New Member- mom of 2 kids with CF and author

LisaGreene · Nov 25, 2007

Greetings!
Okay, I'll stop lurking and say hi.

I look forward to getting to know you all. I discovered this board about 3 months ago and am just amazed by everything here. WOW!

My name is Lisa Greene and my husband & I have two kids with CF. Jacob is nine and our daughter Kasey is seven. They are both doing pretty good health-wise (in the big picture).

Jacob has had about 4 nasal surgeries for polyps and has pseudomonas on and off but doesn't currently have any symptoms from it so we are not "chasing the ghost" anymore with antibiotics until we have to. Kasey is about to have her very first nasal surgery this coming Thursday so that will be a stressful time- one never knows how a body will respond to the anesthesia- but we are confident that all will go well. She has already been practicing the nasal rinses with big brother who is teaching her all about it!

We currently live in N California but will soon be moving back to Seattle which is home for us (anybody here from Seattle?). My husband works for a homebuilder and they transferred us there due to a re-org. The home building industry is a mess and we are so lucky to even have a job! The medical insurance is the issue that scares us the most about losing/ changing a job (as you can relate to!).

I am blessed to stay at home with the kids and now that they are in school full time, I have been able to focus on writing a new Love and Logic book (with Foster Cline MD, a well-known child psychiatrist) called "Parenting Children with Health Issues" (what else??!). Of course there's lots of info about CF in this book so check it out on amazon or our website: www.ParentingChildrenWithHealthIssues.com. It is also in many public libraries, hospitals and I hope, someday, in all of the CF clinics (some already have it). We've had some great book reviews.

If you have any ideas about how to get the word out about this book, let me know. Marketing a book is very hard work (as you other authors on this board know only too well!). CFRI has been a big help with this as have CF Pharmacy, Stanford Medical Library and many hospitals and CF clinics around the country. We also do workshops at hospitals and CF clinic family days. It is so very rewarding to connect with CF families who are all in the same boat as we are. Parenting our CF kids can be really tough sometimes!

I hope your holidays are filled with good cheer and that 2008 brings you healthy, happy families.

Lisa Greene
Mom of 2 kids with CF and author
www.ParentingChildrenWithHealthIssues.com

LisaGreene · Nov 25, 2007

Greetings!
Okay, I'll stop lurking and say hi.

I look forward to getting to know you all. I discovered this board about 3 months ago and am just amazed by everything here. WOW!

My name is Lisa Greene and my husband & I have two kids with CF. Jacob is nine and our daughter Kasey is seven. They are both doing pretty good health-wise (in the big picture).

Jacob has had about 4 nasal surgeries for polyps and has pseudomonas on and off but doesn't currently have any symptoms from it so we are not "chasing the ghost" anymore with antibiotics until we have to. Kasey is about to have her very first nasal surgery this coming Thursday so that will be a stressful time- one never knows how a body will respond to the anesthesia- but we are confident that all will go well. She has already been practicing the nasal rinses with big brother who is teaching her all about it!

We currently live in N California but will soon be moving back to Seattle which is home for us (anybody here from Seattle?). My husband works for a homebuilder and they transferred us there due to a re-org. The home building industry is a mess and we are so lucky to even have a job! The medical insurance is the issue that scares us the most about losing/ changing a job (as you can relate to!).

I am blessed to stay at home with the kids and now that they are in school full time, I have been able to focus on writing a new Love and Logic book (with Foster Cline MD, a well-known child psychiatrist) called "Parenting Children with Health Issues" (what else??!). Of course there's lots of info about CF in this book so check it out on amazon or our website: www.ParentingChildrenWithHealthIssues.com. It is also in many public libraries, hospitals and I hope, someday, in all of the CF clinics (some already have it). We've had some great book reviews.

If you have any ideas about how to get the word out about this book, let me know. Marketing a book is very hard work (as you other authors on this board know only too well!). CFRI has been a big help with this as have CF Pharmacy, Stanford Medical Library and many hospitals and CF clinics around the country. We also do workshops at hospitals and CF clinic family days. It is so very rewarding to connect with CF families who are all in the same boat as we are. Parenting our CF kids can be really tough sometimes!

