S
stephen
Guest
" Roadmap to a Cure"
"Roadmap to a Cure: Advancing New CF Treatments"
I received an email from the Cystic Fibrosis Foundation, as I'm sure many of you also did, with a link to a 30-minute webcast, “Roadmap to a Cure”.
Rather than trying to summarize its contents, I urge you all to watch it. I'm sure you'll find it as interesting and informative as I just did. It will be 30 minutes well spent!
One very interesting fact that is worth mentioning is that according to the presentation, "Genetic testing is available free of charge to all US patients with CF who do not have 2 identified mutations". Information pertaining to this is discussed at time 17:30 in the presentation.
The link to the presentation:
http://www.streamcrate.com/CFFWebcast/ResearchUpdate/
Another link at CFF.org that I found interseting discusses mutation classes:
http://www.cff.org/AboutCF/Testing/Genetics/CFMutations/
I received an email from the Cystic Fibrosis Foundation, as I'm sure many of you also did, with a link to a 30-minute webcast, “Roadmap to a Cure”.
Rather than trying to summarize its contents, I urge you all to watch it. I'm sure you'll find it as interesting and informative as I just did. It will be 30 minutes well spent!
One very interesting fact that is worth mentioning is that according to the presentation, "Genetic testing is available free of charge to all US patients with CF who do not have 2 identified mutations". Information pertaining to this is discussed at time 17:30 in the presentation.
The link to the presentation:
http://www.streamcrate.com/CFFWebcast/ResearchUpdate/
Another link at CFF.org that I found interseting discusses mutation classes:
http://www.cff.org/AboutCF/Testing/Genetics/CFMutations/