Twilight zone?
This week I was invited to participate in a support group for moms with children with special needs. The woman who started the group is Jesse's counselor and mom to a child with neuro issues. There are 12 women who have been meeting once a month since April, but I haven't been able to attend yet.
WELL It was SO weird! Because I was new, I had to tell my "story"... My boys have CF....CF is....yada yada yada.
<b>I got blank stares.</b>
The facilitator asks me to tell about our daily routines.
<b>Blank stares.</b>
Then one question... So your boys go to school?
Then... So your boys look normal? And play sports? No brain problems?
<b>Blank stares.</b>
I realized later that EVERYONE else there had a child with neurological problems. Hugely disabled, constant nursing care, etc. All of them are together in the same "Holland" and I've never been there, I don't even know where it is. To them, I was an alien.
<b>It was so weird</b> to get a perspective from the other side. I'm not sure I'll go back because I didn't have much to add to the conversation. But it was interesting.
One cool thing that I got from the group was an article that one mom had written for a newsletter. It is about the "sister sorority" of mom's of children with special needs. It is very well done and very moving. Its too long to put here, but if anyone wants a copy, please PM me and I'll send it out.
This week I was invited to participate in a support group for moms with children with special needs. The woman who started the group is Jesse's counselor and mom to a child with neuro issues. There are 12 women who have been meeting once a month since April, but I haven't been able to attend yet.
WELL It was SO weird! Because I was new, I had to tell my "story"... My boys have CF....CF is....yada yada yada.
<b>I got blank stares.</b>
The facilitator asks me to tell about our daily routines.
<b>Blank stares.</b>
Then one question... So your boys go to school?
Then... So your boys look normal? And play sports? No brain problems?
<b>Blank stares.</b>
I realized later that EVERYONE else there had a child with neurological problems. Hugely disabled, constant nursing care, etc. All of them are together in the same "Holland" and I've never been there, I don't even know where it is. To them, I was an alien.
<b>It was so weird</b> to get a perspective from the other side. I'm not sure I'll go back because I didn't have much to add to the conversation. But it was interesting.
One cool thing that I got from the group was an article that one mom had written for a newsletter. It is about the "sister sorority" of mom's of children with special needs. It is very well done and very moving. Its too long to put here, but if anyone wants a copy, please PM me and I'll send it out.