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Question about Oxygen

M

Marcy

New member
Hey Guys,<br>
I am having a very difficult time right now. I will be getting a
CPAP machine tomorrow, which is a good thing if it helps me sleep.
 The bad thing is they are gonna have me do 3 liters of oxygen
at night too.  I am soooo upset and depressed. My heart is
broken-it feels like a progression in this desease!! So I have
questions.  <br>
Is 3 liters alot?<br>
How do you deal with the sound of that machine?<br>
Can you stop oxygen and not be dependant on it in the future?<br>
ANy advise you have of this subject would be greatly
appreciated.<br>
<br>
I will do what ever I have to, to make this work.  I am just
so upset.<br>
<br>
Thanks<br>
Marcy
 
M

Marcy

New member
Hey Guys,<br>
I am having a very difficult time right now. I will be getting a
CPAP machine tomorrow, which is a good thing if it helps me sleep.
 The bad thing is they are gonna have me do 3 liters of oxygen
at night too.  I am soooo upset and depressed. My heart is
broken-it feels like a progression in this desease!! So I have
questions.  <br>
Is 3 liters alot?<br>
How do you deal with the sound of that machine?<br>
Can you stop oxygen and not be dependant on it in the future?<br>
ANy advise you have of this subject would be greatly
appreciated.<br>
<br>
I will do what ever I have to, to make this work.  I am just
so upset.<br>
<br>
Thanks<br>
Marcy
 
M

Marcy

New member
Hey Guys,<br>
I am having a very difficult time right now. I will be getting a
CPAP machine tomorrow, which is a good thing if it helps me sleep.
 The bad thing is they are gonna have me do 3 liters of oxygen
at night too.  I am soooo upset and depressed. My heart is
broken-it feels like a progression in this desease!! So I have
questions.  <br>
Is 3 liters alot?<br>
How do you deal with the sound of that machine?<br>
Can you stop oxygen and not be dependant on it in the future?<br>
ANy advise you have of this subject would be greatly
appreciated.<br>
<br>
I will do what ever I have to, to make this work.  I am just
so upset.<br>
<br>
Thanks<br>
Marcy
 
P

princessjdc

New member
Hang in there, things will start to look up, I dont have any answers, cause Ive never been of oxygen before but hopefully someone on here will help answer your questions for you.
 
P

princessjdc

New member
Hang in there, things will start to look up, I dont have any answers, cause Ive never been of oxygen before but hopefully someone on here will help answer your questions for you.
 
P

princessjdc

New member
Hang in there, things will start to look up, I dont have any answers, cause Ive never been of oxygen before but hopefully someone on here will help answer your questions for you.
 
D

Debi

New member
Marcy, I am 54 and have been on and off oxygen for the past 10 years. You can be on oxygen for quite awhile and then get completely off. I have been on it continuously now for just over a year, and if I could get my act together and exercise more regularly I could probably just use it at night. Two liters is kind of the average for maintenance, but if you are just coming off a hospital stay or bad infecton, 3 is about right. After you heal a bit, you will probably drop down to 2, then 1 then off. I keep the concentrator in a spare bedroom with the door closed and can't hear it at all. Don't keep it in the same room where you sleep - too noisy. I hook up a 50 foot cord to a 2 5 foot cord with a swivel connector. It allows me to walk around my entire house. Then I use portable e tanks when I go to work or shopping, etc.

there are a lot of myths about oxygen. try to find out all you can from the experts so you won't be so scared of it. I understand that you feel depressed. That's normal. Just don't assume it is going to be permanent. It might not be. And if it is, well, you can do just about anything with it for daily living. Best wishes, and feel free to ask any questions.
 
D

Debi

New member
Marcy, I am 54 and have been on and off oxygen for the past 10 years. You can be on oxygen for quite awhile and then get completely off. I have been on it continuously now for just over a year, and if I could get my act together and exercise more regularly I could probably just use it at night. Two liters is kind of the average for maintenance, but if you are just coming off a hospital stay or bad infecton, 3 is about right. After you heal a bit, you will probably drop down to 2, then 1 then off. I keep the concentrator in a spare bedroom with the door closed and can't hear it at all. Don't keep it in the same room where you sleep - too noisy. I hook up a 50 foot cord to a 2 5 foot cord with a swivel connector. It allows me to walk around my entire house. Then I use portable e tanks when I go to work or shopping, etc.

there are a lot of myths about oxygen. try to find out all you can from the experts so you won't be so scared of it. I understand that you feel depressed. That's normal. Just don't assume it is going to be permanent. It might not be. And if it is, well, you can do just about anything with it for daily living. Best wishes, and feel free to ask any questions.
 
