What's new
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Pain help

jmazz98

New member
i was put on celebex about 4 years ago after suffering for 2 yrs from severe pain in my joints which was accompanied by to types of rashes one was a red hive like rash that was sore to the touch and the other resembled a pimple but the heads didnt pop. The pain was so severe that i was unable to walk for a week at a time. After seeing 3 different docs and bioposeys of rashes and blood work they didnt come to any conclusion of what was wrong. so after tryin a few different meds the celebex worked and ive been takeing it since. However the last few months i have been experienceing the flareups again with the same symptoms but now i get swollen glands and my red blochs turn purple. If anyone has experienced this too and had a diagnosis i would appriciate any help you could provide cause im lost and so are my docs as to what is happening to me. This pain whatever it is is affecting my life more the the CF does.
 

jmazz98

New member
i was put on celebex about 4 years ago after suffering for 2 yrs from severe pain in my joints which was accompanied by to types of rashes one was a red hive like rash that was sore to the touch and the other resembled a pimple but the heads didnt pop. The pain was so severe that i was unable to walk for a week at a time. After seeing 3 different docs and bioposeys of rashes and blood work they didnt come to any conclusion of what was wrong. so after tryin a few different meds the celebex worked and ive been takeing it since. However the last few months i have been experienceing the flareups again with the same symptoms but now i get swollen glands and my red blochs turn purple. If anyone has experienced this too and had a diagnosis i would appriciate any help you could provide cause im lost and so are my docs as to what is happening to me. This pain whatever it is is affecting my life more the the CF does.
 

jmazz98

New member
i was put on celebex about 4 years ago after suffering for 2 yrs from severe pain in my joints which was accompanied by to types of rashes one was a red hive like rash that was sore to the touch and the other resembled a pimple but the heads didnt pop. The pain was so severe that i was unable to walk for a week at a time. After seeing 3 different docs and bioposeys of rashes and blood work they didnt come to any conclusion of what was wrong. so after tryin a few different meds the celebex worked and ive been takeing it since. However the last few months i have been experienceing the flareups again with the same symptoms but now i get swollen glands and my red blochs turn purple. If anyone has experienced this too and had a diagnosis i would appriciate any help you could provide cause im lost and so are my docs as to what is happening to me. This pain whatever it is is affecting my life more the the CF does.
 

EnergyGal

New member
I have no idea what could be wrong but I will mention some of the things to think about.

Could it be what you are eating? Many foods over time if they are not healthy kinds of foods can cause severe allergies within your body that can lead to painful joints and rashes.

As hard as it is to walk, I would try and make yourself move around. The less you move the harder it will be as time goes on.

If I had constant pain, I would go and visit an acupuncturist. Find a good one and if the place is booked up tell them it is an emergency and perhaps they could recommend someone to you that might come to your home. I have called acupuncturist in the past and there are some that would make a home visit.

Maybe you are allergic to one of your medications?

Emotional Freedom has helped people with pain because most pain is associated with emotions. <a target=_blank class=ftalternatingbarlinklarge href="http://emofree.com">http://emofree.com</a> and <a target=_blank class=ftalternatingbarlinklarge href="http://tapping.com">http://tapping.com</a>
 

EnergyGal

New member
I have no idea what could be wrong but I will mention some of the things to think about.

Could it be what you are eating? Many foods over time if they are not healthy kinds of foods can cause severe allergies within your body that can lead to painful joints and rashes.

As hard as it is to walk, I would try and make yourself move around. The less you move the harder it will be as time goes on.

If I had constant pain, I would go and visit an acupuncturist. Find a good one and if the place is booked up tell them it is an emergency and perhaps they could recommend someone to you that might come to your home. I have called acupuncturist in the past and there are some that would make a home visit.

Maybe you are allergic to one of your medications?

Emotional Freedom has helped people with pain because most pain is associated with emotions. <a target=_blank class=ftalternatingbarlinklarge href="http://emofree.com">http://emofree.com</a> and <a target=_blank class=ftalternatingbarlinklarge href="http://tapping.com">http://tapping.com</a>
 

EnergyGal

New member
I have no idea what could be wrong but I will mention some of the things to think about.

Could it be what you are eating? Many foods over time if they are not healthy kinds of foods can cause severe allergies within your body that can lead to painful joints and rashes.

As hard as it is to walk, I would try and make yourself move around. The less you move the harder it will be as time goes on.

If I had constant pain, I would go and visit an acupuncturist. Find a good one and if the place is booked up tell them it is an emergency and perhaps they could recommend someone to you that might come to your home. I have called acupuncturist in the past and there are some that would make a home visit.

Maybe you are allergic to one of your medications?

