Hi,
There are some organizations that help with organizing a group to raise money or pre and post tx expenses. National Transplant Organization, COTA, and several others. Be sure to check with the state you live in as to whether they have an adult CF assistance program that might help with expenses.
I am about to celebrate my 7th year of tx and I know the money is important. The meds are expensive, the time away from work can be long, and trips to the center may mean cutting back on hours, or change in careers.
I also have a web site for Transplant Support.... check it out if you like.
http://groups.msn.com/TransplantSupportLungHeartLungHeart
Lots of resources are available and connecting to other pre and post tx folks, many with CF.
Welcome To Transplant Support - Lung, Heart/Lung, Heart
Updated: September 5, 2004
THE NEW SEASON OF TOPIC CHATS HAS BEGUN!!
JOIN THE TX SUPPORT GROUP THIS MONDAY
Mon, Sept 6 - TRANSPLANT GAMES -Share your experiences, what was the most memorable part of the games, tell us about the sports you participated in... and are you attending the WORLD GAMES in Toronto, Canada, July 2005?
SEPTEMBER, OCTOBER, NOVEMBER "SPECIAL TOPIC CHATS" ARE NOW LISTED AT "Cheat Sheet & Chat Schedule" Feature
SPECIAL TOPIC CHATS!!! ALL NEW TOPICS FOR THE FALL!!!
All topic chats begin at 8pm EST. "Please be aware that the topic for that evening will be discussed exclusively from 8pm until 9:30pm" Thank you for your cooperation in making these specially planned chats an enjoyable experience for both new members and regulars.
Here are some of the upcoming special chat topics
Wed, Sept 8 - TYPING CLASS - Yes, Joanne has gone wild... she threatened to do this, and now it will happen. A FUN, FUN evening that will be a trip down memory lane for those who've taken typing classes. Those old manual typewriters were not so bad!!! Joanne decided to offer this class, as her typing is terrible in chat, and the regulars admit they have some typing issues as well......Joanne will be using the Sister Faith method of typing class, straight from her Catholic High School days!!
Thurs, Sept 9 - COPING SKILLS
Mon, Sept 13 - EATING & DIETING & COOKING
Wed, Sept 15 - COPD, EMPHYSEMA, ALPHA1 -Lung Gathering Chat
Thur, Sept 16 - LUNG ALLOCATION
Mon, Sept 20 - HEART TRANSPLANT, HEART ILLNESS - Heart Gathering Chat
Wed, Sept 22 - POST TRANSPLANT MEDICINES AND SIDE EFFECTS
Thur, Sept 23 - ARE YOU AN ORGAN DONOR?
Mon, Sept 27 - IS TRANSPLANT WORTH IT?
Wed, Sept 29 - SPOUSE AND SIGNIFICANT OTHER RELATIONS
Thur, Sept 30 - CYSTIC FIBROSIS, BRONCHIECTASIS, KARTAGENER'S SYNDROME - Lung Gathering Chat
NOW AVAILABLE IN SIZE 6
"TRANSPLANT AWARENESS BRACELET"
"CF AWARENESS BRACELET"
"JOANNE'S BRACELET"
FROM: "LUNGS FOR LIFE FOUNDATION"
Transplant Awareness Bracelet -$18.00
CF Awareness Bracelet -$18.00
Joanne's Bracelet -$14.00
These 3 bracelets are just a few of the items that Lungs for Life has at their store. To read or order these 3 bracelets, please go to the following web site. I am on the board of directors of LFL.
http://www.lungsforlife.org/other_ways/lfl_store.htm
Transplant Support Offers information, news, personal experiences for all that are pre or post lung, heart/lung, and heart tx.
LUCKYLUNGSFORJO@AOL.COM - Joanne Schum
IMPORTANT:
The information provided here is for educational purposes only and it is not intended nor implied to be a substitute for professional medical advice. Always consult your own physician or healthcare provider with any questions you may have regarding a medical condition.