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ncyra399
Guest
This is my first time posting to this site, so I'm hoping I can find it helpful. I was diagnosed when I was 6 months old and am now 32. My CF has progressed quite a bit in the last few years and has become a lot worse. I was always very "mild" if you will and was able to hide my disease from most if I wanted to. I'm not allowed to do that anymore. This last hospital stay landed me with pneumonia. It gave me portable oxygen that I have to wear anytime I'm not sitting (so all the time), I got CFRD which I've never had before, my doctor gave me a feeding tube b/c i'm not gaining enough wait to satisfy the CF guidelines and there's been talk about transplant. All of this is very new to me as I've always been very independent and very mild. I'm wondering if there is anyone else out there that is dealing with this issues that I could talk to. My feeding tube isn't working and because I was bitter about it in the first place, it's disfunction isn't making me any happier! If I could talk to someone who is dealing with some of the same things, I think it would be helpful. Thank you!
Nicki
Nicki