Richner-Hanhart Syndrom in Denmark

[pumba30sv]

Hallo to all

We are to people in denmark there have Richner-Hanhart Syndrom an we tage som stof there have a name SHS Tyrosidon (XPHEN,TYR).
An we will here about the Richner-Hanhart Syndrom are there some one here there have here about the syndrom. Pleasss
There are just to there have this syndrom i denmark not more so it is new for us, my and my sister.

aye hope some one can help us here to know some about the Richner-Hanhart Syndrom.

And sorry my english i not so great......so im sorry

Love to you alle from.

Jan D. Andreasen, Denmark Email,: jandam@jubiimail.dk


PLEASSSS HELP US

 

[Mockingbird]

This is kind of the wrong site for that. I did a little digging, though, and came up with this:

http://www.faces-cranio.org/

It is a support group for Richner-Hanhart Syndrome. I hope you find more over there. Best wishes.

Jarod