Tips for Speech at CF Fundraiser

[Giggles]

I need some ideas or tips for a speech I need to give at a CF Fundraiser. I am just saying a few words, less than 10 minutes and it is to a bunch of High Schooler's who are raising money for CF at a walk at their school.

I wanted some one liners, good shocking analagies, something short and simple but has alot of impact and shock value.

Any ideas are very much welcomed!!!!!


Jennifer 34 years old with CF and CFRD

 

[folione]

If you want to make a quick shock you could consider telling them that according to the latest statistics for people with CF, you'll be dead in less than 3 more years. (CFF's latest quote of 36.8 median survival) It's similar to the speech tactic used alot wherein the speaker says "look left and look right and those 2 will...(something) before you graduate".

Maybe then soften it up by talking about the huge advances made in the past 10 years and how much of it would not have happened without money raised and funneled through CFF. You could mention hypertonic saline which did not exist as a treatment when many of those students started highschool or Tobi which has only been FDA approved since 1998 when many of them were just getting into 1st or 2nd grade. You could look at the CFF Web site and find some of the amounts that have been funneled into drug research and go from there to make it very specific: i.e.

 

[coltsfan715]

One thing that I know Kurt (he is my fiance and does NOT have CF) has mentioned to me as something he has seen and recognizes about me and CF is how it can regulate what I do.

Meaning this:

If a friend calls him up and says hey you want to go to such and such football game or to such and such place tonight, He says when are you going?. They say 5 minutes and he says yeah sure I will be waiting outside for you.

If a friend calls me up and says hey you to go to such and such football game or to such and such place tonight, I say when are you going? They say 5 minutes and I say I'd like to but I can't. I have to do 1 hr + worth of meds before I go, sorry.

Or imagine having to wake up 2 or 3 hours before school starts to get ready, so that you can do all of your meds to breathe and take care of yourself AND shower and get cleaned up.

Tell them what age you were told you would make it too. I had to speak for the local CFF chapter and it ended up being a majority of college aged people - so my age. I wasn't really sure they would get it, but I told them my parents were told I would be lucky to make it to 12. I have made it to 12 and then they were told I would never drive (make it to 16), then I would be lucky to graduate high school and so on, but because of the advancements made in large part due to the CFF I have surpassed every age I have been told I would not make it too. I know that seemed to hit home for them. There was a huge support from the kids my age at that event and I was completely shocked.

I hope that something in there helped. The first thing I have never used in a speech it is just something that Kurt has mentioned to me recently, but I am sure I will use it when I get the opportunity to speak again.

Good Luck with the speech.
Lindsey

 

[anonymous]

There was a thread a long time ago that mentioned reasons why it's good to have CF and some of those that could be considered amusing are:

Eating anything we want & not having to worry about being overweight or obese
Not having to plan for retirement
Clearing out a room when we pass gas, especially if the room is filled with people we'd rather not be hanging around with

There were some others. If I can find the link I will post it.

 

[anonymous]

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