What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Oregano Oil

anonymous

New member
From what age would you say it was safe 2 neb oregano oil?

Charlotte<img src="i/expressions/face-icon-small-confused.gif" border="0">
 

Faust

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

From what age would you say it was safe 2 neb oregano oil?



Charlotte<img src=""></end quote></div>

That is a very subjective question, for many reasons. I *NEVER* recommend children neb the substance, because who knows what their background and personal health is?

If you get VERY young, their body is still forming, especially the lungs, so I *REALLY* hate to recommend when to do anything like this. Even if they are downs kids. To me, unless you are a fairly healthy adult, I won't recommend how you could use any substance to help you out.


But to be honest, on the other side, if your daughter/son is dealing with a crappy existance, and conventional science can't offer anything new to possibly help out, then, and only then will I say "give it a try" to the others, regarding younger peoples lungs.

It will alsways come down to a "Well I'm in a sh***y place, I dont know" I will save you some headache, the FDA and the DEA are composed of total morons. Not like I am trying to say otherwise, but I helped train atleast one person, who ended up running from the FBI. The FBI is very swift alright...He hid in an upper cheese factory.
 

Faust

New member
Anyways, a secondary answer to your querry...if your child has medium lung function, do your own research...Find out why they have that they have, and look VERY deep into treatments, and understand why things are the way the are.
 
L

littlemisssilly

Guest
Hi there,<br>
<br>
I'm not sure how old you are Charlotte but what I do know is that
you are brave for asking such a question because this is a hot
topic on this forum with many differing opinions as far as doing OO
via the neb goes. I'm not sure if you've had a chance to view some
of the recent "debates" about nebbing OO.<br>
<br>
I personally don't think it's a good idea doing OO via the neb at
any age *she says whilst stepping into the lions' den* regardless
if it's water based or not. Maybe you could try OO orally if you
haven't done so already?
 

anonymous

New member
Hi,

I'm 33 yrs old, my youngest daughter has CF -she is 2 yrs old. I don't know much at all about nebbing oregano oil - just really curious that's all. At the mo my daughter nebs colomycin mixed with 2.5 ml saline twice a day - she has cultured Pseudo a few times.

Charlotte<img src="i/expressions/face-icon-small-shocked.gif" border="0">
 
L

littlemisssilly

Guest
Hi Charlotte,<br>
<br>
Oops, I wrongly assumed that it was for yourself, sorry. <br>
<br>
I personally am not against complimentary medicine, in fact I'm
giving OO a go at the moment myself (only two drops once a day
under tongue for a few weeks) but I have great misgivings about it
being used via the neb.<br>
<br>
There is quite a bit of research available about the antimicrobial
and anti fungal properties that OO has but the clinical trials have
been performed on sole colonies of bacteria in a strict
clinical setting and on mice who were given very large quantities
of OO. As far as I know, I don't think any studies have been
performed on humans, especially on people with CF who are already
prone to liver disease / damage ( research suggests that OO may be
toxic to the liver&nbsp<img src="i/expressions/face-icon-small-wink.gif" border="0">.<br>
<br>
There is also some disagreement amongst naturopaths about whether
OO should even come in contact with mouth mucosa and some even
recommend not to use it internally at all, so it's a matter of
weighing the pros and cons and coming to your own decision like I
and a lot of people on this forum have done so.<br>
<br>
<br>
To be honest I wouldn't even recommend you give your daughter any
OO, oral or otherwise, unless her physician wholeheartedly
agrees, she's just too young. I'm sure you already know, all
medicine dosages whether they be 'natural' or not need to be
adjusted according to the child's weight, age etc because of the
huge potential for an adverse reaction. Hope this info helps you a
bit, there's lots of research out there if you're interested. Also,
hope your daughter gets better soon.
 
