Hi, my name is Amanda. I am 24 without CF but my boyfriend is 33 with CF. I just wanted to post some interesting information that I have learned while doing this research paper for school. I was in the University of South Florida library a couple weeks ago and came accross this vidoe on CF. This video is not for the weak stomached. The video is a documentary on Cf and masochism, it is called Sick, the life and death of Bob Flanagan. The guy the movie was about had CF and was into all the wierd S&M stuff. If you can overlook all the wierd things that he does it is a good documentary. This guy, Bob Flanagan is very open and honest about having CF. The movie showed the progression of the disease. I know that many of us don't fully comprehend the long term effects of CF. Just looking at him you can tell that he has CF. The guy was born in 1952, before CF even had a name, and lived until 1996 or 1997 (I can't remember which). Just to let everyone know, alhtough the movie was educational it also is very real. The video even shows his last hospital visit and his death. I know that I sound wierd even watching it but I wasn't aware of everything on the video. I just wanted to let you all know that this video was good if you can handle watching some of the more disturbing things. I hope that no one is offended by this post. I did not watch this for entertainment but for education. If you are interested you can find copies on the net (Amazon.com) along with books that he wrote. This guy was an artist and poet, just a wierd one. He also participated in CF camps as a leader and he worked with the make a wish foundation. If you are interested in any other information you can e-mail me at ASander6@tampabay.rr.com.