Thanks so much to all those who participated in my first survey on "living with cystic fibrosis" where I asked questions about therapy usage, compliance and suggestions for improvements.
I presented the data on Friday to a drug development company and they found the insights very helpful. Perhaps the greatest benefit was in helping then understand the many issues a person with cf deals with on a daily basis. Many companies consider only FEV1 numbers when thinking about the disease impacts an individual's life. In addition, the comments about how devices could be improved were noted to aid in future product design.
Please take some time to view the results of the survey at the following link:
http://www.surveymonkey.com/Report.asp?U=59756953692
The best way to navigate through the data is from the "Results Summary" page, go to the individual questions and click on the "view" icon. This will allow you to see a listing of individual responses to each of the questions.
I enjoyed learning about how others in the community manage their disease and I hope you do as well.
I will be sending out a survey about resources that people with cf use for questions/support. As before, I will share the results once I have gathered all the responses.
Thanks again,
Tanya
30 w/cf and cfrd
I presented the data on Friday to a drug development company and they found the insights very helpful. Perhaps the greatest benefit was in helping then understand the many issues a person with cf deals with on a daily basis. Many companies consider only FEV1 numbers when thinking about the disease impacts an individual's life. In addition, the comments about how devices could be improved were noted to aid in future product design.
Please take some time to view the results of the survey at the following link:
http://www.surveymonkey.com/Report.asp?U=59756953692
The best way to navigate through the data is from the "Results Summary" page, go to the individual questions and click on the "view" icon. This will allow you to see a listing of individual responses to each of the questions.
I enjoyed learning about how others in the community manage their disease and I hope you do as well.
I will be sending out a survey about resources that people with cf use for questions/support. As before, I will share the results once I have gathered all the responses.
Thanks again,
Tanya
30 w/cf and cfrd