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Something from Hermits Blog

J

JennifersHope

New member
Chris posted this in her blog, I read it eariler in the day and it has been stuck in my head every since.......


"My mom always says that when you have CF and you're sick, you're no longer able to see what's going on properly. She says "when a Cfer's sick, she wouldn't know to get off the tracks if a train was coming!" I think this is pretty true, of myself especially...I just get so sucked into that downward spiral sometimes that I just don't realize how bad I've gotten...until I go into the hospital. Then, after about 5 days of antibiotics, life becomes rosy again and the sun begins to once again shine. " Hermit




I really feel like this is true of me as well... Do you guys think it is the same with you? I am trying to understand why this is so true of some of us..
 
J

JennifersHope

New member
Chris posted this in her blog, I read it eariler in the day and it has been stuck in my head every since.......


"My mom always says that when you have CF and you're sick, you're no longer able to see what's going on properly. She says "when a Cfer's sick, she wouldn't know to get off the tracks if a train was coming!" I think this is pretty true, of myself especially...I just get so sucked into that downward spiral sometimes that I just don't realize how bad I've gotten...until I go into the hospital. Then, after about 5 days of antibiotics, life becomes rosy again and the sun begins to once again shine. " Hermit




I really feel like this is true of me as well... Do you guys think it is the same with you? I am trying to understand why this is so true of some of us..
 
J

JennifersHope

New member
Chris posted this in her blog, I read it eariler in the day and it has been stuck in my head every since.......


"My mom always says that when you have CF and you're sick, you're no longer able to see what's going on properly. She says "when a Cfer's sick, she wouldn't know to get off the tracks if a train was coming!" I think this is pretty true, of myself especially...I just get so sucked into that downward spiral sometimes that I just don't realize how bad I've gotten...until I go into the hospital. Then, after about 5 days of antibiotics, life becomes rosy again and the sun begins to once again shine. " Hermit




I really feel like this is true of me as well... Do you guys think it is the same with you? I am trying to understand why this is so true of some of us..
 
N

NoExcuses

New member
100%.

I think our bodies are made to adapt and cope. If lung function goes down, we sometimes don't notice (or at least I don't).

It's not until I'm on antibiotics that I look back say hey! I didn't realize I felt that bad.

It's just a coping mechanism I guess..
 
N

NoExcuses

New member
100%.

I think our bodies are made to adapt and cope. If lung function goes down, we sometimes don't notice (or at least I don't).

It's not until I'm on antibiotics that I look back say hey! I didn't realize I felt that bad.

It's just a coping mechanism I guess..
 
N

NoExcuses

New member
100%.

I think our bodies are made to adapt and cope. If lung function goes down, we sometimes don't notice (or at least I don't).

It's not until I'm on antibiotics that I look back say hey! I didn't realize I felt that bad.

It's just a coping mechanism I guess..
 
S

sue35

New member
Totally agree. There are so many times that my doctor tells me that I should have come in sooner because I am sick and I look at him in amazement. I just didn't know I was sick.

When I do get sick enough to notice I totally feel horrible and am out of it until I get better. Everything in my life becomes worse (or so I think), everyone hates me (or so I think), and my whole life just stinks. This is all in my head but it is a horrible feeling still
 
S

sue35

New member
Totally agree. There are so many times that my doctor tells me that I should have come in sooner because I am sick and I look at him in amazement. I just didn't know I was sick.

When I do get sick enough to notice I totally feel horrible and am out of it until I get better. Everything in my life becomes worse (or so I think), everyone hates me (or so I think), and my whole life just stinks. This is all in my head but it is a horrible feeling still
 
S

sue35

New member
Totally agree. There are so many times that my doctor tells me that I should have come in sooner because I am sick and I look at him in amazement. I just didn't know I was sick.

When I do get sick enough to notice I totally feel horrible and am out of it until I get better. Everything in my life becomes worse (or so I think), everyone hates me (or so I think), and my whole life just stinks. This is all in my head but it is a horrible feeling still
 
J

JazzysMom

New member
TOTALLY RELATE.....its also why my doctor likes to keep a close eye on me. I dont notice subtle things because I just adapt and adapt and adapt until I have gotten pretty bad.
 
J

JazzysMom

New member
TOTALLY RELATE.....its also why my doctor likes to keep a close eye on me. I dont notice subtle things because I just adapt and adapt and adapt until I have gotten pretty bad.
 
J

JazzysMom

New member
TOTALLY RELATE.....its also why my doctor likes to keep a close eye on me. I dont notice subtle things because I just adapt and adapt and adapt until I have gotten pretty bad.
 
D

dbtoo

New member
Not the case for me. I refuse to allow myself to 'downward spiral' and I would say if you were to objectively look at how you handle issues in your life, you will find that it's not a CF thing, as much as it would be a 'personality trait'. (Downward spirals, IMHO, occur after depression has a strong hold on you. I do get depressed, but I won't spiral.)

