JennifersHope
New member
I am currently in my Peds rotation, and today for lecture are topics were Sickle Cell disease and CF.....
First they lectured on CF and my teacher did a good job, of course the class knows I have it, so they started out treading lightly on the questions....
She defined CF has a Progressive Multi-organ genetic disease that is fatal..... nothing new to me, didn't shock me...but as she was lecturing on treatments and meds.. (btw, the class has to learn the most common CF meds which I think is pretty awesome) the class started asking more and more questions.. Before you know it the teacher turned it over to ME.. HA
I answered as best as I could, It was my forum to tell, I didn't care so much about me, but it was most exciting to tell them about you guys, about my friend John.. and the amazing cost that comes with this disease and how much of our life is robbed from us by having to do treatments....
Mostly I think they were shocked by the cost.. they really had no idea... they didn't know that ppl could be turned down for a transplant in this country because of money...
It was amazing... they asked about support groups for CF, I explained about cross contamination, and how I must be careful that I never work with Peds patients with CF...
Anyway, I really feel like my class has a much better idea of what a CF goes though.. they have seen me come to class with IVs before, they know I am always coughing..I went on to explain about why CFers and other ppl with chronic disease are demanding about having the nurses NOT be late when it comes to bringing meds and treatments.. they were real receptive..
Anyway, none of the students asked about the life expectancy... but it was in our notes....as my teacher went on to speak of Sickle Cell disease, which I would never ever want btw for the record......anyway the students asked about the life expectancy of ppl with Sickle Cell, my teacher went on to say, " OH it is much better then CF .. they live to at least 40...the other disease.. is way worse... (meaning CF) and very fatal...she said ppl with that disease are dead before 40.. to which I made a few jokes about......cause I didn't know what else to say...The whole class was silent after that and I got a few "pat on the backs" after class.
Anyway, my point is, CF awareness hopefully got spread today, and just maybe some of these future nurses will be more sensitive to a CFer.
Jennifer
First they lectured on CF and my teacher did a good job, of course the class knows I have it, so they started out treading lightly on the questions....
She defined CF has a Progressive Multi-organ genetic disease that is fatal..... nothing new to me, didn't shock me...but as she was lecturing on treatments and meds.. (btw, the class has to learn the most common CF meds which I think is pretty awesome) the class started asking more and more questions.. Before you know it the teacher turned it over to ME.. HA
I answered as best as I could, It was my forum to tell, I didn't care so much about me, but it was most exciting to tell them about you guys, about my friend John.. and the amazing cost that comes with this disease and how much of our life is robbed from us by having to do treatments....
Mostly I think they were shocked by the cost.. they really had no idea... they didn't know that ppl could be turned down for a transplant in this country because of money...
It was amazing... they asked about support groups for CF, I explained about cross contamination, and how I must be careful that I never work with Peds patients with CF...
Anyway, I really feel like my class has a much better idea of what a CF goes though.. they have seen me come to class with IVs before, they know I am always coughing..I went on to explain about why CFers and other ppl with chronic disease are demanding about having the nurses NOT be late when it comes to bringing meds and treatments.. they were real receptive..
Anyway, none of the students asked about the life expectancy... but it was in our notes....as my teacher went on to speak of Sickle Cell disease, which I would never ever want btw for the record......anyway the students asked about the life expectancy of ppl with Sickle Cell, my teacher went on to say, " OH it is much better then CF .. they live to at least 40...the other disease.. is way worse... (meaning CF) and very fatal...she said ppl with that disease are dead before 40.. to which I made a few jokes about......cause I didn't know what else to say...The whole class was silent after that and I got a few "pat on the backs" after class.
Anyway, my point is, CF awareness hopefully got spread today, and just maybe some of these future nurses will be more sensitive to a CFer.
Jennifer