Recent content by b12bc

I apologize if this was already answered, but are you receiving care (or lack of it) from a CF clinic? Perhaps it is time to look for new doctors who are willing to treat your son for what (in my mind) is clearly CF so that he WILL stay healthy and symptom-free for as long as possible. I was...

I apologize if this was already answered, but are you receiving care (or lack of it) from a CF clinic? Perhaps it is time to look for new doctors who are willing to treat your son for what (in my mind) is clearly CF so that he WILL stay healthy and symptom-free for as long as possible. I was...

I apologize if this was already answered, but are you receiving care (or lack of it) from a CF clinic? Perhaps it is time to look for new doctors who are willing to treat your son for what (in my mind) is clearly CF so that he WILL stay healthy and symptom-free for as long as possible. <br />...

Thank you all SO much. You are such wonderful people... I haven't posted a whole lot on here, but when I do you guys are all right there for a virtual stranger. THANK YOU. LostMiler, you summed it up so well... I just can't get my mind off of it. I mean, I've always known that it is pretty...

Thank you all SO much. You are such wonderful people... I haven't posted a whole lot on here, but when I do you guys are all right there for a virtual stranger. THANK YOU. LostMiler, you summed it up so well... I just can't get my mind off of it. I mean, I've always known that it is pretty...

Thank you all SO much. You are such wonderful people... I haven't posted a whole lot on here, but when I do you guys are all right there for a virtual stranger. THANK YOU. <br /> <br /> <br />LostMiler, you summed it up so well... I just can't get my mind off of it. I mean, I've always known...

So I "broke the news" so to speak to a couple of you in chat last night. I had a clinic visit last week and sure enough the trend of lower PFTs is continuing and I am generally declining fairly quickly. For the first time in my life, I heard the word "transplant" directed at me. No, no, no, I am...

So I "broke the news" so to speak to a couple of you in chat last night. I had a clinic visit last week and sure enough the trend of lower PFTs is continuing and I am generally declining fairly quickly. For the first time in my life, I heard the word "transplant" directed at me. No, no, no, I am...

So I "broke the news" so to speak to a couple of you in chat last night. I had a clinic visit last week and sure enough the trend of lower PFTs is continuing and I am generally declining fairly quickly. For the first time in my life, I heard the word "transplant" directed at me. No, no, no, I am...

Again, great to hear! I use 2 or 3 separate cups/nebs for pulmozyme, albuterol and HTS, and Tobi when I'm 28 on, so I usually pre-fill them anyway before I start. I can't believe I didn't think to try this sooner.

Again, great to hear! I use 2 or 3 separate cups/nebs for pulmozyme, albuterol and HTS, and Tobi when I'm 28 on, so I usually pre-fill them anyway before I start. I can't believe I didn't think to try this sooner.

Again, great to hear! I use 2 or 3 separate cups/nebs for pulmozyme, albuterol and HTS, and Tobi when I'm 28 on, so I usually pre-fill them anyway before I start. I can't believe I didn't think to try this sooner.

Yes, it instantly triggered the gag/choke reflex for me and made me sick to my stomach. Like you said, it didn't seem to be the taste or smell, it just immediately churned things up the wrong way when it made its way into my lungs. I know that many people have the side effects with Cayston...

Yes, it instantly triggered the gag/choke reflex for me and made me sick to my stomach. Like you said, it didn't seem to be the taste or smell, it just immediately churned things up the wrong way when it made its way into my lungs. I know that many people have the side effects with Cayston...

Yes, it instantly triggered the gag/choke reflex for me and made me sick to my stomach. Like you said, it didn't seem to be the taste or smell, it just immediately churned things up the wrong way when it made its way into my lungs. I know that many people have the side effects with Cayston...