kayleesgrandma
New member
Tammy, Joni and I were talking on the phone tonight and she mentioned that she has been praying for a little girl named Kaylee, like my granddaughter. I hadn't gotten my notebook at that time so of course couldn't remember the thread...Naturally I was online with Mel at same time, and she found me the thread.
SOOO...how is the little girl doing? It was such a sad story...please up date us if you could.
Here is the original thread, and follow-up from a month ago, for those of you who also don't remember:
06/05/2007 06:04 PM
tammykrumrey
Posts: 391
Joined: 06/28/2006
There is a little girl named Kaylee who is 10 and had a double lung tx in Oct. 05 who is in need of as many prayer and good thoughts. Her body has rejected her lungs, and she is loosing her lung function very quickly. She has dropped from the 50s to the 20s in two weeks. They have tried basically everything possible and is now headed back to St. Louis Childrens to go through options, in which her mom says none are very good.
Her mom says she could be re-listed, but the problem is sustaining her long enough for that to happen. It makes me so sad. She is on O2 24/7 now.
Please, if you are one to pray, please do so. If not, please send her and her family all the good vibes you can!
She also has a younger sister with CF who is doing very well. Just another proof that there is much more than gene mutations determining the outcome of one with CF.
Thanks everyone!
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Tammy, mom to Kayla (9 w/cf) and Hannah (7 1/2 w/cf) and aunt to Dalton (16 w/cf)
06/11/2007 11:13 AM
tammykrumrey
Posts: 391
Joined: 06/28/2006
First, thank you for all your prayers and good wishes.
My sister just received a call from the little girls mom, and they sent her home and told her that she only has 1-3 months to live. They cannot do anything else, and she is not able to get another transplant. They told her parents to take her home and let her live the rest of her life to the fullest.
My heart is broken! How do you tell your 10 year old little girl this? Her little sister, who also has CF, is scared to death of course. She is only 8 years old and watching her sister loose her battle to the same disease that she is fighting.
My daughters are both about the same age as this little girl and her sister. It is just killing me. I am not an emotional person...my husband has probably only seen me cry about 10 times in the 14 years we have been together. But today when I called him, I couldn't help but cry over this sad news.
We are getting together with the little girl and her family in a few weeks when she is back in St. Louis for a follow up. There is a part of me that doesn't know if I will be able to do it because I am afraid I will just break down.
Thanks again. I think I am going to go to the restroom (I am at work) and let out a few tears fall.
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SOOO...how is the little girl doing? It was such a sad story...please up date us if you could.
Here is the original thread, and follow-up from a month ago, for those of you who also don't remember:
06/05/2007 06:04 PM
tammykrumrey
Posts: 391
Joined: 06/28/2006
There is a little girl named Kaylee who is 10 and had a double lung tx in Oct. 05 who is in need of as many prayer and good thoughts. Her body has rejected her lungs, and she is loosing her lung function very quickly. She has dropped from the 50s to the 20s in two weeks. They have tried basically everything possible and is now headed back to St. Louis Childrens to go through options, in which her mom says none are very good.
Her mom says she could be re-listed, but the problem is sustaining her long enough for that to happen. It makes me so sad. She is on O2 24/7 now.
Please, if you are one to pray, please do so. If not, please send her and her family all the good vibes you can!
She also has a younger sister with CF who is doing very well. Just another proof that there is much more than gene mutations determining the outcome of one with CF.
Thanks everyone!
-------------------------
Tammy, mom to Kayla (9 w/cf) and Hannah (7 1/2 w/cf) and aunt to Dalton (16 w/cf)
06/11/2007 11:13 AM
tammykrumrey
Posts: 391
Joined: 06/28/2006
First, thank you for all your prayers and good wishes.
My sister just received a call from the little girls mom, and they sent her home and told her that she only has 1-3 months to live. They cannot do anything else, and she is not able to get another transplant. They told her parents to take her home and let her live the rest of her life to the fullest.
My heart is broken! How do you tell your 10 year old little girl this? Her little sister, who also has CF, is scared to death of course. She is only 8 years old and watching her sister loose her battle to the same disease that she is fighting.
My daughters are both about the same age as this little girl and her sister. It is just killing me. I am not an emotional person...my husband has probably only seen me cry about 10 times in the 14 years we have been together. But today when I called him, I couldn't help but cry over this sad news.
We are getting together with the little girl and her family in a few weeks when she is back in St. Louis for a follow up. There is a part of me that doesn't know if I will be able to do it because I am afraid I will just break down.
Thanks again. I think I am going to go to the restroom (I am at work) and let out a few tears fall.
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