Hi, I am a mom of a now three month old with cf and a 3year old and 8 year old who have to have a sweat test Tue. 22. They have always been healthy but since our youngest was diagnosed with a new born screen they have to have it done. I seem to not be scared or anything about Saydie having cf. Why I don't know. I just feel like ok she is healthy now keep her cpt's up and pomicort once a day and she is good to go. I keep her away from illnesses as much as possible. Her cf doctor says she is healthy and doing well and says if people ask how she is doing tell them she is doing good. Her xrays are good too. I have read up on cf alot but I seem to be not worried. Maybe it is because of not ever seeing someone live with cf or have it. When most babies have cf do they usually have problems from start or sometimes they will be ok and all of a sudden have severe problems. She is gaining weight by herself. They put her on creon5 one capsule per 8 ounce bottle just because her stool had some protine except that she is gaining on her own. She went from 6.11 when we left the hosp. to 10.6 at 2 months with no enzymes and we will know Tues. but if she don't weigh atleast 13lbs. It won't be much less. Thanks for reading my rambling but I guess what I am wondering if I should be afraid. Her cf doctor says with the techn. out there now and treatments she should beable to live a life like my other 2 but with no garentees.
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