I hope your holidays are filled with good cheer and that 2008 brings you healthy, happy families.

Lisa Greene
Mom of 2 kids with CF and author
www.ParentingChildrenWithHealthIssues.com

LisaGreene · Nov 25, 2007

Greetings!
Okay, I'll stop lurking and say hi.

I look forward to getting to know you all. I discovered this board about 3 months ago and am just amazed by everything here. WOW!

My name is Lisa Greene and my husband & I have two kids with CF. Jacob is nine and our daughter Kasey is seven. They are both doing pretty good health-wise (in the big picture).

Jacob has had about 4 nasal surgeries for polyps and has pseudomonas on and off but doesn't currently have any symptoms from it so we are not "chasing the ghost" anymore with antibiotics until we have to. Kasey is about to have her very first nasal surgery this coming Thursday so that will be a stressful time- one never knows how a body will respond to the anesthesia- but we are confident that all will go well. She has already been practicing the nasal rinses with big brother who is teaching her all about it!

We currently live in N California but will soon be moving back to Seattle which is home for us (anybody here from Seattle?). My husband works for a homebuilder and they transferred us there due to a re-org. The home building industry is a mess and we are so lucky to even have a job! The medical insurance is the issue that scares us the most about losing/ changing a job (as you can relate to!).

I am blessed to stay at home with the kids and now that they are in school full time, I have been able to focus on writing a new Love and Logic book (with Foster Cline MD, a well-known child psychiatrist) called "Parenting Children with Health Issues" (what else??!). Of course there's lots of info about CF in this book so check it out on amazon or our website: www.ParentingChildrenWithHealthIssues.com. It is also in many public libraries, hospitals and I hope, someday, in all of the CF clinics (some already have it). We've had some great book reviews.

If you have any ideas about how to get the word out about this book, let me know. Marketing a book is very hard work (as you other authors on this board know only too well!). CFRI has been a big help with this as have CF Pharmacy, Stanford Medical Library and many hospitals and CF clinics around the country. We also do workshops at hospitals and CF clinic family days. It is so very rewarding to connect with CF families who are all in the same boat as we are. Parenting our CF kids can be really tough sometimes!

I hope your holidays are filled with good cheer and that 2008 brings you healthy, happy families.

Lisa Greene
Mom of 2 kids with CF and author
www.ParentingChildrenWithHealthIssues.com

LisaGreene · Nov 25, 2007

Greetings!
Okay, I'll stop lurking and say hi.

I look forward to getting to know you all. I discovered this board about 3 months ago and am just amazed by everything here. WOW!

My name is Lisa Greene and my husband & I have two kids with CF. Jacob is nine and our daughter Kasey is seven. They are both doing pretty good health-wise (in the big picture).

Jacob has had about 4 nasal surgeries for polyps and has pseudomonas on and off but doesn't currently have any symptoms from it so we are not "chasing the ghost" anymore with antibiotics until we have to. Kasey is about to have her very first nasal surgery this coming Thursday so that will be a stressful time- one never knows how a body will respond to the anesthesia- but we are confident that all will go well. She has already been practicing the nasal rinses with big brother who is teaching her all about it!

We currently live in N California but will soon be moving back to Seattle which is home for us (anybody here from Seattle?). My husband works for a homebuilder and they transferred us there due to a re-org. The home building industry is a mess and we are so lucky to even have a job! The medical insurance is the issue that scares us the most about losing/ changing a job (as you can relate to!).

I am blessed to stay at home with the kids and now that they are in school full time, I have been able to focus on writing a new Love and Logic book (with Foster Cline MD, a well-known child psychiatrist) called "Parenting Children with Health Issues" (what else??!). Of course there's lots of info about CF in this book so check it out on amazon or our website: www.ParentingChildrenWithHealthIssues.com. It is also in many public libraries, hospitals and I hope, someday, in all of the CF clinics (some already have it). We've had some great book reviews.

If you have any ideas about how to get the word out about this book, let me know. Marketing a book is very hard work (as you other authors on this board know only too well!). CFRI has been a big help with this as have CF Pharmacy, Stanford Medical Library and many hospitals and CF clinics around the country. We also do workshops at hospitals and CF clinic family days. It is so very rewarding to connect with CF families who are all in the same boat as we are. Parenting our CF kids can be really tough sometimes!