L

littlemisssilly

Guest
Me again,<br>
<br>
I have no idea why that smiley face popped up when I said that OO
could harm the liver... please ignore it!
 

damiensmom

New member
I rub it into my sons heels everynight. It helps the immune system and he loves the foot rub. My opinion, oral or external only for children.
 

anonymous

New member
hi. have you looked into glutathione? This is being used on young kids and is being studied by the CFF because it is helping people. However, it is most helpful in those with moderate lung damage.

google valerie hudson, cystic fibrosis, glutathione and utah valley institute for cystic fibrosis.....

i think that would be a safer alternative for kids with cf. all it does is replace the main anti-oxidant that people in cf are lacking....it cannot get to the outside of the cell wall due to the cftr defect.

i know many people who put infants on glutathione and have had amazing results. and glutathione is not toxic...

read everything on the utah valley website...especially glutathione stories and the message board

mandy
 

damiensmom

New member
Charlotte, Damien is 7 months old. We do 5 treatments a day 4 xopenax and pulmazyme. Just thought I would throw that in.
 

anonymous

New member
Hi Charlotte-

Just making sure that you are aware that you need to use Water Soluble oil. I didn't realize that when I first heard about the oil use. Using regular oil can cause build up in the lungs.
Just checking cause like I said-I didn't realize that, and might have made the mistake if no one told me.
Best to you!
 

anonymous

New member
I think you noly need to use the water soluble oo, when you are nebbing it. Not for external use.
Sean, correct me if i'm wrong.
 

anonymous

New member
Hi Charlotte,

I was wondering how the 00 is going. Also wich one do you use snd have you noticed a diff since using it?

Thanks
 

Faust

New member
Yeah I tell everyone to use the water soluble stuff (H2 Orega). I used the regular stuff neb wise for maybe 3 months (just a guess time wise), and I felt fine and nothing negative happened. After someone informed me that they make a water soluble form of it, that's when I switched to that instead. Better to be safe than sorry. But considering how good the benefits were for me while on the regular stuff, and if there weren't any water soluble stuff available, if it came down to not using any or using the regular stuff, i'd still use the regular stuff.
 

anonymous

New member
Sean:

I have found conflicting info on using h2 orega while preganant. I am still early in pregnancy so i did not sign in. What do you think about it? I recently stopped it and now i have a cold. Have you seen any info that may help me to make a decision on it? My docs do not know anything about the substance so they could not give me a yes or no on it. I saw this sheet online that had a list of herbs to avoid and oregano was on it. I never know what to think of some sights. I am just not sure if it is better to continue with it or to leave off it until later on. It was helping me out with my lungs and my sinuses were doing better too. Now, I have stopped it for about 3 days now and have a cold. Any ideas. I know it would just be an opinion you would offer...and that would be appreciated.
 

Faust

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

Sean:



I have found conflicting info on using h2 orega while preganant. I am still early in pregnancy so i did not sign in. What do you think about it? I recently stopped it and now i have a cold. Have you seen any info that may help me to make a decision on it? My docs do not know anything about the substance so they could not give me a yes or no on it. I saw this sheet online that had a list of herbs to avoid and oregano was on it. I never know what to think of some sights. I am just not sure if it is better to continue with it or to leave off it until later on. It was helping me out with my lungs and my sinuses were doing better too. Now, I have stopped it for about 3 days now and have a cold. Any ideas. I know it would just be an opinion you would offer...and that would be appreciated.</end quote></div>


Well here is what I think on the matter. Oregano has been noted by some herbalists as having "abortive properties", and the reason for that, is due to it's slight blood thinning properties. It's blood thinning properties has been compared to aspirin, in a typical "normal" dose (i'm assuming the doseage on the bottle, which I believe is 5 or more drops daily). I'm not a gyno or an obstetrician, so my knowledge of the female reproductive system is on a highschool and collegiate level, but from what I understand, having the uterus and placenta with a strong antiplatelet aspect present (blood thinner, could be anything) in the early stages of carrying a fetus, could theorhetically bring force a chance of miscarriage. As I said before, if this is possible due to blood thining, it could also happen with anything else that is commonly consumed that is known to thin blood, like aspirin, ibuprofen, etc etc. I'm not sure if the opposite is also true, which is fairly heavy doses of vitamin K (coagulant), if that might influence the chance of miscarriage or not.


That all being said, from the research I have looked through, I haven't noticed any strong reason to believe that responsible use of the oil in the female body would heavily influence abortive actions within the body. You could use google to get a ton of information, I just googled oregano oil and the word "abortive" and got some good results.

