juliesdreamteam
New member
I've done the math folks. There are 9 million of us that LOVE the 30,000 (70,000 world-wide). I've seen the pain associated with the loss of loved ones to this disease. Hell, I was inches away from being one of those that lost a loved one to CF. By God's grace, it didn't happen.
I spoke with the CF Foundation last week. Apparently, there are a lot of us that want to find a cure for CF but few of us pour our hearts and soul into doing so. Before those with the disease get turned off from my comments think of this....If you want something done right, you've got to do it yourself.....which brings me to this point:
Over the past two years, Julie's Dream Team has NEVER asked for a dime from anyone. We asked people to live life so that others could live theirs. Oddly enough, it's working. People that never knew what Cystic Fibrosis was (and you know darn good and well that you have to explain it to a lot of people) learned about CF and more importantly went out to live life. The results are staggering. Over $250,000 has gone to research and the donation of VEST to families that couldn't afford them.
We have done this to find a cure. We don't want a pat on the back. We don't want money. We want the cure.
What's troubling is that I know there are people out there raising money for the cure and keeping a portion of the profits for themselves. They raise money and donate 10%-20% to the CF Foundation. The CF Foundation loves this method. The seller of goods loves it too (they keep 80% and they did so off the backs of those that fight this f'in disease daily...pardon the language).
So here comes Julie's Dream Team. 100% of every penny we raise is sent from some of America's largest companies to the CF Foundation. Julie's Dream Team doesn't make a penny. It's the right thing to do. It's the only thing we will ever do. When the cure is found....we're closing up the doors and raising a tall frosty glass of beer.
Many of us have read "Alex, The Life of a Child." Millions went to the CF Foundation for research. Back then, many of those with CF were dying before they reached their mid-teens. Today, many of those with CF are living into adult-hood. It isn't happening by chance. It's happening because the millions of volunteers that pour hours of their time into finding a cure.
I won't beg anyone to read my Julie's story. I know that I've directed the publisher to send every dime of my author royalties to the CF Foundation. Each time her story is purchased a couple of things happen: 1) We get closer to a cure. 2) $6.36 from each paperback, $14.53 from each hardcover and $5 from each eReader goest directly to research. I know that if everyone that wanted a cure read Julie's story, our CF community would raise $45 million at a minimum for research. I'm never going to take a dime of it because my wife's dream of a cure for you and your children mean more to me than anything a dollar can buy. It means more to our team of thousands that span America.
You don't have to die from CF. You can live your life and do something as simple as read a book to help yourself. My Julie did it. You can do it too.
Hope won't place the cure in our lap. We've got to press hard for it. Spend the $6.99 for the eReader. If we all do it....time is the only variable standing between us and a cure.
Visit www.lulu.com/spotlight/curecf. After 9 days on the market, $1600 is slated to go to the CF Foundation for research. I don't mind giving every dime away for research but I gotta be honest here....the math suggest that there are more people that want a cure. Maybe I'm wrong.
Sincerely Yours,
Roy E. Ice
www.juliesdreamteam.com
I spoke with the CF Foundation last week. Apparently, there are a lot of us that want to find a cure for CF but few of us pour our hearts and soul into doing so. Before those with the disease get turned off from my comments think of this....If you want something done right, you've got to do it yourself.....which brings me to this point:
Over the past two years, Julie's Dream Team has NEVER asked for a dime from anyone. We asked people to live life so that others could live theirs. Oddly enough, it's working. People that never knew what Cystic Fibrosis was (and you know darn good and well that you have to explain it to a lot of people) learned about CF and more importantly went out to live life. The results are staggering. Over $250,000 has gone to research and the donation of VEST to families that couldn't afford them.
We have done this to find a cure. We don't want a pat on the back. We don't want money. We want the cure.
What's troubling is that I know there are people out there raising money for the cure and keeping a portion of the profits for themselves. They raise money and donate 10%-20% to the CF Foundation. The CF Foundation loves this method. The seller of goods loves it too (they keep 80% and they did so off the backs of those that fight this f'in disease daily...pardon the language).
So here comes Julie's Dream Team. 100% of every penny we raise is sent from some of America's largest companies to the CF Foundation. Julie's Dream Team doesn't make a penny. It's the right thing to do. It's the only thing we will ever do. When the cure is found....we're closing up the doors and raising a tall frosty glass of beer.
Many of us have read "Alex, The Life of a Child." Millions went to the CF Foundation for research. Back then, many of those with CF were dying before they reached their mid-teens. Today, many of those with CF are living into adult-hood. It isn't happening by chance. It's happening because the millions of volunteers that pour hours of their time into finding a cure.
I won't beg anyone to read my Julie's story. I know that I've directed the publisher to send every dime of my author royalties to the CF Foundation. Each time her story is purchased a couple of things happen: 1) We get closer to a cure. 2) $6.36 from each paperback, $14.53 from each hardcover and $5 from each eReader goest directly to research. I know that if everyone that wanted a cure read Julie's story, our CF community would raise $45 million at a minimum for research. I'm never going to take a dime of it because my wife's dream of a cure for you and your children mean more to me than anything a dollar can buy. It means more to our team of thousands that span America.
You don't have to die from CF. You can live your life and do something as simple as read a book to help yourself. My Julie did it. You can do it too.
Hope won't place the cure in our lap. We've got to press hard for it. Spend the $6.99 for the eReader. If we all do it....time is the only variable standing between us and a cure.
Visit www.lulu.com/spotlight/curecf. After 9 days on the market, $1600 is slated to go to the CF Foundation for research. I don't mind giving every dime away for research but I gotta be honest here....the math suggest that there are more people that want a cure. Maybe I'm wrong.
Sincerely Yours,
Roy E. Ice
www.juliesdreamteam.com