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Possibly changing from pancreatic sufficient to insufficient

Alyssa

New member
My kids have always been pancreatic sufficient, so I have no experience (other than what I read on here) about bowel movements for those who are pancreatic insufficient.


My son has never had the fecal fat test done (his sister has and was fine) Since his diagnosis his weight has always been very good (a little on the high side if you ask me) and his issue was usually with constipation and large, hard bulky stools that he would only pass every 2-3 days, so we have treated with Miralax from time to time, but the assumption always has been he is pancreatic sufficient and had a terrible diet and eating habits. His primary source of food is pizza and salami...very high fat so one would think if he was insufficient w/o any enzymes we would notice right away.

In the last three months he has dropped 8 pounds.... BMI is still 26 so the clinic is not concerned.... he is still 188 pounds and 5' 11" so nobody is shocked and we think we can account for the weight loss because of cutting back on sweets (coke and cookies used to be a daily thing... now they are once or twice a month)

So after all this rambling..... I'm getting to my question.... his bowel movements are now not as large, and a little softer and once a day.... still brown in color, holding shape.... no "orange, oily or greasy" look as I've heard others on here describe....so I'm thinking he is just doing better with his diet and all is well.... is there anything else to look for if this might indicate a change in pancreatic function?

He is already scheduled for the 2 hour glucose tolerance test to answer the diabetes question....again we see no symptoms there, the doctor is just being thorough and has been insisting on this test for quite some time. He did not seem concerned about the weight loss at all.
 

Alyssa

New member
My kids have always been pancreatic sufficient, so I have no experience (other than what I read on here) about bowel movements for those who are pancreatic insufficient.


My son has never had the fecal fat test done (his sister has and was fine) Since his diagnosis his weight has always been very good (a little on the high side if you ask me) and his issue was usually with constipation and large, hard bulky stools that he would only pass every 2-3 days, so we have treated with Miralax from time to time, but the assumption always has been he is pancreatic sufficient and had a terrible diet and eating habits. His primary source of food is pizza and salami...very high fat so one would think if he was insufficient w/o any enzymes we would notice right away.

In the last three months he has dropped 8 pounds.... BMI is still 26 so the clinic is not concerned.... he is still 188 pounds and 5' 11" so nobody is shocked and we think we can account for the weight loss because of cutting back on sweets (coke and cookies used to be a daily thing... now they are once or twice a month)

So after all this rambling..... I'm getting to my question.... his bowel movements are now not as large, and a little softer and once a day.... still brown in color, holding shape.... no "orange, oily or greasy" look as I've heard others on here describe....so I'm thinking he is just doing better with his diet and all is well.... is there anything else to look for if this might indicate a change in pancreatic function?

He is already scheduled for the 2 hour glucose tolerance test to answer the diabetes question....again we see no symptoms there, the doctor is just being thorough and has been insisting on this test for quite some time. He did not seem concerned about the weight loss at all.
 

Alyssa

New member
My kids have always been pancreatic sufficient, so I have no experience (other than what I read on here) about bowel movements for those who are pancreatic insufficient.


My son has never had the fecal fat test done (his sister has and was fine) Since his diagnosis his weight has always been very good (a little on the high side if you ask me) and his issue was usually with constipation and large, hard bulky stools that he would only pass every 2-3 days, so we have treated with Miralax from time to time, but the assumption always has been he is pancreatic sufficient and had a terrible diet and eating habits. His primary source of food is pizza and salami...very high fat so one would think if he was insufficient w/o any enzymes we would notice right away.

In the last three months he has dropped 8 pounds.... BMI is still 26 so the clinic is not concerned.... he is still 188 pounds and 5' 11" so nobody is shocked and we think we can account for the weight loss because of cutting back on sweets (coke and cookies used to be a daily thing... now they are once or twice a month)

So after all this rambling..... I'm getting to my question.... his bowel movements are now not as large, and a little softer and once a day.... still brown in color, holding shape.... no "orange, oily or greasy" look as I've heard others on here describe....so I'm thinking he is just doing better with his diet and all is well.... is there anything else to look for if this might indicate a change in pancreatic function?

He is already scheduled for the 2 hour glucose tolerance test to answer the diabetes question....again we see no symptoms there, the doctor is just being thorough and has been insisting on this test for quite some time. He did not seem concerned about the weight loss at all.
 

