well i just got out of the hospital today. feels good to finally be out. i have lerked on this sight but never posted, was really to scared too.i have read and learned a ton.
well i the last two years i have been very sick in the hospital every 3 mo or so andthis year evey 2 mo.was on constant 2 lts of o2 since feb,...i was at keiser previosly but the begining of this year got into stanfard lpch.i was very sick and my 1st admission there was in july. 17days...my doc said i was very very sick and dont know how i stayed out of the hospital so long. at that point they started talking transplant..at keiser it was kinda started but keiser takes to long to annitiate anything, and after being seen at llcp their approach to cf doesnt compare to eachother. i was glad to be at stanfard but still very very scared. the tests startes at that addmission to get on the list. then there week long at being at the hospital everyday for at least 8 hrs a day just for test after test. what a long scary week. everything from labs to xrays to xtreme pfts etc. i was done with themm and awaiting a call to confirm the list. we had to meet with team a few times so they could fell me out to see if i could physicslly and mentally handle it. one more meeting and another test was just added. some heart cathiter scan,? please exuse my spelling,etc...im no pro typer........the test lasted from 10 am and diddnt leave the hospital til like 6 or so....waing and waiting,.....they put mr under heavy sedation...it was very scary at the time just because people are usually scared of what they dont know. after having gone thru all the tests..the are no big deal compared to dealing with cf my whole life. i was just afraid of the unknown. so after that test we awaited a final call to be told we me and my family were on the list. my mom and dad wre there so far every step of the way. it would have been hard without them. so thur the 30th i got a message that i was ganna be listed on the main computer on fri...from that day on my mind was out of it. i couldnt grip that one day in the future could be 1 day could be 2 years i would get a call and i would get a x plant, i was scared very scared at this time, every day i would think of what i had going on and i could disappear out of friends sights for a month. what would i tell people, whats it ganna feel like, recovery,afterward.
on fri the 8th at 430 i get a call ....
any ??? ill post more in a bit....
well i the last two years i have been very sick in the hospital every 3 mo or so andthis year evey 2 mo.was on constant 2 lts of o2 since feb,...i was at keiser previosly but the begining of this year got into stanfard lpch.i was very sick and my 1st admission there was in july. 17days...my doc said i was very very sick and dont know how i stayed out of the hospital so long. at that point they started talking transplant..at keiser it was kinda started but keiser takes to long to annitiate anything, and after being seen at llcp their approach to cf doesnt compare to eachother. i was glad to be at stanfard but still very very scared. the tests startes at that addmission to get on the list. then there week long at being at the hospital everyday for at least 8 hrs a day just for test after test. what a long scary week. everything from labs to xrays to xtreme pfts etc. i was done with themm and awaiting a call to confirm the list. we had to meet with team a few times so they could fell me out to see if i could physicslly and mentally handle it. one more meeting and another test was just added. some heart cathiter scan,? please exuse my spelling,etc...im no pro typer........the test lasted from 10 am and diddnt leave the hospital til like 6 or so....waing and waiting,.....they put mr under heavy sedation...it was very scary at the time just because people are usually scared of what they dont know. after having gone thru all the tests..the are no big deal compared to dealing with cf my whole life. i was just afraid of the unknown. so after that test we awaited a final call to be told we me and my family were on the list. my mom and dad wre there so far every step of the way. it would have been hard without them. so thur the 30th i got a message that i was ganna be listed on the main computer on fri...from that day on my mind was out of it. i couldnt grip that one day in the future could be 1 day could be 2 years i would get a call and i would get a x plant, i was scared very scared at this time, every day i would think of what i had going on and i could disappear out of friends sights for a month. what would i tell people, whats it ganna feel like, recovery,afterward.
on fri the 8th at 430 i get a call ....
any ??? ill post more in a bit....