Well, I finally went in and tried tobra for inhalation. They make you do it there to see if you have any adverse affects. It's been about 4 days now and I'm feeling really good. They told me that I'll really start seeing the effects in a month, so I'm pretty excited.
When i get back i gotta apply to Trillium (provinces drug plan) so i can get TOBI. The hospital covers tobra but not Tobi, and I'm sure we all know why. I should have got Trillium a long time ago, but I'm a procrastinator, and it takes me a while to do things like that (i know i know). Being an adult is fustrating sometimes haha.
I went away for a month and i didin't bring my nebulizer, and i didn't eat the way I should have. I think i am in the tail end of the mentality that i can do these things and get away with them feeling ok, and being healthy. I never really had to start worrying about my lungs or my wieght until a couple of years ago, and figure things like (one month without my nebs will be ok etc). Well my fev1 was 73% (down from 87, but i think that was just an amazing day!) and my weight was 121 (again down from 128). I'm not upset, cause i know i can bring it back up no problem, it's more an eye opener telling me that i gotta reevaluate who i am...and what i gotta do to stay healthy. It's good though. I look at tobra as a way to give me some stability (can't miss a dose and it's twice a day) and that the more I adhere to my regiment, and do the things i need to do, the better i will be.
I guess my real cf life starts here. And to be honest, I'm kinda excited just how far and how healthy i can get. I'm glad i had a good 23 years of carefreeness, and i wouldn't change it for the world. But now I gotta fight a bit, and I'm looking forward to the challenges ahead.
I hope everyone is well. Sorry it was a bit of a rant.
Kiel
When i get back i gotta apply to Trillium (provinces drug plan) so i can get TOBI. The hospital covers tobra but not Tobi, and I'm sure we all know why. I should have got Trillium a long time ago, but I'm a procrastinator, and it takes me a while to do things like that (i know i know). Being an adult is fustrating sometimes haha.
I went away for a month and i didin't bring my nebulizer, and i didn't eat the way I should have. I think i am in the tail end of the mentality that i can do these things and get away with them feeling ok, and being healthy. I never really had to start worrying about my lungs or my wieght until a couple of years ago, and figure things like (one month without my nebs will be ok etc). Well my fev1 was 73% (down from 87, but i think that was just an amazing day!) and my weight was 121 (again down from 128). I'm not upset, cause i know i can bring it back up no problem, it's more an eye opener telling me that i gotta reevaluate who i am...and what i gotta do to stay healthy. It's good though. I look at tobra as a way to give me some stability (can't miss a dose and it's twice a day) and that the more I adhere to my regiment, and do the things i need to do, the better i will be.
I guess my real cf life starts here. And to be honest, I'm kinda excited just how far and how healthy i can get. I'm glad i had a good 23 years of carefreeness, and i wouldn't change it for the world. But now I gotta fight a bit, and I'm looking forward to the challenges ahead.
I hope everyone is well. Sorry it was a bit of a rant.
Kiel