I hope your holidays are filled with good cheer and that 2008 brings you healthy, happy families.

Lisa Greene
Mom of 2 kids with CF and author
www.ParentingChildrenWithHealthIssues.com

LisaGreene · Nov 25, 2007

Greetings!
Okay, I'll stop lurking and say hi.

I look forward to getting to know you all. I discovered this board about 3 months ago and am just amazed by everything here. WOW!

My name is Lisa Greene and my husband & I have two kids with CF. Jacob is nine and our daughter Kasey is seven. They are both doing pretty good health-wise (in the big picture).

Jacob has had about 4 nasal surgeries for polyps and has pseudomonas on and off but doesn't currently have any symptoms from it so we are not "chasing the ghost" anymore with antibiotics until we have to. Kasey is about to have her very first nasal surgery this coming Thursday so that will be a stressful time- one never knows how a body will respond to the anesthesia- but we are confident that all will go well. She has already been practicing the nasal rinses with big brother who is teaching her all about it!

We currently live in N California but will soon be moving back to Seattle which is home for us (anybody here from Seattle?). My husband works for a homebuilder and they transferred us there due to a re-org. The home building industry is a mess and we are so lucky to even have a job! The medical insurance is the issue that scares us the most about losing/ changing a job (as you can relate to!).

I am blessed to stay at home with the kids and now that they are in school full time, I have been able to focus on writing a new Love and Logic book (with Foster Cline MD, a well-known child psychiatrist) called "Parenting Children with Health Issues" (what else??!). Of course there's lots of info about CF in this book so check it out on amazon or our website: www.ParentingChildrenWithHealthIssues.com. It is also in many public libraries, hospitals and I hope, someday, in all of the CF clinics (some already have it). We've had some great book reviews.

If you have any ideas about how to get the word out about this book, let me know. Marketing a book is very hard work (as you other authors on this board know only too well!). CFRI has been a big help with this as have CF Pharmacy, Stanford Medical Library and many hospitals and CF clinics around the country. We also do workshops at hospitals and CF clinic family days. It is so very rewarding to connect with CF families who are all in the same boat as we are. Parenting our CF kids can be really tough sometimes!

I hope your holidays are filled with good cheer and that 2008 brings you healthy, happy families.

Lisa Greene
Mom of 2 kids with CF and author
www.ParentingChildrenWithHealthIssues.com

AbbysMama · Nov 25, 2007

Lisa,

Your current publicist through the Love and Logic website has set you up very well with a comprehensive media kit. I tried to help CFAngel get the word out about her book series, but because of medical crisies in my extended family (parents, siblings, etc. unrelated to CF) I was unable to follow through or complete any help I offered her. I had to take a hiatus from my PR/Marketing business for about a year to clear things up.

The only suggestion I might make is for those of you on this forum who have written books with a CF theme to come together and present the books to major media outlets as a combined force. Sometime several voices together can get you on TV instead of just one single voice. The fact that so many people care about CF and what it does to families and the person with it makes for a wonderful angle. It would give major media outlets such as FOX, NBC, CBS, ABC to see the impact that CF has not just on the person with the disease, but with all sort of issues (classmates, parents, extended family, siblings, etc.).

I know that each of you have different agendas (I don't mean that in a negative way) for the monies earned from the sale of your books. This combined effort that I suggest would be a platform to get you on at least one major network show together (Today, Oprah, etc.) and then you could go your separate ways as word gets out. This wouldn't be a "joined at the hip" forever thing.

I'm good with creating proposals and would be glad to help now that things have settled down. I cannot do much more than that right now, I'm afraid. Just let me know.

Emily

AbbysMama · Nov 25, 2007

Lisa,

Your current publicist through the Love and Logic website has set you up very well with a comprehensive media kit. I tried to help CFAngel get the word out about her book series, but because of medical crisies in my extended family (parents, siblings, etc. unrelated to CF) I was unable to follow through or complete any help I offered her. I had to take a hiatus from my PR/Marketing business for about a year to clear things up.

