Brian had follow up today...was pretty worried. But his pft was up to 36%!!! he still feels more sob than before, but his baseline is 37-40! the dr wants us to see an infectious disease specialist in a cpl wks and he is going to get a port placed in the next month and we are starting the work up for transplant...but i don't care!! i am sooooo happy that his number is back up!!! i feel like we now have some breathing room...literally! lol. we did ask alot of questions today about alot of the meds that you all have mentioned! so thank you!!! networking is so helpful on so many levels!!!