Ok so what would you do? No longer any speculation about new treatments to alleviate our symptoms, like every other medication has offered so far, but a real 100% cure that made us 100% normal. And just for the sake of argument (though we know it's as close to impossible as we can get), this same "cure" also healed past damage, so those with real low PFT's and lung damage in general, didn't just get turned into a "normal" non CF person but with bad lungs etc. We would all be 100% normal, with regular lungs also (let's pretend it's some super DNA based cure that heals our tissue also after it cures us of our disease).
What do you do when you are CF free? It would be very weird for me, like i'm sure it would be for you guys. No longer do I have that 9000 lb evil gorilla on my back named CF. No longer would I have the annoying regimen of aresols, tons of pills, supplements (id still take supplements, but not to the extent I do now), and of course all the aspects of CF when i'm sick. In a weird way I would feel like say an identical twin that just lost his other half. CF is such a large part of what makes us, us. Take away something that we have had with us since birth to help mold who we are, and to identify with, and that would be a huge psychological issue all of a sudden. I bet many of you/us would quite literally silently freak out. Like all of a sudden telling a black guy he is no longer black, and to enjoy not having to deal with some of the issues you have to deal with by being black. If you have had something that has created negativity for you in your life (our disease), and it's been (for most of us) this way all our lives, and we have in turn lived our lives around this terrible disease, instead of living our lives for ourselves first, when you take that away, what happens? It must be like taking away a large part of our identity.
I suppose if that wasn't a big issue for me like I think it would be, after a couple days of being in shock and enjoying being CF free, i'd realize my previous problem of lack of work experience would still be there, so I guess i'd go and work at a couple very low entry level positions to get some background, then say f**k it and go balls out into state law enforcement, and seriously start planning for a potentially much longer life.
What about you guys?
What do you do when you are CF free? It would be very weird for me, like i'm sure it would be for you guys. No longer do I have that 9000 lb evil gorilla on my back named CF. No longer would I have the annoying regimen of aresols, tons of pills, supplements (id still take supplements, but not to the extent I do now), and of course all the aspects of CF when i'm sick. In a weird way I would feel like say an identical twin that just lost his other half. CF is such a large part of what makes us, us. Take away something that we have had with us since birth to help mold who we are, and to identify with, and that would be a huge psychological issue all of a sudden. I bet many of you/us would quite literally silently freak out. Like all of a sudden telling a black guy he is no longer black, and to enjoy not having to deal with some of the issues you have to deal with by being black. If you have had something that has created negativity for you in your life (our disease), and it's been (for most of us) this way all our lives, and we have in turn lived our lives around this terrible disease, instead of living our lives for ourselves first, when you take that away, what happens? It must be like taking away a large part of our identity.
I suppose if that wasn't a big issue for me like I think it would be, after a couple days of being in shock and enjoying being CF free, i'd realize my previous problem of lack of work experience would still be there, so I guess i'd go and work at a couple very low entry level positions to get some background, then say f**k it and go balls out into state law enforcement, and seriously start planning for a potentially much longer life.
What about you guys?