We have paper records in a file.
However, I am 95% done writing a desktop software program that allows you to track meds, treatments, surgeries, PFT's, weight, etc. I have designed to be a 1-stop program you can use to document your medical history.
We are using for our son and I'm doing some final polishing currently. My hope is to get some feedback then once I get it working provide <b>free</b> to anyone in the cf community.
It then can print out full notes, or I have a 2pg summary sheet that we are already using for our son. The couple of people who have seen it all seem to love it and it has had great reception from Dr's and nurses including all the hospital staff at our last stay. All have been surprised at the detail and abilty to see the 'whole' patient in one place.
If anyone is interested in seeing a sample and offering feedback, PM me and I'll try and get a copy to you as I would appreciate the input.