Alyssa

New member
My kids have always been pancreatic sufficient, so I have no experience (other than what I read on here) about bowel movements for those who are pancreatic insufficient.


My son has never had the fecal fat test done (his sister has and was fine) Since his diagnosis his weight has always been very good (a little on the high side if you ask me) and his issue was usually with constipation and large, hard bulky stools that he would only pass every 2-3 days, so we have treated with Miralax from time to time, but the assumption always has been he is pancreatic sufficient and had a terrible diet and eating habits. His primary source of food is pizza and salami...very high fat so one would think if he was insufficient w/o any enzymes we would notice right away.

In the last three months he has dropped 8 pounds.... BMI is still 26 so the clinic is not concerned.... he is still 188 pounds and 5' 11" so nobody is shocked and we think we can account for the weight loss because of cutting back on sweets (coke and cookies used to be a daily thing... now they are once or twice a month)

So after all this rambling..... I'm getting to my question.... his bowel movements are now not as large, and a little softer and once a day.... still brown in color, holding shape.... no "orange, oily or greasy" look as I've heard others on here describe....so I'm thinking he is just doing better with his diet and all is well.... is there anything else to look for if this might indicate a change in pancreatic function?

He is already scheduled for the 2 hour glucose tolerance test to answer the diabetes question....again we see no symptoms there, the doctor is just being thorough and has been insisting on this test for quite some time. He did not seem concerned about the weight loss at all.
 

Alyssa

New member
My kids have always been pancreatic sufficient, so I have no experience (other than what I read on here) about bowel movements for those who are pancreatic insufficient.
<br />
<br />
<br />My son has never had the fecal fat test done (his sister has and was fine) Since his diagnosis his weight has always been very good (a little on the high side if you ask me) and his issue was usually with constipation and large, hard bulky stools that he would only pass every 2-3 days, so we have treated with Miralax from time to time, but the assumption always has been he is pancreatic sufficient and had a terrible diet and eating habits. His primary source of food is pizza and salami...very high fat so one would think if he was insufficient w/o any enzymes we would notice right away.
<br />
<br />In the last three months he has dropped 8 pounds.... BMI is still 26 so the clinic is not concerned.... he is still 188 pounds and 5' 11" so nobody is shocked and we think we can account for the weight loss because of cutting back on sweets (coke and cookies used to be a daily thing... now they are once or twice a month)
<br />
<br />So after all this rambling..... I'm getting to my question.... his bowel movements are now not as large, and a little softer and once a day.... still brown in color, holding shape.... no "orange, oily or greasy" look as I've heard others on here describe....so I'm thinking he is just doing better with his diet and all is well.... is there anything else to look for if this might indicate a change in pancreatic function?
<br />
<br />He is already scheduled for the 2 hour glucose tolerance test to answer the diabetes question....again we see no symptoms there, the doctor is just being thorough and has been insisting on this test for quite some time. He did not seem concerned about the weight loss at all.
 

AnD

New member
All I can offer you is my experience <img src="i/expressions/face-icon-small-wink.gif" border="0"> - but I have always been <i>mostly</i> PS (it gets a little worse as I get older though- I do have a problem with digesting really greasy foods, but it has to be something like a bloomin' onion from Outback to disrupt things...) and I have done the "cutting back on sugars, etc." several years before I had CFRD. I did lose a few pounds (about 10, from 5' 1' at 126 to 116-117 lbs.) but then I stabilized and didn't lose any more. I also felt better with less sugar in my diet.

Have they checked his vitamin levels? A couple of years ago, when I was doing fine weight wise, it still turned out that I was low in my vitamins.
I have started taking one Viokase enzyme with big meals when I take my vitamin, even though I don't "have to" to maintain my weight, I need it for the vitamins and to help my system out a bit. My vitamin numbers are fine now.

IMHO <img src="i/expressions/face-icon-small-wink.gif" border="0"> , if he doesn't lose any more and starts eating better, his "system" is still working well, he has no other symptoms of PI, and his OGTT comes back fine, then I wouldn't worry about it yet.
 

