Recent content by CollinsMom

Another option is you can the CF foundation and they will send you a package of info. You can also log onto cff.org Welcome. I just found this webpage yesterday and I was so excited.

Yes find a new Dr. Ihave to drive 1 hour and 15 minutes to get my 3 year old son to his Dr. I am going to take him for a 2nd opinion and that dr office is 2-1/2 hours away. But for his health it is worth it. Yess your daughter may live until 33 or 54. But what matters is today and tomorrow. Love...

What are the other infections your son gets? i didn't know anything about Pseudomonas until Collin got it. I am curious.

Sorry to sound stupid but what is mrsa? If I were you [if you don't already do it] I would make sure he washes his hands when he gets in the room while waiting on the dr and put antibacterial gel on his hands also. You can 't be to carefull with a CF child. Collins Mom

TOBI cost $3149.00 here in S.C. pulmazyme is $1500. Collins Mom

My son does both at the same time in the Hospital. Collins mom

My son is 3 and take Cipro but he has never had problems with it. His Dr gives him Orapred for weezing and it is wounderful. It knocks it out in like 4-5 days. May be you can try that. Collins Mom

My son has Psuedomonas and he is 3 years old. May be you can call the CF foundation and ask them if there is another DRs office near you. Or you may be able to go on line to CFF.org and see what you can find out. May be you need to do the researcha nd take the results to your Dr and tell him to...

I have problems also with getting my sons enzymes and his other meds from CVS. we would go some were else but he has CRS and he can use anyone else b/c of them. It is very fustating. I try to get his meds a week before I need them b/c it takes them so long to get what they need. I have also had...

My son is 3 years old now and he was on Zyrtec when he was the same age as your child. It didn't work so he is now on Clerenex. He is going for allergy test in July. I wouldn't worry about your child taking a stong dose b/c CF patients take strong meds b/c of there disease. My son has to take...

My son is 3 years old and he had it done when he was 2 1/2. He recovered great and he has had no more problems sence except the occasional infection but w/ antibiotics it goes away. When is your surgery? Collins Mom

My son is 3 years old w/CF We go to church every Sunday. He loves church. We never blamed God b/c God has a reason for everything good and bad that he allows in your life. God will protect and provide for his believers and followers. I have stuggled with depression and someone told me that...

Hi Alyssa, I am a mom of a 3 year old CF boy and a 7 year old daughter without the illness. I can be your pin pal if you want and you mom says it's ok. I will help you with problems you may be facing with CF or with out it. And may be you can help me with CF or with my daughter that doesn't have it.

My son is 3 years old. He weighs 40lbs and is 39in tall. Ihope this helps. Collins Mom