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Cystic Fibrosis Forum (EXP)

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Insurance Rules Can be unhelpful for CF

So, a week ago I did not drop below 88% for my 6-minute walk, which was good in a sense, but all it meant was that I was having a good day. Today, I have been short of breath quite a bit. Luckily, Norco hasn't come to take my oxygen away yet but it will happen. I just wish other people, namely insurance companies, would realize that cf is a different duck than copd. Our oximetry varies all the time. I am so scared to not have my oxygen around. It helps me so much to recover when I am short of breath and to be able to be more active. What will I do when I am coughing up blood or have an asthma-like attack?
 
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