems, 4 surgeries at age 21-24. Did have some lung issues but not to serious yet. My sister Linda died that year from breast cancer, she almost went her entire life not knowing that she had c/f. I have been in the hospital on average about 2 times a year, lately it seems more. Trying hard to stay positive (and when i hear other stories and hear the ages of others i feel selfish) taking care of myself as much as possible, enjoying every day when i'm feeling well and praying daily.......Please let me know about you....Joni

 

[beleache]

Hi Everyone, I never really introduced myself, sorry not to good on computer yet. Anyway my name is Joni. I will be 55 years old this December. I have four sons, ages 31,28,16 & 13. I also have a one year old grandson. I have been married for 17 years. I was diagnosed 11 years ago. At that time my cough and the fact that i started coughing up blood, was so much like my sister, that i knew we must have the same problem. That year my sister Linda was also diagnosed, she was 50. She had alot of lung problems throughout her life, including 2 lung surgeries. She coughed up blood from the age of 16. I had more belly problems, 4 surgeries at age 21-24. Did have some lung issues but not to serious yet. My sister Linda died that year from breast cancer, she almost went her entire life not knowing that she had c/f. I have been in the hospital on average about 2 times a year, lately it seems more. Trying hard to stay positive (and when i hear other stories and hear the ages of others i feel selfish) taking care of myself as much as possible, enjoying every day when i'm feeling well and praying daily.......Please let me know about you....Joni

 

[beleache]

Hi Everyone, I never really introduced myself, sorry not to good on computer yet. Anyway my name is Joni. I will be 55 years old this December. I have four sons, ages 31,28,16 & 13. I also have a one year old grandson. I have been married for 17 years. I was diagnosed 11 years ago. At that time my cough and the fact that i started coughing up blood, was so much like my sister, that i knew we must have the same problem. That year my sister Linda was also diagnosed, she was 50. She had alot of lung problems throughout her life, including 2 lung surgeries. She coughed up blood from the age of 16. I had more belly problems, 4 surgeries at age 21-24. Did have some lung issues but not to serious yet. My sister Linda died that year from breast cancer, she almost went her entire life not knowing that she had c/f. I have been in the hospital on average about 2 times a year, lately it seems more. Trying hard to stay positive (and when i hear other stories and hear the ages of others i feel selfish) taking care of myself as much as possible, enjoying every day when i'm feeling well and praying daily.......Please let me know about you....Joni

 

[stella]

Hallo Joni!i am new here in this site and i am amazed of how powerfull are people here.i am sorry about your sister,i wish you are allways fine without problems.my name is stella i am 27 years old and i have a brother who has cf.he was diagnosed when he was 20 he is now 26,he has mainly digestive problems.he had an eileus a few years ago,pains on stomach,his main problem is that he looses weight although he takes enzymes and vitamins.in greece there is not a center for people with cf.he is double f 508,i dont know if there is a relationship between the gene and the severity of the cf.i have not understood cf yet its a very strange desease.i have many to ask related to cf,and i wonder is it allways progressive?it goes bad as someone grows up?i believe a lot in God though, so i think that the sun rises for all people every day.i wish all cfers be well.....

 

[stella]

Hallo Joni!i am new here in this site and i am amazed of how powerfull are people here.i am sorry about your sister,i wish you are allways fine without problems.my name is stella i am 27 years old and i have a brother who has cf.he was diagnosed when he was 20 he is now 26,he has mainly digestive problems.he had an eileus a few years ago,pains on stomach,his main problem is that he looses weight although he takes enzymes and vitamins.in greece there is not a center for people with cf.he is double f 508,i dont know if there is a relationship between the gene and the severity of the cf.i have not understood cf yet its a very strange desease.i have many to ask related to cf,and i wonder is it allways progressive?it goes bad as someone grows up?i believe a lot in God though, so i think that the sun rises for all people every day.i wish all cfers be well.....

 

[stella]

Hallo Joni!i am new here in this site and i am amazed of how powerfull are people here.i am sorry about your sister,i wish you are allways fine without problems.my name is stella i am 27 years old and i have a brother who has cf.he was diagnosed when he was 20 he is now 26,he has mainly digestive problems.he had an eileus a few years ago,pains on stomach,his main problem is that he looses weight although he takes enzymes and vitamins.in greece there is not a center for people with cf.he is double f 508,i dont know if there is a relationship between the gene and the severity of the cf.i have not understood cf yet its a very strange desease.i have many to ask related to cf,and i wonder is it allways progressive?it goes bad as someone grows up?i believe a lot in God though, so i think that the sun rises for all people every day.i wish all cfers be well.....

 

[Diane]

Hi Joni,
I am 41 years old.... was diagnosed at 3 years old because of failure to thrive. I didnt have many lung issues growing up ( which i now realize was a blessing). I was diagnosed with diabetes when i was 15. I had minimal lung problems around the age of 20 and never had any real big lung issues till i developed b.cepacia around the age of 31 - 32 . Things are different now than they were before cepacia, i have hemoptysis problems, i go on iv's more often ( 2 - 3 times a year, these past 2 years) BUT i also take better care of myself than i ever did in my whole life. I am doing the vest regularly which i never did till about 4- 5 years ago. I also walk on the treadmill almost every day, I stay as active as i can and although i am on disability i also have a part time job as a housekeeper. I assume if i had taken better care of myself years ago, i may have been able to avoid some of the problems i have now, but who knows? The here and now, is what counts and i am going to make sure i fight harder than ever. God has gotten me thru many things in my life, and i know he will always be there for me . Its nice to meet you <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

