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Cystic Fibrosis Forum (EXP)

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Know the laws!

I

Imogene

Administrator
I think we, at this site, could be a big political force to make sure states and countries do newborn CF screening.

I know so many of us are heartsick when we read in the Newly Diagnosed section how hard it is to get some doctors to authorize/prescribe the Ambry Panel.

If you live in NJ, like me, CF screening for newborns is the law...but other states and countries? Let us know!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.medpagetoday.com/PublicHealthPolicy/HealthPolicy/tb/5398">MedPage Today...Universal Newborn Cystic Fibrosis Screening Pays Off </a>
This is an example...these are my state representatives in NJ
<a target=_blank class=ftalternatingbarlinklarge href="http://www.njleg.state.nj.us/members/roster.asp">NJ 40th District</a>
 
I

Imogene

Administrator
I think we, at this site, could be a big political force to make sure states and countries do newborn CF screening.

I know so many of us are heartsick when we read in the Newly Diagnosed section how hard it is to get some doctors to authorize/prescribe the Ambry Panel.

If you live in NJ, like me, CF screening for newborns is the law...but other states and countries? Let us know!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.medpagetoday.com/PublicHealthPolicy/HealthPolicy/tb/5398">MedPage Today...Universal Newborn Cystic Fibrosis Screening Pays Off </a>
This is an example...these are my state representatives in NJ
<a target=_blank class=ftalternatingbarlinklarge href="http://www.njleg.state.nj.us/members/roster.asp">NJ 40th District</a>
 
I

Imogene

Administrator
I think we, at this site, could be a big political force to make sure states and countries do newborn CF screening.

I know so many of us are heartsick when we read in the Newly Diagnosed section how hard it is to get some doctors to authorize/prescribe the Ambry Panel.

If you live in NJ, like me, CF screening for newborns is the law...but other states and countries? Let us know!

<a target=_blank class=ftalternatingbarlinklarge href="http://www.medpagetoday.com/PublicHealthPolicy/HealthPolicy/tb/5398">MedPage Today...Universal Newborn Cystic Fibrosis Screening Pays Off </a>
This is an example...these are my state representatives in NJ
<a target=_blank class=ftalternatingbarlinklarge href="http://www.njleg.state.nj.us/members/roster.asp">NJ 40th District</a>
 
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