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Cystic Fibrosis Forum (EXP)

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RosieD

New member
Hi I am Rosie a 34 year old mother of 4 with CF. I don't know my mutation I just know I was diagnosed at 3 weeks old...had a few polyp surgeries in the teen years. Coughed my whole entire life...but felt great. CF didn't really effect me a lot until the last 3 years. I just woke up one morning and felt like I had the flu and it has never gone away. I hurt my body aches and I feel cold, but if I try to warm up I get too warm and cough. Is this normal? I see a pulmonologist and my lung function is holding steady at 70%. Just wondering if this is CF related or entirely something new? Anyone else with this problem? TIA :confused:
 

Aboveallislove

Super Moderator
You MUST find out your mutation. Medicines are now genetically based so I'd call tomorrow and request a full screening. Are you at a CF Center???
 
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