What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Lexi's on IVs

L

lexisangels05

New member
Lexi went in for a bronchoscopy on June 5. She had been culturing a small amount of Pseudomonas and Staph in her lungs for about 2 years now. She has been on Tobi and Zithromax, but this was just kinda holding the bacteria down and not irradicating it. After her bronchoscopy they found about 10,000 organisms/ml of Staph and 10,000,000 organisms / ml of Psuedomas. Doctors were really glad we decided to be aggressive to get rid of these bugs before she started school in the fall. We went to clinic today for a check up. Her cough is worse than it was before her bronch and her PFT's were down. We may end up doing 1-2 more weeks of home IV's.

Any similiar stories?
Melissa
 
L

lexisangels05

New member
Lexi went in for a bronchoscopy on June 5. She had been culturing a small amount of Pseudomonas and Staph in her lungs for about 2 years now. She has been on Tobi and Zithromax, but this was just kinda holding the bacteria down and not irradicating it. After her bronchoscopy they found about 10,000 organisms/ml of Staph and 10,000,000 organisms / ml of Psuedomas. Doctors were really glad we decided to be aggressive to get rid of these bugs before she started school in the fall. We went to clinic today for a check up. Her cough is worse than it was before her bronch and her PFT's were down. We may end up doing 1-2 more weeks of home IV's.

Any similiar stories?
Melissa
 
L

lexisangels05

New member
Lexi went in for a bronchoscopy on June 5. She had been culturing a small amount of Pseudomonas and Staph in her lungs for about 2 years now. She has been on Tobi and Zithromax, but this was just kinda holding the bacteria down and not irradicating it. After her bronchoscopy they found about 10,000 organisms/ml of Staph and 10,000,000 organisms / ml of Psuedomas. Doctors were really glad we decided to be aggressive to get rid of these bugs before she started school in the fall. We went to clinic today for a check up. Her cough is worse than it was before her bronch and her PFT's were down. We may end up doing 1-2 more weeks of home IV's.

Any similiar stories?
Melissa
 
L

lexisangels05

New member
Lexi went in for a bronchoscopy on June 5. She had been culturing a small amount of Pseudomonas and Staph in her lungs for about 2 years now. She has been on Tobi and Zithromax, but this was just kinda holding the bacteria down and not irradicating it. After her bronchoscopy they found about 10,000 organisms/ml of Staph and 10,000,000 organisms / ml of Psuedomas. Doctors were really glad we decided to be aggressive to get rid of these bugs before she started school in the fall. We went to clinic today for a check up. Her cough is worse than it was before her bronch and her PFT's were down. We may end up doing 1-2 more weeks of home IV's.

Any similiar stories?
Melissa
 
L

lexisangels05

New member
Lexi went in for a bronchoscopy on June 5. She had been culturing a small amount of Pseudomonas and Staph in her lungs for about 2 years now. She has been on Tobi and Zithromax, but this was just kinda holding the bacteria down and not irradicating it. After her bronchoscopy they found about 10,000 organisms/ml of Staph and 10,000,000 organisms / ml of Psuedomas. Doctors were really glad we decided to be aggressive to get rid of these bugs before she started school in the fall. We went to clinic today for a check up. Her cough is worse than it was before her bronch and her PFT's were down. We may end up doing 1-2 more weeks of home IV's.
<br />
<br />Any similiar stories?
<br />Melissa
 
M

meggzzie

Guest
When I was 6 I got a bronc and my first 2 week course of IVs (I had IVs previously but never for 2 weeks in one go. I don't remember much, but i do have vague memories of going into hospital for one night with a drip in my arm.)
I had a terrible cough before the IVs. Basically 24/7 cough, which was unusual and bugged the heck out of everyone! After my 2 weeks of IVs, I was 110% better, and got rid of my cough. Unfortunatley, I actually cultured psuedo IN hospital, thanks to the idiotic idea of giving me a ward bed, inbetween two other older cfers with pseudo.

Oh, and I have the same mutations as your daughter <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hope she's doing well now.
 
M

meggzzie

Guest
When I was 6 I got a bronc and my first 2 week course of IVs (I had IVs previously but never for 2 weeks in one go. I don't remember much, but i do have vague memories of going into hospital for one night with a drip in my arm.)
I had a terrible cough before the IVs. Basically 24/7 cough, which was unusual and bugged the heck out of everyone! After my 2 weeks of IVs, I was 110% better, and got rid of my cough. Unfortunatley, I actually cultured psuedo IN hospital, thanks to the idiotic idea of giving me a ward bed, inbetween two other older cfers with pseudo.

Oh, and I have the same mutations as your daughter <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hope she's doing well now.
 
M

meggzzie

Guest
When I was 6 I got a bronc and my first 2 week course of IVs (I had IVs previously but never for 2 weeks in one go. I don't remember much, but i do have vague memories of going into hospital for one night with a drip in my arm.)
I had a terrible cough before the IVs. Basically 24/7 cough, which was unusual and bugged the heck out of everyone! After my 2 weeks of IVs, I was 110% better, and got rid of my cough. Unfortunatley, I actually cultured psuedo IN hospital, thanks to the idiotic idea of giving me a ward bed, inbetween two other older cfers with pseudo.

Oh, and I have the same mutations as your daughter <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hope she's doing well now.
 
M

meggzzie

Guest
When I was 6 I got a bronc and my first 2 week course of IVs (I had IVs previously but never for 2 weeks in one go. I don't remember much, but i do have vague memories of going into hospital for one night with a drip in my arm.)
I had a terrible cough before the IVs. Basically 24/7 cough, which was unusual and bugged the heck out of everyone! After my 2 weeks of IVs, I was 110% better, and got rid of my cough. Unfortunatley, I actually cultured psuedo IN hospital, thanks to the idiotic idea of giving me a ward bed, inbetween two other older cfers with pseudo.

Oh, and I have the same mutations as your daughter <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hope she's doing well now.
 
M

meggzzie

Guest
When I was 6 I got a bronc and my first 2 week course of IVs (I had IVs previously but never for 2 weeks in one go. I don't remember much, but i do have vague memories of going into hospital for one night with a drip in my arm.)
<br />I had a terrible cough before the IVs. Basically 24/7 cough, which was unusual and bugged the heck out of everyone! After my 2 weeks of IVs, I was 110% better, and got rid of my cough. Unfortunatley, I actually cultured psuedo IN hospital, thanks to the idiotic idea of giving me a ward bed, inbetween two other older cfers with pseudo.
<br />
<br />Oh, and I have the same mutations as your daughter <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hope she's doing well now.
 
You must log in or register to reply here.
Top