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mild atypical or lucky?

S

sunflower

New member
Hi friend,

I felt I had to comment. I read your blog and applauded your thoughts and questions. You have been great support to me since I joined the website back in Sept and so has others. Anyway I too feel like you because I was late dx's even though I was sick from the age of 6yrs Old. I did struggle through life and recently to be told at the age of 33yrs of old "You have CF" .I am thrilled today to know what is wrong with me and I now do all I can to prevent my condition detreriorating. Bascially I do what I am told!!.
i have been on IV'S 4-5 times a year and I do consider myself bad at the time and I do not think that is wrong for me. I feel where I am from Ireland and I know a few adults who have CF that I am made aware Im better off. I do not know what this means at times. But anyway all I can do is do my best to stay well and keep infection level down the best I know how.
I haven't been on site in a long time I need time to adjust and finding away to cope which I think I have. There is no two CFsufferers the same or a pattern to follow is what I have learnt.

Talk soon Mum2lillian...





Sunflower
-------------------------
bronchiectasis, ABPA since 1989
Cepacia 2006 (havent cultured it in 7months)
DF508/P67L

I
 
S

sunflower

New member
Hi friend,

I felt I had to comment. I read your blog and applauded your thoughts and questions. You have been great support to me since I joined the website back in Sept and so has others. Anyway I too feel like you because I was late dx's even though I was sick from the age of 6yrs Old. I did struggle through life and recently to be told at the age of 33yrs of old "You have CF" .I am thrilled today to know what is wrong with me and I now do all I can to prevent my condition detreriorating. Bascially I do what I am told!!.
i have been on IV'S 4-5 times a year and I do consider myself bad at the time and I do not think that is wrong for me. I feel where I am from Ireland and I know a few adults who have CF that I am made aware Im better off. I do not know what this means at times. But anyway all I can do is do my best to stay well and keep infection level down the best I know how.
I haven't been on site in a long time I need time to adjust and finding away to cope which I think I have. There is no two CFsufferers the same or a pattern to follow is what I have learnt.

Talk soon Mum2lillian...





Sunflower
-------------------------
bronchiectasis, ABPA since 1989
Cepacia 2006 (havent cultured it in 7months)
DF508/P67L

I
 
S

sunflower

New member
Hi friend,

I felt I had to comment. I read your blog and applauded your thoughts and questions. You have been great support to me since I joined the website back in Sept and so has others. Anyway I too feel like you because I was late dx's even though I was sick from the age of 6yrs Old. I did struggle through life and recently to be told at the age of 33yrs of old "You have CF" .I am thrilled today to know what is wrong with me and I now do all I can to prevent my condition detreriorating. Bascially I do what I am told!!.
i have been on IV'S 4-5 times a year and I do consider myself bad at the time and I do not think that is wrong for me. I feel where I am from Ireland and I know a few adults who have CF that I am made aware Im better off. I do not know what this means at times. But anyway all I can do is do my best to stay well and keep infection level down the best I know how.
I haven't been on site in a long time I need time to adjust and finding away to cope which I think I have. There is no two CFsufferers the same or a pattern to follow is what I have learnt.

Talk soon Mum2lillian...





Sunflower
-------------------------
bronchiectasis, ABPA since 1989
Cepacia 2006 (havent cultured it in 7months)
DF508/P67L

I
 
S

sunflower

New member
Hi friend,

I felt I had to comment. I read your blog and applauded your thoughts and questions. You have been great support to me since I joined the website back in Sept and so has others. Anyway I too feel like you because I was late dx's even though I was sick from the age of 6yrs Old. I did struggle through life and recently to be told at the age of 33yrs of old "You have CF" .I am thrilled today to know what is wrong with me and I now do all I can to prevent my condition detreriorating. Bascially I do what I am told!!.
i have been on IV'S 4-5 times a year and I do consider myself bad at the time and I do not think that is wrong for me. I feel where I am from Ireland and I know a few adults who have CF that I am made aware Im better off. I do not know what this means at times. But anyway all I can do is do my best to stay well and keep infection level down the best I know how.
I haven't been on site in a long time I need time to adjust and finding away to cope which I think I have. There is no two CFsufferers the same or a pattern to follow is what I have learnt.

Talk soon Mum2lillian...





Sunflower
-------------------------
bronchiectasis, ABPA since 1989
Cepacia 2006 (havent cultured it in 7months)
DF508/P67L

I
 
S

sunflower

New member
Hi friend,

I felt I had to comment. I read your blog and applauded your thoughts and questions. You have been great support to me since I joined the website back in Sept and so has others. Anyway I too feel like you because I was late dx's even though I was sick from the age of 6yrs Old. I did struggle through life and recently to be told at the age of 33yrs of old "You have CF" .I am thrilled today to know what is wrong with me and I now do all I can to prevent my condition detreriorating. Bascially I do what I am told!!.
i have been on IV'S 4-5 times a year and I do consider myself bad at the time and I do not think that is wrong for me. I feel where I am from Ireland and I know a few adults who have CF that I am made aware Im better off. I do not know what this means at times. But anyway all I can do is do my best to stay well and keep infection level down the best I know how.
I haven't been on site in a long time I need time to adjust and finding away to cope which I think I have. There is no two CFsufferers the same or a pattern to follow is what I have learnt.

Talk soon Mum2lillian...





Sunflower
-------------------------
bronchiectasis, ABPA since 1989
Cepacia 2006 (havent cultured it in 7months)
DF508/P67L

I
 
S

sunflower

New member
Hi friend,

I felt I had to comment. I read your blog and applauded your thoughts and questions. You have been great support to me since I joined the website back in Sept and so has others. Anyway I too feel like you because I was late dx's even though I was sick from the age of 6yrs Old. I did struggle through life and recently to be told at the age of 33yrs of old "You have CF" .I am thrilled today to know what is wrong with me and I now do all I can to prevent my condition detreriorating. Bascially I do what I am told!!.
i have been on IV'S 4-5 times a year and I do consider myself bad at the time and I do not think that is wrong for me. I feel where I am from Ireland and I know a few adults who have CF that I am made aware Im better off. I do not know what this means at times. But anyway all I can do is do my best to stay well and keep infection level down the best I know how.
I haven't been on site in a long time I need time to adjust and finding away to cope which I think I have. There is no two CFsufferers the same or a pattern to follow is what I have learnt.

Talk soon Mum2lillian...





Sunflower
-------------------------
bronchiectasis, ABPA since 1989
Cepacia 2006 (havent cultured it in 7months)
DF508/P67L

I
 
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