What's new
By:
Filters
Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Take a deep breath

V

vinsmom

New member
Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom
 
V

vinsmom

New member
Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom
 
V

vinsmom

New member
Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom
 
V

vinsmom

New member
Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom
 
V

vinsmom

New member
Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom
 
V

vinsmom

New member
Hi, it's been way too long since I've been on this site. Good in a way....my 8 year old son has been so healthy. His PFT's usually run around 95...what a shock when we went in twice now and they were down to 60. He looks great, plays, has energy but much to my surprise...here we are. I look at him and "take a deep breath" because it's days like this that the reality of his disease really knocks me off my feet. I just read "littledebbies" message and it's all too real. I can't imagine life without my son, he is my sunshine, my light, my smiles, my everything. I can see his face, cute little feet..hear his annoying sounds he makes all day .....I never want to be without any of them. I take every moment I can and make it count with him.......life is too precious.

Please stop and take a moment just to give hugs and say I love yous. We do a zillion times a day. I always go to bed knowing he has the comfort of us telling each other our "good part of the day" and our " bad part of the day".

Happy Friday,
Vins Mom
 
A

AnD

New member
I'm so sorry his functions have dropped! Is he going in the hospital again? I will pray that he improves!

When my daughter has totally exasperated me, I look at her and remind myself that it would be a lot worse day if she wasn't around (she doesn't have cf, I do, but it took us 11 years to have her <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).
 
A

AnD

New member
I'm so sorry his functions have dropped! Is he going in the hospital again? I will pray that he improves!

When my daughter has totally exasperated me, I look at her and remind myself that it would be a lot worse day if she wasn't around (she doesn't have cf, I do, but it took us 11 years to have her <img src="i/expressions/face-icon-small-wink.gif" border="0"> ).
 
You must log in or register to reply here.
Top