Hello Everyone,
I am kind of new here. Been reading alot of the posts for a few weeks. I was initially drawn to reading more regularly because of Sean mentioning the Oregano Oil. I have since bought some and have been trying it. I am really inspired that others also are doing the OO, hypertonic saline, and other supplements in order to fight their CF in a more assertive, aggressive form.
I was diagnosed at the age of 18, despite suffering from health problems throughout my life. I didn't need treatments, or should I say I didn't think I needed treatments until about four years ago at the age of 34 with doing albuterol inhalation daily. The last year or two I've been doing Tobi, pulmozyne, and recently tried the hypertonic saline. I also have been using my Vest more compliantly everyday. My 34 year old brother with CF recently had a very successful lung transplant in October of 2005. Now I am not the healthy one anymore, so it's made me focus more on my own state of health and how to improve it.
My problem is that I have a big chest, and that kind of defeats the purpose of getting the vest tight on the lung area. My question for the ladies is does anyone else have this problem and have they figured out any tricks. My doctor gives me a guilt trip if I don't use my vest, so I've been using it, plus I want to take advantage of everything possible in fighting the CF. Alot of people I understand rave about the effectiveness of the Vest, but maybe I am not getting the same great effects.
I seem to get more gunk out with deep pushing of the air down into my lung, sort of a slow huffing. It's what I've done for years. I didn't really see doctors from the age of 19 until 34. I dealt with the CF on my own. But in the last couple of years, I have gradually entered into the phase of doing all of the meds and keeping watch on my health.
I also have tried the inhalation of the OO. I remember the second day, dancing around and feeling young again. I had so much energy, and felt in control of the Cf. I didn't take it after that for whatever reason. However, after reading that someone said, if you don't take it for awhile you might start to feel crappy, I think I will try it again tonight. I just started my six day of tobi, and have been feeling really tired and sick since. It can be frustrating doing all of the treatments and the vest, about 2 hours or more, and then two hours later going shopping and hearing more gunk in my lungs.
Anyways, thanks to all of you for posting about your lives. Though I don't comment much, I absorb it all like a sponge. I love to receive all of this new information of what other CFers do. It gives me things to try also. Here's a picture of me and mynew nephew.
I am kind of new here. Been reading alot of the posts for a few weeks. I was initially drawn to reading more regularly because of Sean mentioning the Oregano Oil. I have since bought some and have been trying it. I am really inspired that others also are doing the OO, hypertonic saline, and other supplements in order to fight their CF in a more assertive, aggressive form.
I was diagnosed at the age of 18, despite suffering from health problems throughout my life. I didn't need treatments, or should I say I didn't think I needed treatments until about four years ago at the age of 34 with doing albuterol inhalation daily. The last year or two I've been doing Tobi, pulmozyne, and recently tried the hypertonic saline. I also have been using my Vest more compliantly everyday. My 34 year old brother with CF recently had a very successful lung transplant in October of 2005. Now I am not the healthy one anymore, so it's made me focus more on my own state of health and how to improve it.
My problem is that I have a big chest, and that kind of defeats the purpose of getting the vest tight on the lung area. My question for the ladies is does anyone else have this problem and have they figured out any tricks. My doctor gives me a guilt trip if I don't use my vest, so I've been using it, plus I want to take advantage of everything possible in fighting the CF. Alot of people I understand rave about the effectiveness of the Vest, but maybe I am not getting the same great effects.
I seem to get more gunk out with deep pushing of the air down into my lung, sort of a slow huffing. It's what I've done for years. I didn't really see doctors from the age of 19 until 34. I dealt with the CF on my own. But in the last couple of years, I have gradually entered into the phase of doing all of the meds and keeping watch on my health.
I also have tried the inhalation of the OO. I remember the second day, dancing around and feeling young again. I had so much energy, and felt in control of the Cf. I didn't take it after that for whatever reason. However, after reading that someone said, if you don't take it for awhile you might start to feel crappy, I think I will try it again tonight. I just started my six day of tobi, and have been feeling really tired and sick since. It can be frustrating doing all of the treatments and the vest, about 2 hours or more, and then two hours later going shopping and hearing more gunk in my lungs.
Anyways, thanks to all of you for posting about your lives. Though I don't comment much, I absorb it all like a sponge. I love to receive all of this new information of what other CFers do. It gives me things to try also. Here's a picture of me and mynew nephew.