AnD

New member
All I can offer you is my experience <img src="i/expressions/face-icon-small-wink.gif" border="0"> - but I have always been <i>mostly</i> PS (it gets a little worse as I get older though- I do have a problem with digesting really greasy foods, but it has to be something like a bloomin' onion from Outback to disrupt things...) and I have done the "cutting back on sugars, etc." several years before I had CFRD. I did lose a few pounds (about 10, from 5' 1' at 126 to 116-117 lbs.) but then I stabilized and didn't lose any more. I also felt better with less sugar in my diet.

Have they checked his vitamin levels? A couple of years ago, when I was doing fine weight wise, it still turned out that I was low in my vitamins.
I have started taking one Viokase enzyme with big meals when I take my vitamin, even though I don't "have to" to maintain my weight, I need it for the vitamins and to help my system out a bit. My vitamin numbers are fine now.

IMHO <img src="i/expressions/face-icon-small-wink.gif" border="0"> , if he doesn't lose any more and starts eating better, his "system" is still working well, he has no other symptoms of PI, and his OGTT comes back fine, then I wouldn't worry about it yet.
 

AnD

New member
All I can offer you is my experience <img src="i/expressions/face-icon-small-wink.gif" border="0"> - but I have always been <i>mostly</i> PS (it gets a little worse as I get older though- I do have a problem with digesting really greasy foods, but it has to be something like a bloomin' onion from Outback to disrupt things...) and I have done the "cutting back on sugars, etc." several years before I had CFRD. I did lose a few pounds (about 10, from 5' 1' at 126 to 116-117 lbs.) but then I stabilized and didn't lose any more. I also felt better with less sugar in my diet.

Have they checked his vitamin levels? A couple of years ago, when I was doing fine weight wise, it still turned out that I was low in my vitamins.
I have started taking one Viokase enzyme with big meals when I take my vitamin, even though I don't "have to" to maintain my weight, I need it for the vitamins and to help my system out a bit. My vitamin numbers are fine now.

IMHO <img src="i/expressions/face-icon-small-wink.gif" border="0"> , if he doesn't lose any more and starts eating better, his "system" is still working well, he has no other symptoms of PI, and his OGTT comes back fine, then I wouldn't worry about it yet.
 

AnD

New member
All I can offer you is my experience <img src="i/expressions/face-icon-small-wink.gif" border="0"> - but I have always been <i>mostly</i> PS (it gets a little worse as I get older though- I do have a problem with digesting really greasy foods, but it has to be something like a bloomin' onion from Outback to disrupt things...) and I have done the "cutting back on sugars, etc." several years before I had CFRD. I did lose a few pounds (about 10, from 5' 1' at 126 to 116-117 lbs.) but then I stabilized and didn't lose any more. I also felt better with less sugar in my diet.

Have they checked his vitamin levels? A couple of years ago, when I was doing fine weight wise, it still turned out that I was low in my vitamins.
I have started taking one Viokase enzyme with big meals when I take my vitamin, even though I don't "have to" to maintain my weight, I need it for the vitamins and to help my system out a bit. My vitamin numbers are fine now.

IMHO <img src="i/expressions/face-icon-small-wink.gif" border="0"> , if he doesn't lose any more and starts eating better, his "system" is still working well, he has no other symptoms of PI, and his OGTT comes back fine, then I wouldn't worry about it yet.
 

AnD

New member
All I can offer you is my experience <img src="i/expressions/face-icon-small-wink.gif" border="0"> - but I have always been <i>mostly</i> PS (it gets a little worse as I get older though- I do have a problem with digesting really greasy foods, but it has to be something like a bloomin' onion from Outback to disrupt things...) and I have done the "cutting back on sugars, etc." several years before I had CFRD. I did lose a few pounds (about 10, from 5' 1' at 126 to 116-117 lbs.) but then I stabilized and didn't lose any more. I also felt better with less sugar in my diet.
<br />
<br /> Have they checked his vitamin levels? A couple of years ago, when I was doing fine weight wise, it still turned out that I was low in my vitamins.
<br />I have started taking one Viokase enzyme with big meals when I take my vitamin, even though I don't "have to" to maintain my weight, I need it for the vitamins and to help my system out a bit. My vitamin numbers are fine now.
<br />
<br />IMHO <img src="i/expressions/face-icon-small-wink.gif" border="0"> , if he doesn't lose any more and starts eating better, his "system" is still working well, he has no other symptoms of PI, and his OGTT comes back fine, then I wouldn't worry about it yet.
<br />
<br />
 

