what do you think?

[relat]

it may sound strange but there are people that think that not knowing you have a

disease may protect you from anxiety and fears concerned with the disease

(if you do not have severe symptoms)because you may start having symptoms of

the disease due to psychological facts(anxiety from knowing).

there is another point of view that says that somebody must know everything to

control everything. what you think?

 

[relat]

it may sound strange but there are people that think that not knowing you have a

disease may protect you from anxiety and fears concerned with the disease

(if you do not have severe symptoms)because you may start having symptoms of

the disease due to psychological facts(anxiety from knowing).

there is another point of view that says that somebody must know everything to

control everything. what you think?

 

[relat]

it may sound strange but there are people that think that not knowing you have a

disease may protect you from anxiety and fears concerned with the disease

(if you do not have severe symptoms)because you may start having symptoms of

the disease due to psychological facts(anxiety from knowing).

there is another point of view that says that somebody must know everything to

control everything. what you think?

 

[2perfectboys]

I want to know...I understand what your saying, I think the mind is a powerful thing, if u think your sick it's easy to lay around and feel down, .I'm still upset that it took 14 mos of my son's life to get a diagnosis. Time we can never get back. While the diagnosis was devastating, at least we had a reason for all his problems and could start the needed treatments. There is no need for someone to suffer if they don't have to. I look back at all the times he cried in pain, if he would have just had enzymes.....

 

[2perfectboys]

I want to know...I understand what your saying, I think the mind is a powerful thing, if u think your sick it's easy to lay around and feel down, .I'm still upset that it took 14 mos of my son's life to get a diagnosis. Time we can never get back. While the diagnosis was devastating, at least we had a reason for all his problems and could start the needed treatments. There is no need for someone to suffer if they don't have to. I look back at all the times he cried in pain, if he would have just had enzymes.....

 

[2perfectboys]

I want to know...I understand what your saying, I think the mind is a powerful thing, if u think your sick it's easy to lay around and feel down, .I'm still upset that it took 14 mos of my son's life to get a diagnosis. Time we can never get back. While the diagnosis was devastating, at least we had a reason for all his problems and could start the needed treatments. There is no need for someone to suffer if they don't have to. I look back at all the times he cried in pain, if he would have just had enzymes.....

 

[65rosessamurai]

I don't think that "not knowing" would make any difference to personal health issues.

On the contrary, by knowing what it is that's causing bad health can equally be conqured by the mind, as well as by medical treatment.

As for the loss of 14 months to get a diagnosis, you were fortunate, it had taken nearly eight years of constant stomach aches before I was diagnosed (by pure luck!), and even then it had only discovered the source, not necessarily the remedy.

For those who think they're sick, and lie around feeling down, that sounds like a sign of depression, and should be looked at by a physician, or psychologist. Or, just talking it over with a hot cup of joe with your friends sometimes helps! An old Japanese saying "You release your troubles when you talk", is based on their meaning for talk (Hanasu), and 'release' (Hanasu) having the same pronunciation!

 

[65rosessamurai]

I don't think that "not knowing" would make any difference to personal health issues.

On the contrary, by knowing what it is that's causing bad health can equally be conqured by the mind, as well as by medical treatment.

As for the loss of 14 months to get a diagnosis, you were fortunate, it had taken nearly eight years of constant stomach aches before I was diagnosed (by pure luck!), and even then it had only discovered the source, not necessarily the remedy.

For those who think they're sick, and lie around feeling down, that sounds like a sign of depression, and should be looked at by a physician, or psychologist. Or, just talking it over with a hot cup of joe with your friends sometimes helps! An old Japanese saying "You release your troubles when you talk", is based on their meaning for talk (Hanasu), and 'release' (Hanasu) having the same pronunciation!

 

[65rosessamurai]

I don't think that "not knowing" would make any difference to personal health issues.

On the contrary, by knowing what it is that's causing bad health can equally be conqured by the mind, as well as by medical treatment.

As for the loss of 14 months to get a diagnosis, you were fortunate, it had taken nearly eight years of constant stomach aches before I was diagnosed (by pure luck!), and even then it had only discovered the source, not necessarily the remedy.

For those who think they're sick, and lie around feeling down, that sounds like a sign of depression, and should be looked at by a physician, or psychologist. Or, just talking it over with a hot cup of joe with your friends sometimes helps! An old Japanese saying "You release your troubles when you talk", is based on their meaning for talk (Hanasu), and 'release' (Hanasu) having the same pronunciation!

 

[JennifersHope]

I was 29 years till my DX of CF.. I had pneumonia every single year of my life, I literally believed that I just was going to cough forever and get pneumonia without a break forever, or at least till I died.. I was worked up from a Pulmonary stand point only for TB and HIV.. I guess you get labled because at the time I didn't have insurance...

