hi, i'm 37yo with CF and with Mycobacterium abcessus. My PFTs are good (80%) and am fairly healthy (6ft 195 pds).
I cultured positive for Mycobacterium abcessus last Oct/Nov and did 2wks of Amakacin IVs, and 2 other IVs, then oral antibiotics for a while (i am on oral antibiotics so much, i can't remember when i start and when i go off them).
This July/Aug i was extrememly tired/fatigued all the time.. cultured positive for Mycobacterium abcessus again. Did another 2 wks of Amakacin in Sep, and i am doing 6 months of 2 orals (Biaxin 500 bid and Zyvox 600 bid).. almost half way though it and i'm still tired all the time. i try to get some exercise, but that just seems to run me down and the next day i'm sicker than i was.
I wanted to ask about the Amakacin inhalation.. how does that work and does it cause the hearing problems?
Also, is the Nat'l Jewish ctr in Denver.. are they experts in Mycobacterium abcessus ?
i go to Emory CF ctr in Atlanta... but wanted to see if the folks in Denver know more on this bacteria...
thnx, ted
<a target=new class=ftalternatingbarlinklarge href="mailto:tedfontaine@bellsouth.net">email me</a>
I cultured positive for Mycobacterium abcessus last Oct/Nov and did 2wks of Amakacin IVs, and 2 other IVs, then oral antibiotics for a while (i am on oral antibiotics so much, i can't remember when i start and when i go off them).
This July/Aug i was extrememly tired/fatigued all the time.. cultured positive for Mycobacterium abcessus again. Did another 2 wks of Amakacin in Sep, and i am doing 6 months of 2 orals (Biaxin 500 bid and Zyvox 600 bid).. almost half way though it and i'm still tired all the time. i try to get some exercise, but that just seems to run me down and the next day i'm sicker than i was.
I wanted to ask about the Amakacin inhalation.. how does that work and does it cause the hearing problems?
Also, is the Nat'l Jewish ctr in Denver.. are they experts in Mycobacterium abcessus ?
i go to Emory CF ctr in Atlanta... but wanted to see if the folks in Denver know more on this bacteria...
thnx, ted
<a target=new class=ftalternatingbarlinklarge href="mailto:tedfontaine@bellsouth.net">email me</a>