Cystic Fibrosis Forum (EXP)

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Recent content by angelrn00

  1. A

    alcaligenes

    oh man! a 20% drop??? what is your pft now? i think that is what brian is having the hardest time with. even though his baseline 37-40 was low, he had gotten there so slowly and been there so long that he was fine there. so a 10% drop in a month has been a huge adjustment for him. luckily he...
  2. A

    alcaligenes

    oh man! a 20% drop??? what is your pft now? i think that is what brian is having the hardest time with. even though his baseline 37-40 was low, he had gotten there so slowly and been there so long that he was fine there. so a 10% drop in a month has been a huge adjustment for him. luckily he...
  3. A

    alcaligenes

    oh man! a 20% drop??? what is your pft now? i think that is what brian is having the hardest time with. even though his baseline 37-40 was low, he had gotten there so slowly and been there so long that he was fine there. so a 10% drop in a month has been a huge adjustment for him. luckily he...
  4. A

    great news!!!

    Brian had follow up today...was pretty worried. But his pft was up to 36%!!! he still feels more sob than before, but his baseline is 37-40! the dr wants us to see an infectious disease specialist in a cpl wks and he is going to get a port placed in the next month and we are starting the work up...
  5. A

    great news!!!

    Brian had follow up today...was pretty worried. But his pft was up to 36%!!! he still feels more sob than before, but his baseline is 37-40! the dr wants us to see an infectious disease specialist in a cpl wks and he is going to get a port placed in the next month and we are starting the work up...
  6. A

    great news!!!

    Brian had follow up today...was pretty worried. But his pft was up to 36%!!! he still feels more sob than before, but his baseline is 37-40! the dr wants us to see an infectious disease specialist in a cpl wks and he is going to get a port placed in the next month and we are starting the work up...
  7. A

    Need some advice

    Hi Jenny! I just wanted to tell you that you should NEVER EVER feel guilty about wanting love!! EVER!! my husband has said that before too, we have been together 8 yrs. you say you worry about what may come in the next 10 yrs, but the next 10 yrs may stay stable. none of us know!! we have had...
  8. A

    Need some advice

    Hi Jenny! I just wanted to tell you that you should NEVER EVER feel guilty about wanting love!! EVER!! my husband has said that before too, we have been together 8 yrs. you say you worry about what may come in the next 10 yrs, but the next 10 yrs may stay stable. none of us know!! we have had...
  9. A

    Need some advice

    Hi Jenny! I just wanted to tell you that you should NEVER EVER feel guilty about wanting love!! EVER!! my husband has said that before too, we have been together 8 yrs. you say you worry about what may come in the next 10 yrs, but the next 10 yrs may stay stable. none of us know!! we have had...
  10. A

    alcaligenes

    gggrrrrr....lol. so Lief...you still have that bug and are still treating it? and Jonathan, do you have that germ too? brian has had it for over a year now and it has been awful!! It's like he just can't stay well now! I don't know if they just haven't gotten the right combo of meds, or what. he...
  11. A

    alcaligenes

    gggrrrrr....lol. so Lief...you still have that bug and are still treating it? and Jonathan, do you have that germ too? brian has had it for over a year now and it has been awful!! It's like he just can't stay well now! I don't know if they just haven't gotten the right combo of meds, or what. he...
  12. A

    alcaligenes

    gggrrrrr....lol. so Lief...you still have that bug and are still treating it? and Jonathan, do you have that germ too? brian has had it for over a year now and it has been awful!! It's like he just can't stay well now! I don't know if they just haven't gotten the right combo of meds, or what. he...
  13. A

    alcaligenes

    ok, the new germ brian has that we can't seem to get rid of is called alcaligenes. anyone ever heard of this?? in the hosp he was on coliston for 12 days and high dose oral bactrim. his pft went down a percent.... so just wondering if anyone else has had this germ and has had success getting rid...
  14. A

    alcaligenes

    ok, the new germ brian has that we can't seem to get rid of is called alcaligenes. anyone ever heard of this?? in the hosp he was on coliston for 12 days and high dose oral bactrim. his pft went down a percent.... so just wondering if anyone else has had this germ and has had success getting rid...
  15. A

    alcaligenes

    ok, the new germ brian has that we can't seem to get rid of is called alcaligenes. anyone ever heard of this?? in the hosp he was on coliston for 12 days and high dose oral bactrim. his pft went down a percent.... so just wondering if anyone else has had this germ and has had success getting rid...
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