The only suggestion I might make is for those of you on this forum who have written books with a CF theme to come together and present the books to major media outlets as a combined force. Sometime several voices together can get you on TV instead of just one single voice. The fact that so many people care about CF and what it does to families and the person with it makes for a wonderful angle. It would give major media outlets such as FOX, NBC, CBS, ABC to see the impact that CF has not just on the person with the disease, but with all sort of issues (classmates, parents, extended family, siblings, etc.).

I know that each of you have different agendas (I don't mean that in a negative way) for the monies earned from the sale of your books. This combined effort that I suggest would be a platform to get you on at least one major network show together (Today, Oprah, etc.) and then you could go your separate ways as word gets out. This wouldn't be a "joined at the hip" forever thing.

I'm good with creating proposals and would be glad to help now that things have settled down. I cannot do much more than that right now, I'm afraid. Just let me know.

Emily

AbbysMama · Nov 25, 2007

Lisa,

Your current publicist through the Love and Logic website has set you up very well with a comprehensive media kit. I tried to help CFAngel get the word out about her book series, but because of medical crisies in my extended family (parents, siblings, etc. unrelated to CF) I was unable to follow through or complete any help I offered her. I had to take a hiatus from my PR/Marketing business for about a year to clear things up.

The only suggestion I might make is for those of you on this forum who have written books with a CF theme to come together and present the books to major media outlets as a combined force. Sometime several voices together can get you on TV instead of just one single voice. The fact that so many people care about CF and what it does to families and the person with it makes for a wonderful angle. It would give major media outlets such as FOX, NBC, CBS, ABC to see the impact that CF has not just on the person with the disease, but with all sort of issues (classmates, parents, extended family, siblings, etc.).

I know that each of you have different agendas (I don't mean that in a negative way) for the monies earned from the sale of your books. This combined effort that I suggest would be a platform to get you on at least one major network show together (Today, Oprah, etc.) and then you could go your separate ways as word gets out. This wouldn't be a "joined at the hip" forever thing.

I'm good with creating proposals and would be glad to help now that things have settled down. I cannot do much more than that right now, I'm afraid. Just let me know.

Emily

AbbysMama · Nov 25, 2007

Lisa,

Your current publicist through the Love and Logic website has set you up very well with a comprehensive media kit. I tried to help CFAngel get the word out about her book series, but because of medical crisies in my extended family (parents, siblings, etc. unrelated to CF) I was unable to follow through or complete any help I offered her. I had to take a hiatus from my PR/Marketing business for about a year to clear things up.

The only suggestion I might make is for those of you on this forum who have written books with a CF theme to come together and present the books to major media outlets as a combined force. Sometime several voices together can get you on TV instead of just one single voice. The fact that so many people care about CF and what it does to families and the person with it makes for a wonderful angle. It would give major media outlets such as FOX, NBC, CBS, ABC to see the impact that CF has not just on the person with the disease, but with all sort of issues (classmates, parents, extended family, siblings, etc.).

I know that each of you have different agendas (I don't mean that in a negative way) for the monies earned from the sale of your books. This combined effort that I suggest would be a platform to get you on at least one major network show together (Today, Oprah, etc.) and then you could go your separate ways as word gets out. This wouldn't be a "joined at the hip" forever thing.

I'm good with creating proposals and would be glad to help now that things have settled down. I cannot do much more than that right now, I'm afraid. Just let me know.

Emily

AbbysMama · Nov 25, 2007

Lisa,

Your current publicist through the Love and Logic website has set you up very well with a comprehensive media kit. I tried to help CFAngel get the word out about her book series, but because of medical crisies in my extended family (parents, siblings, etc. unrelated to CF) I was unable to follow through or complete any help I offered her. I had to take a hiatus from my PR/Marketing business for about a year to clear things up.

The only suggestion I might make is for those of you on this forum who have written books with a CF theme to come together and present the books to major media outlets as a combined force. Sometime several voices together can get you on TV instead of just one single voice. The fact that so many people care about CF and what it does to families and the person with it makes for a wonderful angle. It would give major media outlets such as FOX, NBC, CBS, ABC to see the impact that CF has not just on the person with the disease, but with all sort of issues (classmates, parents, extended family, siblings, etc.).