Here is some research that I found as one of the first hits (PDF format):


<a target=_blank class=ftalternatingbarlinklarge href="http://www.biomed.cas.cz/physiolres/pdf/prepress/929.pdf
">http://www.biomed.cas.cz/physi.../pdf/prepress/929.pdf
</a>

You will note in that research that several different plant essential oils were studied, all with varying results. Another aspect to note when it comes to essential oil administration to vivo models (animals, mostly always rats) is the massive levels that they administer to them. Considering their size, they give them rediculously high levels of the substance. I have no idea what you could compare it to in a human model, but it would be a tremendous amount. An amount you would never put into your body in months or years. Another aspect to look at, is that these are rats. Rats are generally omnivores, and of course mammals, and that is about all they have in common with us. Pigs would be better models for any essential oil research, and some have been used in essential oil research, with more favorable results.


I just glanced through the research that I linked, but their general findings is that oregano, and less so thyme essential oils, didn't have any apparent negative impacts upon rat embryos (the main ingredient in oregano oil is carvacrol). Here is some information on Carvacrol: <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Carvacrol
">http://en.wikipedia.org/wiki/Carvacrol
</a>

Here is a section that I copied from the research conclusion I linked:


The principal components of oregano and thyme EOs are thymol and carvacrol. In oregano EO they represent around 78-82 % of the total oil (Botsoglou et al. 2002). Besides the known mostly antioxidative properties of both plant species, oregano is also used as a natural feed additive supporting growth and reproductive performance. Oregano has been reported to increase the farrowing rate and decrease the stillbirth rate in sows (Allan and Bilkei 2005). However with our experimental design we found no significant changes due to oregano or thyme EOs in preimplantation development.
In conclusion, our results show that no one of the examined essential oils positively influenced mouse preimplantation embryo growth and development after their addition to the maternal diet. Some of them negatively influenced embryonal growth and viability. One of the possible reasons for this could be the relatively high concentration of administered EOs, but in any case the used concentrations correspond well with the generally recommended doses for prophylaxis in animal husbandry. On the other hand the positive effects of essential oils might be better evident in stressful conditions such as infection or oxidative stress.


All that being said, while they found no obvious threat with oregano oil on rats with regards to their embryos, what I said before can be said conversely: We aren't rats. I would be willing to bet a large amount of money on that you and your child would be fine, just given the data provided and what we know about the oil. But to be on the safe side, if it were me, I would probably put off the oregano oil untill your child is well anchored in your system (4-5 months?), where anything that has an antiplatelet property (oregano oil, aspirin, ibuprofen, etc etc), or even a coagulant property (vitamin K, etc) couldn't possibly influence your pregnancy.

The problem is, you will probably have the regular chronic sickies associated with CF, and being off of oregano oil. Oregano oil is absolutely amazing with it's antiinflamatory, antioxidative, and antimicrobial properties. All of that is well documented with research. The problem is, regarding pregnancy, because it is such a touchy thing and you could even miscarry for no apparent reason at all, you want to limit anything other than light exercise and a healthy diet to make sure your baby is well anchored in your system. To play devils advocate, you can say the same thing for many medicines and substances, including common CF drugs.

Collistin alone states it has not been tested to see if it has any carcinogenic or mutative properties. So if you are early term pregnant and doing collistin, you could possibly be harming your child. I would personally get rid of any substances medication or supplement wise during the very critical months of gestation for your fetus. Then look into using oregano oil. I seriously don't think it could cause you any real problems, but it's better to be safe than sorry.



BTW, I have been able to keep this sickness at bay with the aggressive use of the vest and oregano oil. It started in my sinuses, then started to settle in my lungs. I've gotten a good deal of stuff up due to it being thinned and light in color mostly. My nose is now generally clear, and I only have slight amounts of congestion left. I can guarantee you that if it wasn't for me using the oil neb wise and sublingually, I would have been VERY sick and more than likely hospital bound...Right when I accepted a new job. All the relunctant people can keep looking for negative aspects regarding the oil, but i'm still living proof of it's abilities to greatly help us with our CF symptoms.
 

JazzysMom

New member
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>SeanDavis</b></i>























All the relunctant people can keep looking for negative aspects regarding the oil, but i'm still living proof of it's abilities to greatly help us with our CF symptoms.</end quote></div>









To be fair Sean.....even tho I am intrigued by your results from using OO, I do look at the negative aspects. Just as you look at the positive. As you have said in other posts....let us judge for ourselves. Well knowing the possibilites from what you have experienced as well as researched I still choose to be reluctant. Maybe I am a fool or maybe I am not. Maybe I will change my mind or maybe I wont. As I also have previously said I hope that you keep getting the great benefits from it!
 
Top