D

Debi

New member
Marcy, I am 54 and have been on and off oxygen for the past 10 years. You can be on oxygen for quite awhile and then get completely off. I have been on it continuously now for just over a year, and if I could get my act together and exercise more regularly I could probably just use it at night. Two liters is kind of the average for maintenance, but if you are just coming off a hospital stay or bad infecton, 3 is about right. After you heal a bit, you will probably drop down to 2, then 1 then off. I keep the concentrator in a spare bedroom with the door closed and can't hear it at all. Don't keep it in the same room where you sleep - too noisy. I hook up a 50 foot cord to a 2 5 foot cord with a swivel connector. It allows me to walk around my entire house. Then I use portable e tanks when I go to work or shopping, etc.

there are a lot of myths about oxygen. try to find out all you can from the experts so you won't be so scared of it. I understand that you feel depressed. That's normal. Just don't assume it is going to be permanent. It might not be. And if it is, well, you can do just about anything with it for daily living. Best wishes, and feel free to ask any questions.
 
M

mare

New member
Don't let this upset you!. I recently started using O2 at night also. I run a 50 ft line from the concentrator to my bed room. You do get used to the sound. There are varying trains of thought in regard to going to O2 at night. Some think that using it this way will help slow the progression of the disease. And yes, as you get stronger you may decrease the flow rate. My dr told me that when I feel up to it, if I want to do an overnight room air oxygen test that will tell if I need to stay with the 02 at night. I also had someone from the oxygen supply company do an exercise test with me using an oxygen "conserver' or "Oxymatic" device. This device delivers oxygen in pulses according to your need. She checked my O2 sat levels and figured out how many liters I need at rest and during exercise (my case-walking). Then I was on O2 24 hrs a day. (That was in August) Since the end of sept I only use O2 at night or in need. Now I am doing pulmonary rehab to build up my endurance.

Sometimes it takes us a little time to get by it, or get used to a change. Be patient.

Mare
52 w/cf & cfr
 
M

mare

New member
Don't let this upset you!. I recently started using O2 at night also. I run a 50 ft line from the concentrator to my bed room. You do get used to the sound. There are varying trains of thought in regard to going to O2 at night. Some think that using it this way will help slow the progression of the disease. And yes, as you get stronger you may decrease the flow rate. My dr told me that when I feel up to it, if I want to do an overnight room air oxygen test that will tell if I need to stay with the 02 at night. I also had someone from the oxygen supply company do an exercise test with me using an oxygen "conserver' or "Oxymatic" device. This device delivers oxygen in pulses according to your need. She checked my O2 sat levels and figured out how many liters I need at rest and during exercise (my case-walking). Then I was on O2 24 hrs a day. (That was in August) Since the end of sept I only use O2 at night or in need. Now I am doing pulmonary rehab to build up my endurance.

Sometimes it takes us a little time to get by it, or get used to a change. Be patient.

Mare
52 w/cf & cfr
 
M

mare

New member
Don't let this upset you!. I recently started using O2 at night also. I run a 50 ft line from the concentrator to my bed room. You do get used to the sound. There are varying trains of thought in regard to going to O2 at night. Some think that using it this way will help slow the progression of the disease. And yes, as you get stronger you may decrease the flow rate. My dr told me that when I feel up to it, if I want to do an overnight room air oxygen test that will tell if I need to stay with the 02 at night. I also had someone from the oxygen supply company do an exercise test with me using an oxygen "conserver' or "Oxymatic" device. This device delivers oxygen in pulses according to your need. She checked my O2 sat levels and figured out how many liters I need at rest and during exercise (my case-walking). Then I was on O2 24 hrs a day. (That was in August) Since the end of sept I only use O2 at night or in need. Now I am doing pulmonary rehab to build up my endurance.

Sometimes it takes us a little time to get by it, or get used to a change. Be patient.

Mare
52 w/cf & cfr
 
H

HairGirl

New member
I'm on oxygen right now, but will hopefully be off by christmas<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> as for being on oxygen and cpap, your body needs it! Once you start sleeping well because of the cpap your whole body will start doing better, we need sleep for our bodies to recover and heal themselves.
 
H

HairGirl

New member
I'm on oxygen right now, but will hopefully be off by christmas<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> as for being on oxygen and cpap, your body needs it! Once you start sleeping well because of the cpap your whole body will start doing better, we need sleep for our bodies to recover and heal themselves.
 
H

HairGirl

New member
I'm on oxygen right now, but will hopefully be off by christmas<img src="i/expressions/face-icon-small-smile.gif" border="0"><img src="i/expressions/face-icon-small-smile.gif" border="0"> as for being on oxygen and cpap, your body needs it! Once you start sleeping well because of the cpap your whole body will start doing better, we need sleep for our bodies to recover and heal themselves.
 
L

LisaV

New member
It can be a bit shocking at first, but if it helps you feel better you'll be greatful for the energy.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.portableoxygen.org">http://www.portableoxygen.org</a>
 
L

LisaV

New member
It can be a bit shocking at first, but if it helps you feel better you'll be greatful for the energy.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.portableoxygen.org">http://www.portableoxygen.org</a>
 
L

LisaV

New member
It can be a bit shocking at first, but if it helps you feel better you'll be greatful for the energy.

<a target=_blank class=ftalternatingbarlinklarge href="http://www.portableoxygen.org">http://www.portableoxygen.org</a>
 
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