Here is a 4 step process I use when faced with downward spirals:

1)<b> Take control</b>.
-- without control I would spiral until there 'is no hope', or hit the bottom and someone else will be taking control for me.

2) <b>Make the choice</b>.
-- There is usually a choice to be made. Should I go in for a tuneup, should I get that divorce, should I, would, I could I, what if, what happens when? Decide, it will set me free.

3) <b>Accept the consequences</b>.
-- My choice may not be popular, but it may be necessary. <b>Popular choices </b><i>may </i>keep me in my spiral, but it <i>may </i>keep me in the good graces of those around me, my family, the 'in' crowd. <b>Necessary choices </b>keep me alive but <i>will </i>take me out of favor with the 'in crowd' or my disFUNctional family.

4) <b>Deal with the results.</b>
-- Often the difficult decision will have some type of fallout. Dealing with the consequence will stop me from returning to the spiral I just came out of. And, when the next spiral comes... I go to step #1.

Not everybody can do this. But everybody can try it. I didn't say it was easy.
 
D

dbtoo

New member
Not the case for me. I refuse to allow myself to 'downward spiral' and I would say if you were to objectively look at how you handle issues in your life, you will find that it's not a CF thing, as much as it would be a 'personality trait'. (Downward spirals, IMHO, occur after depression has a strong hold on you. I do get depressed, but I won't spiral.)

Here is a 4 step process I use when faced with downward spirals:

1)<b> Take control</b>.
-- without control I would spiral until there 'is no hope', or hit the bottom and someone else will be taking control for me.

2) <b>Make the choice</b>.
-- There is usually a choice to be made. Should I go in for a tuneup, should I get that divorce, should I, would, I could I, what if, what happens when? Decide, it will set me free.

3) <b>Accept the consequences</b>.
-- My choice may not be popular, but it may be necessary. <b>Popular choices </b><i>may </i>keep me in my spiral, but it <i>may </i>keep me in the good graces of those around me, my family, the 'in' crowd. <b>Necessary choices </b>keep me alive but <i>will </i>take me out of favor with the 'in crowd' or my disFUNctional family.

4) <b>Deal with the results.</b>
-- Often the difficult decision will have some type of fallout. Dealing with the consequence will stop me from returning to the spiral I just came out of. And, when the next spiral comes... I go to step #1.

Not everybody can do this. But everybody can try it. I didn't say it was easy.
 
D

dbtoo

New member
Not the case for me. I refuse to allow myself to 'downward spiral' and I would say if you were to objectively look at how you handle issues in your life, you will find that it's not a CF thing, as much as it would be a 'personality trait'. (Downward spirals, IMHO, occur after depression has a strong hold on you. I do get depressed, but I won't spiral.)

Here is a 4 step process I use when faced with downward spirals:

1)<b> Take control</b>.
-- without control I would spiral until there 'is no hope', or hit the bottom and someone else will be taking control for me.

2) <b>Make the choice</b>.
-- There is usually a choice to be made. Should I go in for a tuneup, should I get that divorce, should I, would, I could I, what if, what happens when? Decide, it will set me free.

3) <b>Accept the consequences</b>.
-- My choice may not be popular, but it may be necessary. <b>Popular choices </b><i>may </i>keep me in my spiral, but it <i>may </i>keep me in the good graces of those around me, my family, the 'in' crowd. <b>Necessary choices </b>keep me alive but <i>will </i>take me out of favor with the 'in crowd' or my disFUNctional family.

4) <b>Deal with the results.</b>
-- Often the difficult decision will have some type of fallout. Dealing with the consequence will stop me from returning to the spiral I just came out of. And, when the next spiral comes... I go to step #1.

Not everybody can do this. But everybody can try it. I didn't say it was easy.
 
E

Emily65Roses

New member
Mike usually notices before I do if I've got something going on. That's also I imagine because he has an entirely different view than I do. But still.
 
E

Emily65Roses

New member
Mike usually notices before I do if I've got something going on. That's also I imagine because he has an entirely different view than I do. But still.
 
E

Emily65Roses

New member
Mike usually notices before I do if I've got something going on. That's also I imagine because he has an entirely different view than I do. But still.
 
H

HairGirl

New member
Wow Jenn, I was the same way! I read it and then thought about it all day!!!! I think I do the same thing! We live with this everyday all day long that I think we just accept the way our body changes, even if it's not for good! I think we just get use to it until it's bad enough to realize and get help for!
 
H

HairGirl

New member
Wow Jenn, I was the same way! I read it and then thought about it all day!!!! I think I do the same thing! We live with this everyday all day long that I think we just accept the way our body changes, even if it's not for good! I think we just get use to it until it's bad enough to realize and get help for!
 
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