Alyssa

New member
Thanks,

Yes, his vitamins levels are just fine as far as I know... they tested them last July and again just the other day....I'm thinking that if he is loosing weight because he is loosing some pancreatic function then his stools might be looking more greasy, oily or orange... but I'm not sure if that only happens when a person is for sure insufficient AND does not take the right amount of enzymes or if they always look like that for everyone who is insufficient...so I guess my other question is.... what does a "normal" bowel movement look like for those who are insufficient either with or without the right amount of enzymes taken.
 

Alyssa

New member
Thanks,

Yes, his vitamins levels are just fine as far as I know... they tested them last July and again just the other day....I'm thinking that if he is loosing weight because he is loosing some pancreatic function then his stools might be looking more greasy, oily or orange... but I'm not sure if that only happens when a person is for sure insufficient AND does not take the right amount of enzymes or if they always look like that for everyone who is insufficient...so I guess my other question is.... what does a "normal" bowel movement look like for those who are insufficient either with or without the right amount of enzymes taken.
 

Alyssa

New member
Thanks,

Yes, his vitamins levels are just fine as far as I know... they tested them last July and again just the other day....I'm thinking that if he is loosing weight because he is loosing some pancreatic function then his stools might be looking more greasy, oily or orange... but I'm not sure if that only happens when a person is for sure insufficient AND does not take the right amount of enzymes or if they always look like that for everyone who is insufficient...so I guess my other question is.... what does a "normal" bowel movement look like for those who are insufficient either with or without the right amount of enzymes taken.
 

Alyssa

New member
Thanks,

Yes, his vitamins levels are just fine as far as I know... they tested them last July and again just the other day....I'm thinking that if he is loosing weight because he is loosing some pancreatic function then his stools might be looking more greasy, oily or orange... but I'm not sure if that only happens when a person is for sure insufficient AND does not take the right amount of enzymes or if they always look like that for everyone who is insufficient...so I guess my other question is.... what does a "normal" bowel movement look like for those who are insufficient either with or without the right amount of enzymes taken.
 

Alyssa

New member
Thanks,
<br />
<br />Yes, his vitamins levels are just fine as far as I know... they tested them last July and again just the other day....I'm thinking that if he is loosing weight because he is loosing some pancreatic function then his stools might be looking more greasy, oily or orange... but I'm not sure if that only happens when a person is for sure insufficient AND does not take the right amount of enzymes or if they always look like that for everyone who is insufficient...so I guess my other question is.... what does a "normal" bowel movement look like for those who are insufficient either with or without the right amount of enzymes taken.
 
M

Mommafirst

Guest
Alyssa,

Do you know what his stool elastase numbers have been in the past? My daughter's have dropped over time, so I'm assuming she is going to be pancreatic insufficient eventually. Last check she was at 242. Normal is like 500, but pancreatic insufficient is under 200.
 
M

Mommafirst

Guest
Alyssa,

Do you know what his stool elastase numbers have been in the past? My daughter's have dropped over time, so I'm assuming she is going to be pancreatic insufficient eventually. Last check she was at 242. Normal is like 500, but pancreatic insufficient is under 200.
 
M

Mommafirst

Guest
Alyssa,

Do you know what his stool elastase numbers have been in the past? My daughter's have dropped over time, so I'm assuming she is going to be pancreatic insufficient eventually. Last check she was at 242. Normal is like 500, but pancreatic insufficient is under 200.
 
M

Mommafirst

Guest
Alyssa,

Do you know what his stool elastase numbers have been in the past? My daughter's have dropped over time, so I'm assuming she is going to be pancreatic insufficient eventually. Last check she was at 242. Normal is like 500, but pancreatic insufficient is under 200.
 
M

Mommafirst

Guest
Alyssa,
<br />
<br />Do you know what his stool elastase numbers have been in the past? My daughter's have dropped over time, so I'm assuming she is going to be pancreatic insufficient eventually. Last check she was at 242. Normal is like 500, but pancreatic insufficient is under 200.
 
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