I know that each of you have different agendas (I don't mean that in a negative way) for the monies earned from the sale of your books. This combined effort that I suggest would be a platform to get you on at least one major network show together (Today, Oprah, etc.) and then you could go your separate ways as word gets out. This wouldn't be a "joined at the hip" forever thing.

I'm good with creating proposals and would be glad to help now that things have settled down. I cannot do much more than that right now, I'm afraid. Just let me know.

Emily

izemmom · Nov 25, 2007

Welcome! Glad you're no longer a lurker. I hope you will join us. I'm sure we have much to learn from each other.

I have been a BIG fan of the Love and Logic series for a long time. As a teacher and a parent, I employ the philosophies on a regular basis and at least one of the books is open on my desk, nightstand or kitchen table at any given time!!!!

I attended a Love and Logic seminar a bout a year ago and asked if any "tweaking" was suggested for kids with chronic health issues, so I am very excited to hear that you've worked on this book. Can't wait to add it to my collection. Let us know ho w copies can be ordered.

Sorry, I'm no help when it comes to getting the word out...except after I've read it I"ll be talkig it up to all my friends who have kids with Medical Issues.

Congratulations, and once again, welcome.

izemmom · Nov 25, 2007

Welcome! Glad you're no longer a lurker. I hope you will join us. I'm sure we have much to learn from each other.

I have been a BIG fan of the Love and Logic series for a long time. As a teacher and a parent, I employ the philosophies on a regular basis and at least one of the books is open on my desk, nightstand or kitchen table at any given time!!!!

I attended a Love and Logic seminar a bout a year ago and asked if any "tweaking" was suggested for kids with chronic health issues, so I am very excited to hear that you've worked on this book. Can't wait to add it to my collection. Let us know ho w copies can be ordered.

Sorry, I'm no help when it comes to getting the word out...except after I've read it I"ll be talkig it up to all my friends who have kids with Medical Issues.

Congratulations, and once again, welcome.

izemmom · Nov 25, 2007

Welcome! Glad you're no longer a lurker. I hope you will join us. I'm sure we have much to learn from each other.

I have been a BIG fan of the Love and Logic series for a long time. As a teacher and a parent, I employ the philosophies on a regular basis and at least one of the books is open on my desk, nightstand or kitchen table at any given time!!!!

I attended a Love and Logic seminar a bout a year ago and asked if any "tweaking" was suggested for kids with chronic health issues, so I am very excited to hear that you've worked on this book. Can't wait to add it to my collection. Let us know ho w copies can be ordered.

Sorry, I'm no help when it comes to getting the word out...except after I've read it I"ll be talkig it up to all my friends who have kids with Medical Issues.

Congratulations, and once again, welcome.

izemmom · Nov 25, 2007

Welcome! Glad you're no longer a lurker. I hope you will join us. I'm sure we have much to learn from each other.

I have been a BIG fan of the Love and Logic series for a long time. As a teacher and a parent, I employ the philosophies on a regular basis and at least one of the books is open on my desk, nightstand or kitchen table at any given time!!!!

I attended a Love and Logic seminar a bout a year ago and asked if any "tweaking" was suggested for kids with chronic health issues, so I am very excited to hear that you've worked on this book. Can't wait to add it to my collection. Let us know ho w copies can be ordered.

Sorry, I'm no help when it comes to getting the word out...except after I've read it I"ll be talkig it up to all my friends who have kids with Medical Issues.

Congratulations, and once again, welcome.

izemmom · Nov 25, 2007

Welcome! Glad you're no longer a lurker. I hope you will join us. I'm sure we have much to learn from each other.

I have been a BIG fan of the Love and Logic series for a long time. As a teacher and a parent, I employ the philosophies on a regular basis and at least one of the books is open on my desk, nightstand or kitchen table at any given time!!!!

I attended a Love and Logic seminar a bout a year ago and asked if any "tweaking" was suggested for kids with chronic health issues, so I am very excited to hear that you've worked on this book. Can't wait to add it to my collection. Let us know ho w copies can be ordered.

Sorry, I'm no help when it comes to getting the word out...except after I've read it I"ll be talkig it up to all my friends who have kids with Medical Issues.

Congratulations, and once again, welcome.

LisaGreene · Nov 26, 2007