What you know

[anonymous]

Let me just say that this site is doing a really good job! Every time I log on I am baffiled by how little people know about CF or the horrid misinformation they think they know about their own disease. I don't mean to make anyone feel bad, so please don't, I'm just so glad that people are comming here for answers and support. Not educating yourself and family can be DANGEROUS. Never be afraid to ask questions and seek out answers.Debbie22 yr old w/ CF

 

[anonymous]

I agree that this is a good place to go to get opinions and advice but the best source is always the CF team. I think the reason so many people are misinformed is because each CF clinic has different methods. I have a friend that lives in a different city and we often compare treatment methods, and they are often very different. We have both asked our CF teams and were told that each clinic has their own methods. I know yet another parent as well who doesn't like her CF team but they are the only ones in the area, and again her child is treated in a different way than mine.