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News Publication of the CFF--Commitment

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purplemartin

New member
Not sure if this has been posted recently but I just received the Commitment News Publication of the CFF in the mail..............................well I'm happy to report that they are going to release medical outcomes data for all 117 care centers public for the first time at the CFF website. It doesn't say a date but is printed in black and white! It says the info will include life expectancy, nutritional status, lung function, % of patients screened for CFRD, and % of patients who complete the recommended four visits a year, one respiratory culture, and two pulmonary function test.

Again, sorry if this has already been posted!
 
P

purplemartin

New member
Not sure if this has been posted recently but I just received the Commitment News Publication of the CFF in the mail..............................well I'm happy to report that they are going to release medical outcomes data for all 117 care centers public for the first time at the CFF website. It doesn't say a date but is printed in black and white! It says the info will include life expectancy, nutritional status, lung function, % of patients screened for CFRD, and % of patients who complete the recommended four visits a year, one respiratory culture, and two pulmonary function test.

Again, sorry if this has already been posted!
 
P

purplemartin

New member
Not sure if this has been posted recently but I just received the Commitment News Publication of the CFF in the mail..............................well I'm happy to report that they are going to release medical outcomes data for all 117 care centers public for the first time at the CFF website. It doesn't say a date but is printed in black and white! It says the info will include life expectancy, nutritional status, lung function, % of patients screened for CFRD, and % of patients who complete the recommended four visits a year, one respiratory culture, and two pulmonary function test.

Again, sorry if this has already been posted!
 
J

Jane

Digital opinion leader
I'm so glad this info is being published. I've been curious.

Thanks for giving us the heads up.
 
J

Jane

Digital opinion leader
I'm so glad this info is being published. I've been curious.

Thanks for giving us the heads up.
 
J

Jane

Digital opinion leader
I'm so glad this info is being published. I've been curious.

Thanks for giving us the heads up.
 
A

anonymous

New member
YEA! I know my children's clinic has been making changes for the better this year because of this info that is being released.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
A

anonymous

New member
YEA! I know my children's clinic has been making changes for the better this year because of this info that is being released.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
A

anonymous

New member
YEA! I know my children's clinic has been making changes for the better this year because of this info that is being released.
Sharon, mom of Sophia, 5 and Jack, 3 both with cf
 
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