Emotional Freedom has helped people with pain because most pain is associated with emotions. <a target=_blank class=ftalternatingbarlinklarge href="http://emofree.com">http://emofree.com</a> and <a target=_blank class=ftalternatingbarlinklarge href="http://tapping.com">http://tapping.com</a>
 

2005CFmom

Super Moderator
<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=932&highlight_key=y&keyword1=arthritis">http://forums.cysticfibrosis.c...y=y&keyword1=arthritis</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=6838&highlight_key=y&keyword1=arthritis">http://forums.cysticfibrosis.c...y=y&keyword1=arthritis</a>

Something similar to this has been talked about before. I listed a couple of previous topics (if the links work). It appears that there have been a few different diagnosis of similar symptoms, but reading through these might give you somewhere to start.

My daughter has had one episode of joint swelling/pain and a hive like rash. But does not have any kind of diagnosis yet.

Hopefully you can find some answers.
 

2005CFmom

Super Moderator
<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=932&highlight_key=y&keyword1=arthritis">http://forums.cysticfibrosis.c...y=y&keyword1=arthritis</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=6838&highlight_key=y&keyword1=arthritis">http://forums.cysticfibrosis.c...y=y&keyword1=arthritis</a>

Something similar to this has been talked about before. I listed a couple of previous topics (if the links work). It appears that there have been a few different diagnosis of similar symptoms, but reading through these might give you somewhere to start.

My daughter has had one episode of joint swelling/pain and a hive like rash. But does not have any kind of diagnosis yet.

Hopefully you can find some answers.
 

2005CFmom

Super Moderator
<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=932&highlight_key=y&keyword1=arthritis">http://forums.cysticfibrosis.c...y=y&keyword1=arthritis</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=5&threadid=6838&highlight_key=y&keyword1=arthritis">http://forums.cysticfibrosis.c...y=y&keyword1=arthritis</a>

Something similar to this has been talked about before. I listed a couple of previous topics (if the links work). It appears that there have been a few different diagnosis of similar symptoms, but reading through these might give you somewhere to start.

My daughter has had one episode of joint swelling/pain and a hive like rash. But does not have any kind of diagnosis yet.

Hopefully you can find some answers.
 

blueindian74

New member
Hi, I could be way off and I am by no means a professional, but joint pain and rash can be symptoms of Lupus. I only mention this because I was recently diagnosed (there isn't one specific diagnostic test but by process of elimination... high levels of ANA, medical history) and my symptoms were severe joint pain, fatigue and weird rashes... and I take Celebrex. Just an idea...
http://www.lupus.org/education/diagnosis.html
 

blueindian74

New member
Hi, I could be way off and I am by no means a professional, but joint pain and rash can be symptoms of Lupus. I only mention this because I was recently diagnosed (there isn't one specific diagnostic test but by process of elimination... high levels of ANA, medical history) and my symptoms were severe joint pain, fatigue and weird rashes... and I take Celebrex. Just an idea...
http://www.lupus.org/education/diagnosis.html
 

blueindian74

New member
Hi, I could be way off and I am by no means a professional, but joint pain and rash can be symptoms of Lupus. I only mention this because I was recently diagnosed (there isn't one specific diagnostic test but by process of elimination... high levels of ANA, medical history) and my symptoms were severe joint pain, fatigue and weird rashes... and I take Celebrex. Just an idea...
http://www.lupus.org/education/diagnosis.html
 

jmazz98

New member
thanks to all who posted i appriciate the help however all of your ideas have been researched tested and proven to be of no help as of 3 days ago we made the decision to go on prednisone for 10 days to reduce the inflamation untill im able to get back into see rheumatology. The predisone is working well but has some serious side affects such as makeing my sugar extreamly high so i now have to cover with insulin. But its better then not being able to move and not have the ability to do my CPT and treatments. So thanks to you all again and if anymore ideas come up please feel free to post them im looking in any and all leads to get a handle on this
 

jmazz98

New member
thanks to all who posted i appriciate the help however all of your ideas have been researched tested and proven to be of no help as of 3 days ago we made the decision to go on prednisone for 10 days to reduce the inflamation untill im able to get back into see rheumatology. The predisone is working well but has some serious side affects such as makeing my sugar extreamly high so i now have to cover with insulin. But its better then not being able to move and not have the ability to do my CPT and treatments. So thanks to you all again and if anymore ideas come up please feel free to post them im looking in any and all leads to get a handle on this
 

jmazz98

New member
thanks to all who posted i appriciate the help however all of your ideas have been researched tested and proven to be of no help as of 3 days ago we made the decision to go on prednisone for 10 days to reduce the inflamation untill im able to get back into see rheumatology. The predisone is working well but has some serious side affects such as makeing my sugar extreamly high so i now have to cover with insulin. But its better then not being able to move and not have the ability to do my CPT and treatments. So thanks to you all again and if anymore ideas come up please feel free to post them im looking in any and all leads to get a handle on this
 
Top