I actually since being Dx and my little brain of mine knowing have been sick a lot less, and I hardly ever get pneumonia because of the meds I now take...

I do understand the point though of knowing you have something and then getting the physical symptoms of that.. I have experienced that before....


Jennifer

 

[JennifersHope]

I was 29 years till my DX of CF.. I had pneumonia every single year of my life, I literally believed that I just was going to cough forever and get pneumonia without a break forever, or at least till I died.. I was worked up from a Pulmonary stand point only for TB and HIV.. I guess you get labled because at the time I didn't have insurance...

I actually since being Dx and my little brain of mine knowing have been sick a lot less, and I hardly ever get pneumonia because of the meds I now take...

I do understand the point though of knowing you have something and then getting the physical symptoms of that.. I have experienced that before....


Jennifer

 

[JennifersHope]

I was 29 years till my DX of CF.. I had pneumonia every single year of my life, I literally believed that I just was going to cough forever and get pneumonia without a break forever, or at least till I died.. I was worked up from a Pulmonary stand point only for TB and HIV.. I guess you get labled because at the time I didn't have insurance...

I actually since being Dx and my little brain of mine knowing have been sick a lot less, and I hardly ever get pneumonia because of the meds I now take...

I do understand the point though of knowing you have something and then getting the physical symptoms of that.. I have experienced that before....


Jennifer

 

[thelizardqueen]

CF is such a serious disease. I would be p*ssed if everyone lied to me and never told me that I had it. I would sooner know and be able to take care of myself and advocate for myself, then to be left in the dark. Anxiety from CF is definitly something that can be dealt with. I think I would sooner get anxiety from not knowing what was wrong with me, then knowing what was wrong.

 

[thelizardqueen]

CF is such a serious disease. I would be p*ssed if everyone lied to me and never told me that I had it. I would sooner know and be able to take care of myself and advocate for myself, then to be left in the dark. Anxiety from CF is definitly something that can be dealt with. I think I would sooner get anxiety from not knowing what was wrong with me, then knowing what was wrong.

 

[thelizardqueen]

CF is such a serious disease. I would be p*ssed if everyone lied to me and never told me that I had it. I would sooner know and be able to take care of myself and advocate for myself, then to be left in the dark. Anxiety from CF is definitly something that can be dealt with. I think I would sooner get anxiety from not knowing what was wrong with me, then knowing what was wrong.

 

[2perfectboys]

Your right after the initial shock and grieving process u realize u finally have the answers and can started gaining the knowledge needed to positively fight it. I think it took a few years, but I would now say I have a sort of calmess about CF now. I am a pretty positive person, but this minor setbacks still have their ways with all of us.

 

[2perfectboys]

Your right after the initial shock and grieving process u realize u finally have the answers and can started gaining the knowledge needed to positively fight it. I think it took a few years, but I would now say I have a sort of calmess about CF now. I am a pretty positive person, but this minor setbacks still have their ways with all of us.

 

[2perfectboys]

Your right after the initial shock and grieving process u realize u finally have the answers and can started gaining the knowledge needed to positively fight it. I think it took a few years, but I would now say I have a sort of calmess about CF now. I am a pretty positive person, but this minor setbacks still have their ways with all of us.

 

[sue35]

Hmm..I can relate to this quite well!

My parents found out I had CF when I was 5 but they told everyone not to tell me. So I lived my happy little life only thinking I had asthma and that everyone who had asthma had to take medicine and get "poundings". I don't know when they were going to tell me because I found out by accident when I was 13.

In a way, I almost liked not knowing. I would never do that to my kids but my parents didn't know any better at the time. they didn't even think I would make it to 13. I could understand way back when not telling kids but now with the average age being so high I think you have to tell them.

I think as a little kid it did me no harm not to know, I was happier not knowing. I think I found out at an age when I could start being more responsible for my medicine so I needed to know.

 

[sue35]

Hmm..I can relate to this quite well!

My parents found out I had CF when I was 5 but they told everyone not to tell me. So I lived my happy little life only thinking I had asthma and that everyone who had asthma had to take medicine and get "poundings". I don't know when they were going to tell me because I found out by accident when I was 13.

In a way, I almost liked not knowing. I would never do that to my kids but my parents didn't know any better at the time. they didn't even think I would make it to 13. I could understand way back when not telling kids but now with the average age being so high I think you have to tell them.

I think as a little kid it did me no harm not to know, I was happier not knowing. I think I found out at an age when I could start being more responsible for my medicine so I needed to know.