Its good your getting info on your own, to show her you really care and are interested in her health. It probably isn't you , the reason why she doesn't talk about her CF. Alot of people with CF have a hard time telling anyone about it. We don't want to feel like a burden on anyone. I will tell you from my own experience, I didn't like giving my now husband the specifics of CF, I just told him about the meds I took and what for. I think he got frustrated so he did his own research. So he would ask about things to see if I had to do certain things that he read about. Made me feel more comfortable talking to him because he was interested and not just pretending to be interested. She is probably scared of you leaving too. Alot of people can't handle dating or even being friends with a CFer because of what we go through. Those people can't handle the reality of life and mortality I think. There are only a few special people out there willing to date and be friends with us, and they have to be strong people. Think about it. They ahve to be strong to see the love of their life sick all the time, in the hospital, in pain and probably on their slow road to death. Scary aint it. One reason why alot of us with CF don't like talking about it. If we tell you the truth, its not all daisies and sugar. Just like the 65 roses saying, our lives are like a rose bush. There are pretty rose buds but along with those comes alot of thorns. Your girlfriends thorns are her meds, sickness, hospitals, doctors, needles, treatments, and daily health maintance that eventually won't work as good as it should. Her pretty rose buds are you, fun, friends, and family. They are few compared to the thorns. But the roses make it worth it. So why would she want to tell you all about the bad things if that means she might loose what she might consider the best thing in her life right now. She may think "why ruin a good thing". So be patient. If you really love her and want to be with her, you have to tell her that and tell her no matter what you will be by her side. She has to tell you on her own time. Maybe ask a few questions here and there to let her know you are interested but don't push it, her CF maybe a really touchy subject to her. She probably has lost many friends, maybe even previous boyfriends because she told them about CF and they couldn't handle it. I know I lost friends and certain boys that liked me, wouldn't date me because I was sick so much. Sounds horrible but its true. Just give her time. Be there for her. She will confide in you in her time.I hope i made some sense.Amanda