Hi Joni,
I am 41 years old.... was diagnosed at 3 years old because of failure to thrive. I didnt have many lung issues growing up ( which i now realize was a blessing). I was diagnosed with diabetes when i was 15. I had minimal lung problems around the age of 20 and never had any real big lung issues till i developed b.cepacia around the age of 31 - 32 . Things are different now than they were before cepacia, i have hemoptysis problems, i go on iv's more often ( 2 - 3 times a year, these past 2 years) BUT i also take better care of myself than i ever did in my whole life. I am doing the vest regularly which i never did till about 4- 5 years ago. I also walk on the treadmill almost every day, I stay as active as i can and although i am on disability i also have a part time job as a housekeeper. I assume if i had taken better care of myself years ago, i may have been able to avoid some of the problems i have now, but who knows? The here and now, is what counts and i am going to make sure i fight harder than ever. God has gotten me thru many things in my life, and i know he will always be there for me . Its nice to meet you <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Diane]

Hi Joni,
I am 41 years old.... was diagnosed at 3 years old because of failure to thrive. I didnt have many lung issues growing up ( which i now realize was a blessing). I was diagnosed with diabetes when i was 15. I had minimal lung problems around the age of 20 and never had any real big lung issues till i developed b.cepacia around the age of 31 - 32 . Things are different now than they were before cepacia, i have hemoptysis problems, i go on iv's more often ( 2 - 3 times a year, these past 2 years) BUT i also take better care of myself than i ever did in my whole life. I am doing the vest regularly which i never did till about 4- 5 years ago. I also walk on the treadmill almost every day, I stay as active as i can and although i am on disability i also have a part time job as a housekeeper. I assume if i had taken better care of myself years ago, i may have been able to avoid some of the problems i have now, but who knows? The here and now, is what counts and i am going to make sure i fight harder than ever. God has gotten me thru many things in my life, and i know he will always be there for me . Its nice to meet you <img src="i/expressions/face-icon-small-smile.gif" border="0"> <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[beleache]

Hi Stella, You can find out alot of information on this site. I/m learning new things daily.. I think that c/f is almost always progressive, but people are living longer than ever. Taking good care of yourself, having good information and good care is so important. I also have a strong faith in God. I like your last sentence about the sun rising everyday for everyone... Thank you for your well wishes, I wish the same for you and your brother..... Joni

 

[beleache]

Hi Stella, You can find out alot of information on this site. I/m learning new things daily.. I think that c/f is almost always progressive, but people are living longer than ever. Taking good care of yourself, having good information and good care is so important. I also have a strong faith in God. I like your last sentence about the sun rising everyday for everyone... Thank you for your well wishes, I wish the same for you and your brother..... Joni

 

[beleache]

Hi Stella, You can find out alot of information on this site. I/m learning new things daily.. I think that c/f is almost always progressive, but people are living longer than ever. Taking good care of yourself, having good information and good care is so important. I also have a strong faith in God. I like your last sentence about the sun rising everyday for everyone... Thank you for your well wishes, I wish the same for you and your brother..... Joni

 

[beleache]

Hi Diane......It sounds like we have some similar issues. amount of hospital stays, not taking good care of ourselves several years ago, also on disabilty.Sometimes i think of how serious things have been and i too know that God has been there for me. Stay strong.........Joni

 

[beleache]

Hi Diane......It sounds like we have some similar issues. amount of hospital stays, not taking good care of ourselves several years ago, also on disabilty.Sometimes i think of how serious things have been and i too know that God has been there for me. Stay strong.........Joni

 

[beleache]

Hi Diane......It sounds like we have some similar issues. amount of hospital stays, not taking good care of ourselves several years ago, also on disabilty.Sometimes i think of how serious things have been and i too know that God has been there for me. Stay strong.........Joni

 

[anonymous]

Hi Joni, I just wanted to say hi. My name is Donna, I am 34 and I live in Knoxville Tennessee. i just found out than I have CF in May of this year. It took me by surprise. I have always had lung problems, but mostly GI problems until this past December when my lungs became very involved. I have been in the hospital 5x since then and am on IV's now and still spiking fevers. I am like you I did not start taking care of myself until recently. Well it was nice meeting you and take care.

 

[anonymous]

Hi Joni, I just wanted to say hi. My name is Donna, I am 34 and I live in Knoxville Tennessee. i just found out than I have CF in May of this year. It took me by surprise. I have always had lung problems, but mostly GI problems until this past December when my lungs became very involved. I have been in the hospital 5x since then and am on IV's now and still spiking fevers. I am like you I did not start taking care of myself until recently. Well it was nice meeting you and take care.

 

[anonymous]

Hi Joni, I just wanted to say hi. My name is Donna, I am 34 and I live in Knoxville Tennessee. i just found out than I have CF in May of this year. It took me by surprise. I have always had lung problems, but mostly GI problems until this past December when my lungs became very involved. I have been in the hospital 5x since then and am on IV's now and still spiking fevers. I am like you I did not start taking care of myself until recently. Well it was nice meeting you and take care.

 

[kayleesgrandma]

Joni, welcome to this place full of beautiful people with one thing in common--we are all fighting CF, in one form or another. Be ready, 'cause once you enter, you will find it hard to stay away! I look forward to hearing more from you.

 

[kayleesgrandma]

Joni, welcome to this place full of beautiful people with one thing in common--we are all fighting CF, in one form or another. Be ready, 'cause once you enter, you will find it hard to stay away! I look forward to hearing more from you.