Wohooo, finally part of the distinguished cf club!

[Ender]

Well been feeling kinda crappy for the last few months...not bad but different, like off from my normal self.

Called my doctor for some antibiotics, cause it's been a while, and i thought i could use a bit of a clean up. Anyways, she told me that i cultured pseudo on my last appointment, and i go in next week to try tobi and see what my reaction is.

I'm actually kinda happy, cause there is a name to the demon that has been plagueing me for the last few months. It's a bit of an eye opener, and it makes you think a bit...

Anyways, I'm vowing to take better care of myself, stop smoking, and start excercising more, before this cf monster really gets a hold of me.

I turn 23 in 2 days. Nice birthday present <img src="i/expressions/face-icon-small-tongue.gif" border="0">

Kiel

 

[Faust]

Hows the OO goin? Good to hear you are getting some common sense regarding smoking <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[thelizardqueen]

I find it usually takes CFers getting really sick in order to get that kick in the behind that they need to get back on track health wise and take better care of themselves. Its sad, but true. I know I should have taken better care of myself a few years ago, and know that had I done that I would be slightly better off then I am now. I mean a couple of years ago I didn't cough when I wasn't sick, and now when I'm not sick I cough a bit.

 

[Faust]

I think that's just human nature though, and not specific to CF or disease in general. It's like the very fat guy who stuffs his face with crappy food and never moves. He feels "Bah heart attack, will never happen to me". Then it happens to him, and he changes his tune. If you are doing good with CF, it's hard to see how changing a routine/habits would change things.


It took me being really sick in the last hospital visit for me to fully look into and embrace natural/alternative treatment for my care. And before I felt they were all BS.

 

[EnergyGal]

That is a good Birthday present for yourself. I hope you feel better soon.

For me since I always had congestion, my motto was to do more therapies on my good days so my bad days hardly arrived. I think I might have added years to my life but probably would have added more years if I did not start and stop my exercises. Jog straight for three months then stopped for a month. Crazy stuff like that.

I have no regrets I just learn from my mistakes.
Ciao

 

[NoExcuses]

.

 

[anonymous]

Sorry if I have gotten this completely wrong as I'm just browsing, but do you mean you have only just been diagnosed with CF at 23?????

The reason I ask is as a mother of a lpwcf just diagnosed from the Guthrie test, it gives me hope to think that there are people out there who don't always get CF really bad from the beginning. It is so scary being faced with this reality.

 

[anonymous]

I have just re-read your message and I think you are saying that it is pseudo that you have just been diagnosed with, not CF.

Sorry <img src="i/expressions/face-icon-small-sad.gif" border="0">

 

[anonymous]

I find the hardest part about cf is the balance thing....like should i party now while i can and get it out of my system before I can't later on, with the result of hurting my health, or do i try to stay healthy all the time and kinda miss out on some of the fun <img src="i/expressions/face-icon-small-tongue.gif" border="0">

but ya, I've had a good 5-6 years of good solid fun behind me...I think it's time to buckle down a bit before i do tooo much irreversible damage.

No regrets though really.

Kiel

 

[NoExcuses]

.

 

[Faust]

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>anonymous</b></i>

I find the hardest part about cf is the balance thing....like should i party now while i can and get it out of my system before I can't later on, with the result of hurting my health, or do i try to stay healthy all the time and kinda miss out on some of the fun <img src="">



but ya, I've had a good 5-6 years of good solid fun behind me...I think it's time to buckle down a bit before i do tooo much irreversible damage.



No regrets though really.



Kiel</end quote></div>

Hahah I had an absolute BLAST in my 20's, especially before I met my long term lady (soon to be wife). I was absolutely insane. I knew of a cheap place to get my swerve on for every night of the week, and I was there at each place a good 95% of the time. Dollar long necks at one place on Monday, quarter drafts at another place on tuesday, 3 dollar buckets of rolling rocks on wednesday night, 5 bucks ALL YOU CAN DRINK thursdays (with awesome industrial music and HOT women who were randy), and then I had to pay regular prices on Friday and Saturday but more quality women were out. I packed a TON of partying into those years, especially my younger 20's. I had witnessed and experienced some amazingly funny and scary situations, and I still share those stories with people today and they love them. I've had guns pointed at me, people have tried to stab me, i've blown myself and my friends up with real explosives (got the bad scars to prove it), did some crazy destructive stuff, and had tons of wild carefree awesome sex.


You know what I regret? Not a damn thing! If you took away all those things that I lived through, and I basically lived in a bubble and took perfect care of myself, and got maybe another 10 years or so of life (or maybe just existance) out of the deal, that wouldn't be a fair trade off. I wish I could have accomplished more in life, but I think we all do. I'm sure I did a good deal of damage to myself back then, but here I am at 35 with 99% lung function and in general great shape body wise. Now I don't party anywhere near as hardcore as I used to. The days of waking up in a chicks trailer at 2pm on a sunday with a raging hangover, with her 5 year old kid standing over me saying "Are you gonna be my daddy" are LONG behind me. I've matured by an enormous margin, but man, i'll have a chesire cat grin on my face on my deathbed thinking of all the crazy stuff I did/experienced. <img src="i/expressions/face-icon-small-smile.gif" border="0">


Just try not to do really bad things, like drink non stop like Nicholas Cage in leaving las vegas, or have massive unprotected sex, or do real hard drugs like heroin or meth or crack, or smoke, and you should be ok if you have fun in general moderation. I was lucky, not everyone will be the same as me.