coltsfan715
New member
Okay well.
I went to the ENT today basically to look into the nose bleeds I have been having. Well he changed my nose spray .. yet again and said just to keep using the saline spray until the nose bleeds stop. They have lessened quite a bit so that is a good thing.
Well onto the sinus surgery thing. He said that judging by my last CT Scan of my sinuses that he thinks I need surgery to clean my sinuses out. He said that 4 of my sinuses were "Extensively" blocked and that the person that wrote the report questioned whether or not I had a fungus or mold growing in my sinuses (woohoo for me). He said that basically any person/doctor in the country that saw my CT Scan would recommend I have surgery. He said he wanted me to think on my decision of whether I was interested in having the surgery done or not and explained to me what he would do. He said he would order another CT Scan if and when I decided I wanted to have the surgery - he would want the scan done within a month or 2 of the surgery date that way it is more recent and he knows exactly what he would need to do.
Now my questions. I am wondering how many of you have had sinus surgery (I am thinking quite a few) as I never have and the idea of it makes me nervous.
What was your lung function was when you had surgery? My lung function is currently FVC 40% and FEV 30% and that has me concerned - mainly as to possible complications or difficulties I might have afterwards.
Did you have any problems during or after the procedure when you were recovering?
Were you admitted to the hospital and the surgery performed as inpatient or was it done as outpatient and you go home that day? Were you put on any antibiotics before, during, after the procedure? What about any steroids?
How long was your recovery time? What did it feel like afterwards in your nose? Was it difficult to breathe through your nose afterwards, if so for how long?
I am not going to be having a polyp removed if I decide to do this - at least he did not mention that - I am just going to be having my sinuses cleaned out and the blockages cleared. So if you want to offer experiences with surgery on polyps feel free, but please specify if you had a polyp removed or just sinuses cleaned out. I would greatly appreciate that.
Also when did you have your surgery done? Meaning did you wait until you were just getting off of IV antibiotics - when you knew you were at your best or did you just have it done? I am considering waiting until my next hospitalization in January to have this done (after I have been on IVs a little over a week) so that I know I am at my best.
Thank you so much guys. I really appreciate your thoughts and experiences with this. I am very surprised that I am in need of sinus surgery as I have never really had any serious issues with my sinuses in the past. I am torn because I do not want to have surgery, but I think it would be good for me. I am hoping to hear from some people that were maybe in a similar situation to mine healthwise - along with everyone else that is why I am posting this. I want to see how people with lower lung function may have handled this type of surgery. My doc explained to me that he has done this surgery on people with COPD, Asthma and other extensive lung problems in the past - some of which were on oxygen and much sicker than I am at the time of their surgery. He is confident that I will be okay, but also indicated that as with anything I am at more risk with my pulmonary problems.
Like I said I am just wanting to get experiences of people with CF that have had this done. The positives and negatives that you experienced and anything else you would like to share. Thank you so much for taking the time to read this and to respond.
Have a Good Day!
Lindsey
I went to the ENT today basically to look into the nose bleeds I have been having. Well he changed my nose spray .. yet again and said just to keep using the saline spray until the nose bleeds stop. They have lessened quite a bit so that is a good thing.
Well onto the sinus surgery thing. He said that judging by my last CT Scan of my sinuses that he thinks I need surgery to clean my sinuses out. He said that 4 of my sinuses were "Extensively" blocked and that the person that wrote the report questioned whether or not I had a fungus or mold growing in my sinuses (woohoo for me). He said that basically any person/doctor in the country that saw my CT Scan would recommend I have surgery. He said he wanted me to think on my decision of whether I was interested in having the surgery done or not and explained to me what he would do. He said he would order another CT Scan if and when I decided I wanted to have the surgery - he would want the scan done within a month or 2 of the surgery date that way it is more recent and he knows exactly what he would need to do.
Now my questions. I am wondering how many of you have had sinus surgery (I am thinking quite a few) as I never have and the idea of it makes me nervous.
What was your lung function was when you had surgery? My lung function is currently FVC 40% and FEV 30% and that has me concerned - mainly as to possible complications or difficulties I might have afterwards.
Did you have any problems during or after the procedure when you were recovering?
Were you admitted to the hospital and the surgery performed as inpatient or was it done as outpatient and you go home that day? Were you put on any antibiotics before, during, after the procedure? What about any steroids?
How long was your recovery time? What did it feel like afterwards in your nose? Was it difficult to breathe through your nose afterwards, if so for how long?
I am not going to be having a polyp removed if I decide to do this - at least he did not mention that - I am just going to be having my sinuses cleaned out and the blockages cleared. So if you want to offer experiences with surgery on polyps feel free, but please specify if you had a polyp removed or just sinuses cleaned out. I would greatly appreciate that.
Also when did you have your surgery done? Meaning did you wait until you were just getting off of IV antibiotics - when you knew you were at your best or did you just have it done? I am considering waiting until my next hospitalization in January to have this done (after I have been on IVs a little over a week) so that I know I am at my best.
Thank you so much guys. I really appreciate your thoughts and experiences with this. I am very surprised that I am in need of sinus surgery as I have never really had any serious issues with my sinuses in the past. I am torn because I do not want to have surgery, but I think it would be good for me. I am hoping to hear from some people that were maybe in a similar situation to mine healthwise - along with everyone else that is why I am posting this. I want to see how people with lower lung function may have handled this type of surgery. My doc explained to me that he has done this surgery on people with COPD, Asthma and other extensive lung problems in the past - some of which were on oxygen and much sicker than I am at the time of their surgery. He is confident that I will be okay, but also indicated that as with anything I am at more risk with my pulmonary problems.
Like I said I am just wanting to get experiences of people with CF that have had this done. The positives and negatives that you experienced and anything else you would like to share. Thank you so much for taking the time to read this and to respond.
Have a Good Day!
Lindsey